Diagnosed IDC...
This discussion was created from comments split from: Newly Diagnosed.
Forum Discussion
Posted by Arpie September 16 2018
Sorry to see you here, @Trussy - but you're in the right spot for support & friendship by those who've been thru it.
Great news that it has not spread to your nodes - that's a bonus. I hope you are recovering from your surgery OK without too much discomfort - small oblong pillows can lift your arms & make it a tad easier to sleep .... some Breast Care nurses supply them. I bought mine.
Just take it easy, one day at a time .... do stuff 'as you are able' and I hope you have a BUNCH of family & friends supporting you at home. If they can cook some meals for you, that is a real bonus too.
Have you requested your 'Journey Kit' yet form BCNA? (See link below) There is a lot of really helpful info in it - how to deal with children & others re your treatment - a great diary for recording everything from expenses to your thoughts ....
If you have ANY questions (even if you think they are trivial) whack them up here & someone will answer! ;)
All the best with your Onc meeting tomorrow - it is a good idea to have someone else with you for moral support & also a 2nd set of 'ears' - they may pickup on some things that you may miss, as your head will be a whirlpool of information just now. I even recorded my early meetings on my phone, so I could go back & listen again later! (Not that I have!! But they are still there!)
All the best for your ongoing treatment xx
Sorry to see you here, @Trussy - but you're in the right spot for support & friendship by those who've been thru it.
Great news that it has not spread to your nodes - that's a bonus. I hope you are recovering from your surgery OK without too much discomfort - small oblong pillows can lift your arms & make it a tad easier to sleep .... some Breast Care nurses supply them. I bought mine.
Just take it easy, one day at a time .... do stuff 'as you are able' and I hope you have a BUNCH of family & friends supporting you at home. If they can cook some meals for you, that is a real bonus too.
Have you requested your 'Journey Kit' yet form BCNA? (See link below) There is a lot of really helpful info in it - how to deal with children & others re your treatment - a great diary for recording everything from expenses to your thoughts ....
If you have ANY questions (even if you think they are trivial) whack them up here & someone will answer! ;)
All the best with your Onc meeting tomorrow - it is a good idea to have someone else with you for moral support & also a 2nd set of 'ears' - they may pickup on some things that you may miss, as your head will be a whirlpool of information just now. I even recorded my early meetings on my phone, so I could go back & listen again later! (Not that I have!! But they are still there!)
All the best for your ongoing treatment xx
And some info on Navigating the online community here:
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey Kits and other resources.
https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9am-6pm Monday to Thursday and 9am to 5pm Fridays.