The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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over treatment options","id":"message:22300","revisionNum":1,"repliesCount":10,"author":{"__ref":"User:user:20489"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:22300"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:22300"},"body@stripHtml({\"truncateLength\":200})":"I was diagnosed with DCIS 3 weeks ago. I'm in my 40s.. My immediate thoughts were to have a Bilateral Mastectomy and reconstruction. I have a strong family history of breast cancer (my mom and sister ...","body@stringLength":"1673","rawBody":"I was diagnosed with DCIS 3 weeks ago. I'm in my 40s.. My immediate thoughts were to have a Bilateral Mastectomy and reconstruction. I have a strong family history of breast cancer (my mom and sister both were diasgnosed with IBC in their 40s).
My surgeon said my DCIS was at a very early stage and non-invasive. I was conflicted but didn't want to delay treatment. So I agreed to have a lumpectomy instead. This was followed by a re-excision to get clear margins. DCIS was 2 foci, 10mm in total. High nuclear grade.
Now I am at a crossroad and have to decide whether to proceed with rads or go ahead with a double mastectomy plus reconstruction. I'm afraid I will get a recurrence or another primary breast cancer due to family history and increased risk. And if I go ahead with rads and the cancer comes back, I will then have to get a Mastectomy but implant reconstruction will have a high risk of failure due to scar tissues caused by rads.
My head is telling me that having a double mastectomy now will be a very radical move for a non-invasive DCIS. But my heart is telling me to have the Mastectomy plus reconstruction.
Has anyone out there gone ahead with Mastectomy for DCIS or early BC (even though lumpectomy and rads were an option) because of their family history? Gene testing is one option but even with a negative in the gene test, there are many undetectable abnormallies in the genes which increases the risk of cancer in the family.
I hope to receive your feedback or views. Seems like this big decision is the only thing I can think of all the time.
","kudosSumWeight":0,"postTime":"2017-11-15T01:53:16.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:22300_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":243},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"I was diagnosed with DCIS 3 weeks ago. I'm in my 40s.. My immediate thoughts were to have a Bilateral Mastectomy and reconstruction. I have a strong family history of breast cancer (my mom and sister both were diasgnosed with IBC in their 40s).
My surgeon said my DCIS was at a very early stage and non-invasive. I was conflicted but didn't want to delay treatment. So I agreed to have a lumpectomy instead. This was followed by a re-excision to get clear margins. DCIS was 2 foci, 10mm in total. High nuclear grade.
Now I am at a crossroad and have to decide whether to proceed with rads or go ahead with a double mastectomy plus reconstruction. I'm afraid I will get a recurrence or another primary breast cancer due to family history and increased risk. And if I go ahead with rads and the cancer comes back, I will then have to get a Mastectomy but implant reconstruction will have a high risk of failure due to scar tissues caused by rads.
My head is telling me that having a double mastectomy now will be a very radical move for a non-invasive DCIS. But my heart is telling me to have the Mastectomy plus reconstruction.
Has anyone out there gone ahead with Mastectomy for DCIS or early BC (even though lumpectomy and rads were an option) because of their family history? Gene testing is one option but even with a negative in the gene test, there are many undetectable abnormallies in the genes which increases the risk of cancer in the family.
I hope to receive your feedback or views. Seems like this big decision is the only thing I can think of all the time.
"},"Conversation:conversation:22300":{"__typename":"Conversation","id":"conversation:22300","solved":false,"topic":{"__ref":"ForumTopicMessage:message:22300"},"lastPostingActivityTime":"2017-11-16T04:56:06.000-08:00","lastPostTime":"2017-11-16T04:56:06.000-08:00","unreadReplyCount":10,"isSubscribed":false},"ModerationData:moderation_data:22300":{"__typename":"ModerationData","id":"moderation_data:22300","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:22300_1":{"__typename":"Revision","id":"revision:22300_1","lastEditTime":"2017-11-15T01:53:16.000-08:00"},"ForumReplyMessage:message:22309":{"__typename":"ForumReplyMessage","id":"message:22309","conversation":{"__ref":"Conversation:conversation:22300"},"author":{"__ref":"User:user:18838"},"revisionNum":1,"uid":22309,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Dilemma over treatment options","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:22309"},"parent":{"__ref":"ForumTopicMessage:message:22300"},"body":"Hi there lovey. I had triple neg last year aged 43 stage 2a grade 3 (3 cm) no family history negative for the gene all scans clear 8 rounds of chemo and hell yes I took them both off but only because my gut told me to. I had it in the left boob and could of had lumpectomy chemo and rads but decided on mastectomy then I didn’t have to have radiation. Then I took the other boob off 6 months later. Only regret I have sometimes is I didn’t have the immediate recon. It doesn’t bother me having no boobs but it means more surgery now in the future and more time off work. So I’ll cross that bridge when I come to it. I totally trusted my gut and have no regrets. If I had your history I wouldn’t hesitate to be honest and if it means no treatment and you can get on with life sooner I would do it absolutely. Always trust your gut and do what you feel is best for you lovey. Everyone is different and everyone’s had a different journey. It’s a tough decision no doubt about it but whatever you decide you will get through it. Keep us posted. Biggest hug Margie xx ","body@stringLength":"1086","rawBody":"Hi there lovey. I had triple neg last year aged 43 stage 2a grade 3 (3 cm) no family history negative for the gene all scans clear 8 rounds of chemo and hell yes I took them both off but only because my gut told me to. I had it in the left boob and could of had lumpectomy chemo and rads but decided on mastectomy then I didn’t have to have radiation. Then I took the other boob off 6 months later. Only regret I have sometimes is I didn’t have the immediate recon. It doesn’t bother me having no boobs but it means more surgery now in the future and more time off work. So I’ll cross that bridge when I come to it. I totally trusted my gut and have no regrets. If I had your history I wouldn’t hesitate to be honest and if it means no treatment and you can get on with life sooner I would do it absolutely. Always trust your gut and do what you feel is best for you lovey. Everyone is different and everyone’s had a different journey. It’s a tough decision no doubt about it but whatever you decide you will get through it. Keep us posted. Biggest hug Margie xx 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