The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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on 1 May 2017","id":"message:20863","revisionNum":1,"repliesCount":26,"author":{"__ref":"User:user:20001"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:20863"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:20863"},"body@stripHtml({\"truncateLength\":200})":" I am 58 and have a lifetime habit of healthy living. Therefore,when I was first diagnosed with breast cancer in 2014, like everyone else I'm sure, I couldn't believe it. It never occurred to me I wou...","body@stringLength":"2741","rawBody":"
I am 58 and have a lifetime habit of healthy living. Therefore,when I was first diagnosed with breast cancer in 2014, like everyone else I'm sure, I couldn't believe it. It never occurred to me I would get cancer. After I competed treatment I did everything I could think of to ensure I would be healthy and cancer free.
\n
Early this year I started to experience inexplicable back pain. I also didn't feel myself - hard to explain. After many visits to the doctor trying to figure out what was wrong, I ended up in Emergency at 4am with unbearable pain. I was diagnosed later that morning with metastatic breast cancer - Monday 1 May. Within a week I was receiving chemo and had my first radiotherapy treatment. I am blessed to have a highly skilled, caring and compassionate medical team that I have complete faith in.
\n
The resources on this site have been informative & helped me a lot, especially during the first few terrible weeks after I was diagnosed - I'm sure I took advantage of every scan and test available at North Coast Radiology during those weeks. The scans show I have extensive metastasis in my spine, hips and a few areas on my scull; and spots in my liver. The liver is already showing a lot of improvement. Fortunately my brain and other organs are clear.
\n
The scans of my spine and hips are VERY scary and the associated pain is no fun. Mindfulness meditation, eating healthily and exercise certainly help. I'd love any advice or suggestions you have in helping to live with bone pain.
\n
I read messages of hope and inspiration on this site during that first scary week. I can't find words to express how much those stories helped - I latched onto the hope and advice to live every day well and to set goals. Kitty's message that, \"in a strange way, those of us with advanced disease are lucky – we know that the important thing is to enjoy today and to live as well as we can\" is forefront in my mind. So ... thanks to Kitty, one week to the day after I was diagnosed I ordered my dream campervan (over the phone on my way to Lismore for more scanning). Since I was a child I have always wanted to own a two tone Kombi campervan (my god parents, who I adored, had one) My partner and I are had saved and planned to buy a modern version in a couple of years but we brought our plans forward. We do have a basic 20 years old campervan we love but is doesn't have aircon. Not so comfortable driving in summer since we moved north!
\n
Thank you all for being here. I look forward to 'meeting' at least some of you.
I am 58 and have a lifetime habit of healthy living. Therefore,when I was first diagnosed with breast cancer in 2014, like everyone else I'm sure, I couldn't believe it. It never occurred to me I would get cancer. After I competed treatment I did everything I could think of to ensure I would be healthy and cancer free.
\n
Early this year I started to experience inexplicable back pain. I also didn't feel myself - hard to explain. After many visits to the doctor trying to figure out what was wrong, I ended up in Emergency at 4am with unbearable pain. I was diagnosed later that morning with metastatic breast cancer - Monday 1 May. Within a week I was receiving chemo and had my first radiotherapy treatment. I am blessed to have a highly skilled, caring and compassionate medical team that I have complete faith in.
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The resources on this site have been informative & helped me a lot, especially during the first few terrible weeks after I was diagnosed - I'm sure I took advantage of every scan and test available at North Coast Radiology during those weeks. The scans show I have extensive metastasis in my spine, hips and a few areas on my scull; and spots in my liver. The liver is already showing a lot of improvement. Fortunately my brain and other organs are clear.
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The scans of my spine and hips are VERY scary and the associated pain is no fun. Mindfulness meditation, eating healthily and exercise certainly help. I'd love any advice or suggestions you have in helping to live with bone pain.
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I read messages of hope and inspiration on this site during that first scary week. I can't find words to express how much those stories helped - I latched onto the hope and advice to live every day well and to set goals. Kitty's message that, \"in a strange way, those of us with advanced disease are lucky – we know that the important thing is to enjoy today and to live as well as we can\" is forefront in my mind. So ... thanks to Kitty, one week to the day after I was diagnosed I ordered my dream campervan (over the phone on my way to Lismore for more scanning). Since I was a child I have always wanted to own a two tone Kombi campervan (my god parents, who I adored, had one) My partner and I are had saved and planned to buy a modern version in a couple of years but we brought our plans forward. We do have a basic 20 years old campervan we love but is doesn't have aircon. Not so comfortable driving in summer since we moved north!
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Thank you all for being here. I look forward to 'meeting' at least some of you.
"},"Conversation:conversation:20863":{"__typename":"Conversation","id":"conversation:20863","solved":false,"topic":{"__ref":"ForumTopicMessage:message:20863"},"lastPostingActivityTime":"2017-08-11T20:04:03.000-07:00","lastPostTime":"2017-08-11T20:04:03.000-07:00","unreadReplyCount":26,"isSubscribed":false},"ModerationData:moderation_data:20863":{"__typename":"ModerationData","id":"moderation_data:20863","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:20863_1":{"__typename":"Revision","id":"revision:20863_1","lastEditTime":"2017-08-02T15:46:18.000-07:00"},"ForumReplyMessage:message:20876":{"__typename":"ForumReplyMessage","id":"message:20876","conversation":{"__ref":"Conversation:conversation:20863"},"author":{"__ref":"User:user:12234"},"revisionNum":1,"uid":20876,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Diagnosed on 1 May 2017","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:20876"},"parent":{"__ref":"ForumTopicMessage:message:20863"},"body":"hi jena, thanks for the message, I expect the mri is to just to see whats going on, unfortunately with our diagnosis, the doctors really have to keep on top of everything, could be just your back problem flaring up, I have a similar diagnosis to you in terms of my back, damage to c3 through to c7 and bulging discs, I used to have facet joint rhyzolizis twice a year under day surgery, whereby they cauterized the nerves in my spine to give me relief, however since my diagnosis, that's a no no so just have to use pain relief, but I have found that all the while I can keep my life as stress free as possible the pain has gotten better, easier said than done, let us know how the mri goes, wendy55
","body@stringLength":"722","rawBody":"hi jena, thanks for the message, I expect the mri is to just to see whats going on, unfortunately with our diagnosis, the doctors really have to keep on top of everything, could be just your back problem flaring up, I have a similar diagnosis to you in terms of my back, damage to c3 through to c7 and bulging discs, I used to have facet joint rhyzolizis twice a year under day surgery, whereby they cauterized the nerves in my spine to give me relief, however since my diagnosis, that's a no no so just have to use pain relief, but I have found that all the while I can keep my life as stress free as possible the pain has gotten better, easier said than done, let us know how the mri goes, wendy55
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