Forum Discussion
Wonk
7 years agoMember
Can’t Sleep
Hi, I was diagnosed Thursday after a routine mammogram screening call back.
So hard to understand and everything has moved so fast. Booked in for surgery on Wednesday next week. Had to make the decision yesterday about mastectomy or breast conservation. Still have to tell the children and other family members. Booked in my work sick leave and trying to get housework done before I go in. Trying to remain positive for everyone but now I’m lying here awake at 2.30am and I’m scared. I know you have all been at this starting point. I’m guessing the overwhelming thoughts in the middle of the night are common. Any advice on how to get through these early days and waking nights would be appreciated. Thank you.
So hard to understand and everything has moved so fast. Booked in for surgery on Wednesday next week. Had to make the decision yesterday about mastectomy or breast conservation. Still have to tell the children and other family members. Booked in my work sick leave and trying to get housework done before I go in. Trying to remain positive for everyone but now I’m lying here awake at 2.30am and I’m scared. I know you have all been at this starting point. I’m guessing the overwhelming thoughts in the middle of the night are common. Any advice on how to get through these early days and waking nights would be appreciated. Thank you.
27 Replies
- Blossom1961MemberThank you ladies. I don't need to ask the question because this thread already answers it. I have added to my already packed bag. I forgot I would need slip on slippers rather than my trusty Uggs. Will have to buy some. Werthers are going on to my list too! I get too many hot flashes for a pashmina but will take my throw just in case.
- SisterMemberThat made me remember @arpie... Second time round I took a laptop and a couple of movies. I didn't have the concentration to do much reading and it certainly beat middle of the night TV.
- arpieMember@"Annie C" - that brought tears to my eyes - what a beautiful story & lovely people xxxx If Keith & I get over there, he could do it!! He's painted animals on the base of our Palm Trees! ;)
Gosh @Wonk - I am thinking of you as you approach your time in hospital - I am coming up to my 12 months from 'detection' scans .... Everyone here is just wonderful - and will have answers or suggestions for pretty well anything you may think of to ask!!
Sleep is the first thing that is affected, I reckon - and I hate to tell you - it is often ongoing :( Melatonin tabs can also help.
Re hospital - As well as the ear plugs (I use these ones below) - you squash them into a really thin sausage & shove them RIGHT INTO your ear & block out most noise!) You can get them from Bunnings (and possibly chemists.) They are great - and when shoved in, are not at all uncomfortable. I also take my airline 'eye mask' as well - as hospitals always have lights on everywhere - it can be very difficult to block out the light. Short stories or magazines are good - no point taking a 'Novel' in - as you get interrupted more often than not & just read the same chapter 10 time! :(
Make sure you have a little cushion (mine was like a 1/3 size cushion size) to help support the arm on the affected side whilst you sleep after your surgery .... Sometimes your breast care nurse may provide you with one - I had one from previous shoulder surgery. I used it for at least a month afterwards!
And make sure you take ALL the medication regularly for as long as you need after your surgery, whether you think you 'need it' or not. Specially in the early days - you don't want to full pain to break thru as it can be difficult to control otherwise.
If any of your buddies suggest they can help you in any way - see if they can cook up a few meals & freeze them for you, so that on your return home, you don't have to worry about shopping & cooking for a few days. One buddy did that for me & it was wonderful. I was able to milk them out to last a week of evening meals.
Best advice - make haste slowly afterwards. Accept any help that is offered from family & friends xx
Take care & all the best for your surgery this week. xx - Annie_CMember@kmakm
Aw Kate I like that idea. Will have to suggest it to my artist friend. What a great momento to have. - kmakmMember@"Annie C" What a beautiful story. I think someone should paint you with your arms around the boab in that courtyard. It would be an extraordinary image. K xox
- Annie_CMember@Sister
After I left hospital I stayed at the Cancer Council accommodation centre for rural and remote patients. I had to stay for some weeks. Was not allowed to fly home. It was July /August. I was so very homesick. On one of my walks around the area I discovered a bar and grill, the side courtyard of which had a boab tree in it! I walked daily to that cafe, threw my arms around the boab tree and sobbed my heart out. The staff, when they found out how far away I was from home, would bring me a coffee (gratis) and spend 5 minutes of their precious time on a homesick old lady. Did my heart the world of good. - kmakmMemberI second the pashmina suggestion. My hospital room for the BMX & recon was freezing.
- ZoffielMemberAdd a thermos cup to the list, ladies. That way you can have a decent cuppa that stays hot.
- SisterMemberOh @allyjay - I remember taking a pashmina on the second visit, too. Height of Summer but during the first stay I was often huddling under a blanket. I don't know what the hospital you are going to is like @wonk but the one I was in had a garden and my surgeon (not the nursing staff) was very happy for me to to outside and walk around when I got cabin fever. And it certainly beat doing laps of the corridor. But I still had to keep the compression stockings on so I needed easy to put on shoes that would fit over the stockings.
- WonkMemberSlippers! Didn't even think about them, and you're right I remember the hospital being cold when I had kids. Thanks AllyJay, most helpful.