Forum Discussion
Nicky123
3 years agoMember
All the tests to update new diagnosis
What a couple of weeks I have had. After being called back to Breastscreen NSW (amazing service and staff), I had the battery of tests at the post mammogram assessment including 3 biopsies.
Originally a lump and calcifications (left) and Stage 2 DCIS and calcifications (right) in between Stage 1-2 DCIS.
To the surgeon (amazing, feeling very confident with her) and then an MRI yesterday to rule out a higher stage.
Called back today for another 2 biopsies (left again, completely different places) and another MRI. Lymph nodes are looking ok.
Back to the surgeon on Monday AM to discuss treatment options when pathology is back.
I am so grateful for how kind all the nurses, radiologists and doctors have been / even when I have ‘lost it,’ almost fainted or felt nauseous etc etc.
Taking it one day at a time and trying not to predict or worry.
It all happens so, so fast - so much to take in and to recalibrate every visit - something new and something more.
I know that all these tests and checks will help to work out exactly what is happening and then formulate the best treatment plan moving forward.
I know that all these tests and checks will help to work out exactly what is happening and then formulate the best treatment plan moving forward.
I don’t have any questions at the moment - well, lots but know I just need to wait. I do want to say how helpful it’s been reading the posts and discussions. I’m sure I’ll be back for more in the future.
Thank you, Nicky (51, Sydney)
48 Replies
- AfraserMemberOne thing at a time is a very practical and sensible approach. Remember that hormone blockers are recommended but not forced on you, if the side effects are too difficult you can stop. There is insufficient research on whether shorter periods of hormone blocker medication has some benefit- even after five years I could not find any research that said seven years (for example) was better than five if not as good as ten years. Side effects vary immensely - joint pain and aches are quite common and I had none at all. Other side effects may vary with age or your own health levels. One of the better side effects of bc is trying things you never thought you would - same applies to hormone blockers. Good luck and best wishes.
- Nicky123Member@Afraser thank you for your encouragement. I must admit, the hormone blockers (tamoxifen in my case) are really worrying me.
I have a few months before I have to go there and I know I’ve managed everything so far - but these seem to be causing me such concern.Of course - not everyone has side effects. One thing at a time. I’ll recovery from Friday’s surgery, get through the radiotherapy and then next steps.
Oh - and have my mirena removed 🤦🏻♀️
Thank you for sharing.Nicky 🌸 - AfraserMemberEarly advice and checking is important for lymphoedema - sometimes it’s short term if addressed quickly. I’ve done the full ten years on hormone blockers, glad to have stopped but glad I did it too. Take heart, this is all
doable. - Nicky123Member@arpie thank you so much for your encouragement and advice - so gratefully received.I’ve booked an appointment with the onc Physio at the hospital, she’s going to look at my mobility (I had a baseline and post first surgery Sozo test) and also give me some massage tips.Thanks again -
Nicky 🌸 - arpieMemberGreat to hear the margins are clear @Nicky123 and all the best for your appt with your surgeon, he will then refer you on to the Rad Onc, as well as the Medical Onc re the ongoing treatment, and possibly a lymphodema specialist too, so you are aware of the exercises to do to hopefully prevent lymphodema
take care & all the best - let us know how you go .... make haste slowly - but get back (as you are able) to doing things that you love doing, to keep yourself active & engaged, both mentally & physically xx - Nicky123MemberAn update today - after not getting clear margins on one side (30/3), I had some genetic testing (negative) to decide mastectomy or re-excision.
I had the second surgery last Friday and found out today - margins clear.
13/7 meeting with my surgeon to discuss next steps - radiotherapy and removal of mirena. I know hormone blockers are pending and can’t wrap my head around that yet.One thing at a time.
My surgeon has been great - including this last time, rather than have me wait for 2 weeks for my pathology appointment - she messaged me on holidays with the good news.
Learning so much here, from the breast care nurse and the focus is recovering from surgery this week then onto next.Thank you all.Nicky 🌸 - Nicky123MemberThank you for sharing more of your experiences @FLClover - it’s really helpful. X 🌸
- FLCloverMember@Nicky123 it is, thank you 🐣☺️🥰. I did the same genetic testing and it came back negative, which was a relief, but I’d already had the double mastectomy. And then radiation on top of that as well 😄. But mine were different circumstances, so you shouldn’t need all that. Either way, you will know the right thing to do if you are calm and confident. Enjoy the rest of your weekend ♥️.
- Nicky123MemberThank you @FLClover - I’ve had some lovely downtime and also some some research on here to consider next steps. Over the initial shock of last Thursday and have some questions - but will wait for the results of the genetic testing and then go from there.I really appreciate your message and hope your long weekend is also going well?
take care,
Nicky 🌸 - FLCloverMemberThose are good results @Nicky123, considering. You do have decisions to make, but for the time being focus on enjoying the Easter holiday as you said, and resting from the surgery. The right answer will come to you at the right time ♥️.