Hi @CJD_2023
SO sorry to see you here, joining the club that no-one wanted to join. Xx. Wishing you all the best for your pathology results & ongoing team meetings xx. I hope you have a supportive family member or good friend to attend them with you. I’d also suggest that you record the meetings on your phone, as it is so easy to forget or ‘miss’ bits on the day.
Well done on keeping so fit - that will definitely help with your recovery and also mentally as well - there is nothing like getting out, communing with nature. Xx
We have a private ILC group that you may like to join - click on the Groups above … where we put up info as we find it, re ILC, as it IS such a strange beast & different from the other and you may like to join the Regional/rural/remote group too. Are you aware of the PATS scheme in WA where you can claim fuel & some accommodation costs re your travel to surgery & appointments.
I only had a lumpectomy & radiation with my ILC & am on hormone tablets now - so I dodged the chemo bullet … so not up on the chemo bit ….
You can also ‘search’ within the forum for ILC and Pleomorphic for previous posts …..
Re chemo - you can only go with your Onc’s suggestions ….. some sorts of ILC (I believe) do not suit chemo, but there are plenty here who DID have chemo with their ILC.
@Sister had Pleomorphic - she may be able to jump on & help you out with the other questions.
I believe you SHOULD be ok to have your holiday - as they usually wait til after your wound has fully healed …. Specially for the radiation. Just raise it with your Onc/Rad Onc so they are aware of the dates. I had a lovely holiday to Norfolk Island after my Rads - and the Onc said I could have the Rads AFTER the holiday if I wanted - but I preferred to get the ‘active treatment’ over & done with before the holiday & I am glad I did.
Jump onto this thread - it has a lot of info about the forum & different subjects ….. you can put up pics of you pup, your garden & even the views on your walks ….. and we even have a couple of funny bits, as we all need a bit of a laugh now & then
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latestTake care, all the best with your ongoing treatment xx
