@socoda, thank you! It is different to BC. Even a malignant phyllodes is not dealt with the same way; I read it doesn't respond well to chemo and radiation. I think I will seek another opinion but follow your point in considering all options and my own choice. I feel really physically tense. I think stretching may help.
@arpie, great idea to message others. My phyllodes was, as far as I could tell, close to the chest wall on one side and very close to the skin on the other (I could see it through my skin and it caused veins to become visible and my skin to be discoloured).
Thank you so much for all the encouragement and support. It's really made me feel better. Xx