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sandramj's avatar
sandramj
Member
8 years ago

Emotions and costs of BC

Since the initial shock of diagnosis I have had so many emotions and many new ones and unfortunately many old ones.  Something that has bothered me from Day one is the feeling that we, newly diagnosed breast cancer patients, are being preyed upon somewhat.  For me, at the news that I had invasive Breast cancer I presumed Id need to get "treatment" whatever that was ASAP and had never encountered any doctors or places anything to do with oncology - because I had "prayed" (although not religious) that I would NEVER need an oncologist.  
So the news that you need to choose a breast cancer doctor and see one asap is a big shock and still reeling from the diagnosis I floundered asking the Breastscreen who they would recommend.  Of course they can't recommend.  And as far as I know there isn't a rating system like the Myschool website that lists and scores doctors in any one field.  
So where to start -  I got a list of three surgeons from the Breastscreen people and they advised the chap Id seen who'd given me the diagnosis was on the list so I thought Id choose him since he already knew me and my diagnosis.  quick call to my daughter (GP Practice Mngr) who confirmed he was the No. 1 - so I rang and made an appointment.
The rooms were very upmarket and at a ONE STOP building I learned later that held the womens imaging centre, pathology laboratories, radiation facilities, chemotherapy treatment facilities and oncologists in the one building.  The receptionists were very lovely and particularly personable and I was impressed by their personal attention.  
After consultation with the Dr and date scheduled for surgery I was given a few documents to take home and read and sign and take them to the hospital before date of surgery.  The out of pocket costs were huge.  $3000-4000 right there.  And I thought "well no time to get a second opinion or to get quotes so we'll get this done and question the accounts as we go along".   
To my surprise MRI's that I had had for fifteen years that were free were no longer covered for women (over 50) diagnosed with BS.  Bone density was not covered for 50+ with BC. Ultra sounds and biopsies were not covered and even as a pensioner and with top medical insurance the total bill within the two weeks of surgery and tests after came to $7000 out of pocket.  
With the emotions of being newly diagnosed and coming to terms with the cancer, the new terminologies, new doctors, panic, rush I felt like id been used to sell services to me at any cost because I had no time to get second opinions.  I did ask the receptionists at the breast surgeons rooms if the quote they had given me was correct given I was an and pensioner and usually had been bulk billed for all illness before this.  Her reply was _ all people are charged the same across the board". A sort of take it or leave it attitude - which of course we can't really leave it as Id lost the list of other breast surgeons by this stage.  The surgeon required full payment of the gap prior to admission to hospital for the surgery.  The hospital also required any gap payment prior to admission.
The anaesthetist also charged well above the scheduled fee and required a gap payment prior to admission to surgery.  South Coast Radiology required payment at the time of each and every test I had with them and when I received the refunds from Medicare was bitterly disappointed to find that I had paid in excess of $1000 just in gap payments to SCR.  
The feelings of being ripped off at a time when I was extremely vulnerable made my anxiety and emotions stronger.  But I felt compelled to be unable to complain and that I should be grateful. So the emotions were confusing - I was angry that the government had stopped subsidising MRI for women with breast cancer - WHY. Also the ultra sounds subsidies had been reduced severely for again seniors - why?  I was angry that drug addicts seem to be able to access free needles and a clean place to shoot up and receive substitute drugs for a condition that is illegal to take drugs in the first place.  The emotions and thoughts were racing around in my brain-  Does this government want women with breast cancer over 50 to just die if they can't afford treatment?  Why are we charged so much?  When I had my hip replacement I was able to shop around for the best surgeon who happened to bulk bill everything.  He was fabulous.  Here I am now in a life threatening state of health with cancer and Im not afforded the time or any help with ways of reducing the costs of treatment and in fact feels like Im being punished for getting cancer and being a senior.  
The more test I had the greater the cost and the higher the feelings of guilt for spending so much of our money we had to live on to top up our pension - 
This added to my sadness and depression at having cancer and anger for it not being my fault but I felt like I was being punished -  very emotional.  And I wonder if anyone else had these feelings and thoughts going on adding to their distress at this very emotional time.  
Wow long post again but I am questioning everything I am feeling and doing as I have never done this before and hopefully never have to do it again and wonder if I'm being "normal" or have I lost part of my mind somewhere along the way?
Yep I felt like the surgeon and the anaesthetist and SCR were taking advantage of me - US - women newly diagnosed with Breast cancer.  And the governments health department seemed to be also disadvantaging US.  No happy, Jan.  
I was happy to find out that the Cancer centre bulk billed consultation and chemotherapy to Medicare and your private health fund - But that radiation could cost between $3500 and $15,000 depending on where you went etc.  I manager to negotiate these costs with my people and will pay $140 per week out of pocket - which is affordable.  Its weird they asked me to suggest a figure that Id be comfortable paying - and my head thought NOTHING is what id like to pay as a pensioner and with top medical cover, but again the guilt and obligation said you HAVE to pay something - you don't deserve it to be free.  you do have SOME money - so we set $140 a week and due sera sera  
Whats your thoughts?  
Maybe a need a psychiatrist?  Or some Valium or the like to slow down my brain?  Just checking on others thoughts on the pricing etc.  

35 Replies

  • @sandramj, breast cancer diagnosis and going through the treatment has brought up a bundle of emotions for me, and I can definitely say that anger is one of them. I am currently seeing a psychologist through the public hospital cancer centre, even though I am mostly going through the private system.
    The change to my life, ability to work, surgery options, mortality and many other issues have become such issues that I had to see someone to work through them for my own sanity.

    My breast surgeon and oncologist often request bulk billing for me, and have done so for the bone and body scans, and just recently for echocardiogram and liver and chest CT scans.
    I will have to pay for the breast MRI.
    I did have approx $3,000 out of pockets for my lumpectomy surgery with breast reduction at the same time, and have to go back for a mastectomy so will probably have that again.
    The surgeon and anaethetist who put my portacath in billed Medicare and my health fund direct, there were no out of pocket expenses.

    I agree, when you are diagnosed you just want the bloody thing taken out, shopping around for the best price is not a priority, getting fast help from a highly regarded surgeon is.

    Ask about bulk billing when you are being given referrals for the scans and tests.
    My Oncologist has also mentioned that he can request bulk billing from the private radiation provider though I have yet to test that offer, and will switch to public if it is not an option.

    I don't know which health fund you are in, but my fund covers all "in hospital" expenses after the $500 excess has been paid. That doesn't include the surgeon, anaethetist or pathology for the breast surgery though. They wanted the excess paid up front but nothing else.

    Hoping you can find some satisfactory answers to your problems and ways to minimise the additional stress of finances to add to your worries.

    Jennie


  • My first diagnosis was 6 years ago and I was recently diagnosed with mets. To this day the only things I have paid for are the hormone tablets and zolodex all which I got on the PBS. I am a public patient and my care has been phenomenal. 
  • @sandramj I think everything you said is very valid and normal! Youre not going mad! Ive been doing this 6 years, I have private health cover, however I have out of pocket if I see my Surgeon or Oncologist, for surgery I have an excess to pay plus Anaesthetist is ridiculous always! 

    In 2011 I did radiation through public, it was billed through medicare but was odd, I think I had to pay up front then they paid it back, was weird. 2015 more surgery and chemo, I went private but chemo cost nothing, nor imaging of any sort. I also have a health care card as am a single parent and low income earner which helped with prescriptions. 

    My mastectomy/diep flap recon, my Surgeon did it through a public hospital together with my Plastic Surgeon to save money as otherwise my quote from Plastics alone I would have been $10,000 out of pocket. 

    So I actually use both, my revision will be public as well but the beauty of my private surgeons. 

    It is BS, but your only option is to switch into public. xx Melinda 
  • True, @primek I'm a public  patient with no concessions as well and it's cost me very little apart from a PET scan $900, bone scan $90. The drug costs are a major problem, but there's no getting around that.

    I'm just finishing a course of radiotherapy that was bulk billed. 10 years ago when I had my first BC, that treatment was going to cost me $6500. I didn't have the money, so didn't have the treatment. You've got to wonder if that treatment might have saved the public system the cost of treating my recurrence if I'd been able to have it.

    Having a tumour the size of a walnut meant that I got bumped up the surgery list so my treatment was prompt. I don't need any of the stuff that has a long wait, like reconstructions. Having all treatment as a private patient sounds like a very expensive exercise, and they wonder why people are dumping private health cover.

  • Hence why I chose to go public. Not being a pensioner and working meant I couldn't  even get a health care card, even when I couldn't work (as centrelink looks back 2 years not just now). Alas the system sucks and you are not alone for feeling ripped off.