Welcome @sirrah Yep! Sometimes the doctors aren't as clear as they should be and sometimes we think we're listening but don't catch everything. Have you got someone you trust to take to appointments? It's always useful to have a second pair of ears and not just to hear what is being said - sometimes, someone else will think of a question that you may not have picked up on. The other thing that I find useful is to keep a record of the side effects of any treatment (I print it out and give it to the doctor) and also jot down questions as I think of them, otherwise I would not remember at the time of the appointment. As for stages, many doctors don't find it particularly useful - to be honest, I'm still not sure if I'm on the upper range of 2 or the lower range of 3, as diagnosis changed for me after the path report.
