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A new member and really wishing I wasn't
Received diagnosis on Feb 24th of Ductal Invasive Carcinoma Grade 2 in left breast after Mammogram with Breastscreen. Fortunately Dr de Viana was the one who gave me my results and I later found out he was one of the best here on the Gold Coast for surgery and treatment. I was in shock and we had a cruise organised with family flying from Perth & Melbourne to join us in Singapore then cruising for two weeks back to Brisbane. I discussed this with Dr and he said two weeks cruising would be good.
So back to Dr on March 17th the day after arriving home and he scheduled surgery fro Wed march 29th as I had to go off blood thinners a week before.
I managed to put the cancer to the back of my mind a lot of the time on the cruise as I was "tour guide" for a group of six first time cruisers and two we had cruised with before. I kept very busy and only had one dream that included cancer and it was very tame.
I have had depression for over fifty years and take antidepressants and now a mood stabiliser and without going into a lot of detail am taking a LOT of medications for heart disease, diabetes insipidus, thyroid and now realise I have anxiety. My anxiety takes over and physically changes my wellness into diarrohea & a continual feeling of sick in the gut. And today I am having trouble keeping busy to block the thoughts and consequent feelings.
I had at major shift in my thoughts on Friday morning in the shower and cried thinking how angry how I had ignored my left breast throughout this. I felt very sorry I had ignored it and decided on an old therapy from another time of surgery - to think positive and change things little by little - those I have control over - and feed my body only good foods, nurture myself etc.
But like another bowling ball thundering down my alley towards my "pins" id taken three weeks to stand back up - I go a phonecall from the Breastcare Nurse saying the MRI * recent ultra sound picked up another lump in the same breast - this one at 5 oçlock. Previous one at 2 oçlock and they thought it might be a satellite of the other one. Therefore need another ultrasound ASP and another biopsy on Tuesday 11am.
They also found another lump in the right breast that they thought might be benign - BUT I am worried and would like that biopsied too at the same time so I only have one anaesthetic (Had major clot on the lung & pituitary tumour in the past)
I am scared beyond belief and cannot believe how quickly things have changed - AND not for the better. I am imagining the new lump is an offshoot of the other one as it is invasive and so I am wondering if they weill suggest mastectomy - I am petrified about chemotherapy. I was prepared for the wide incision and the sentinel node biopsy - but this seems too much right now......
I haven't told my family as I don't want to worry them unnecessarily about the extra lump until I know what it actually is. But that seems to be adding to the stress.
Ive got the journey kit and read a lot and thought I had it sorted - what it was - the surgery and what I needed to do.... \But now I feel back in the shock and denial stage I was till Friday. Guess this is normal - but I hate it! It's like \I have a thread from my brain through my gut straight to my bowels as the vomiting and loose bowels is immediate......
Guess it is also normal to feel alone and afraid to reach out to anyone due to feeling like a nuisance and there's nothing anyone can say except you'll be fine" But I don't know that right now.
They say a problem shared is a problem halved and I hope this will bring some relief just from putting my thoughts and eelings on here. Hope that's what this is for.......
Ive had a lot of illnesses in my family and myself but I never wanted to EVER go to an oncology department..... Guess I should be careful what I wish for..... And sometimes what we put our energy on festers.....
Soo many thoughts running around in my head - and ive managed to come out of major illnesses efore with positive thinking, reading Louise Hay etc, doing affirmations, relaxation and meditation but I can't seem to connect to this........ It's like its not real or maybe my previous way of managing things like this is to dissociate and that's what I'm doing on an unconscious level;.....
|Sorry folks this is a ramble - but its how my head, thoughts and emotions seem right now.
Thank you for the opportunity to :uload" share - rant on here. :) <3
So back to Dr on March 17th the day after arriving home and he scheduled surgery fro Wed march 29th as I had to go off blood thinners a week before.
I managed to put the cancer to the back of my mind a lot of the time on the cruise as I was "tour guide" for a group of six first time cruisers and two we had cruised with before. I kept very busy and only had one dream that included cancer and it was very tame.
I have had depression for over fifty years and take antidepressants and now a mood stabiliser and without going into a lot of detail am taking a LOT of medications for heart disease, diabetes insipidus, thyroid and now realise I have anxiety. My anxiety takes over and physically changes my wellness into diarrohea & a continual feeling of sick in the gut. And today I am having trouble keeping busy to block the thoughts and consequent feelings.
I had at major shift in my thoughts on Friday morning in the shower and cried thinking how angry how I had ignored my left breast throughout this. I felt very sorry I had ignored it and decided on an old therapy from another time of surgery - to think positive and change things little by little - those I have control over - and feed my body only good foods, nurture myself etc.
But like another bowling ball thundering down my alley towards my "pins" id taken three weeks to stand back up - I go a phonecall from the Breastcare Nurse saying the MRI * recent ultra sound picked up another lump in the same breast - this one at 5 oçlock. Previous one at 2 oçlock and they thought it might be a satellite of the other one. Therefore need another ultrasound ASP and another biopsy on Tuesday 11am.
They also found another lump in the right breast that they thought might be benign - BUT I am worried and would like that biopsied too at the same time so I only have one anaesthetic (Had major clot on the lung & pituitary tumour in the past)
I am scared beyond belief and cannot believe how quickly things have changed - AND not for the better. I am imagining the new lump is an offshoot of the other one as it is invasive and so I am wondering if they weill suggest mastectomy - I am petrified about chemotherapy. I was prepared for the wide incision and the sentinel node biopsy - but this seems too much right now......
I haven't told my family as I don't want to worry them unnecessarily about the extra lump until I know what it actually is. But that seems to be adding to the stress.
Ive got the journey kit and read a lot and thought I had it sorted - what it was - the surgery and what I needed to do.... \But now I feel back in the shock and denial stage I was till Friday. Guess this is normal - but I hate it! It's like \I have a thread from my brain through my gut straight to my bowels as the vomiting and loose bowels is immediate......
Guess it is also normal to feel alone and afraid to reach out to anyone due to feeling like a nuisance and there's nothing anyone can say except you'll be fine" But I don't know that right now.
They say a problem shared is a problem halved and I hope this will bring some relief just from putting my thoughts and eelings on here. Hope that's what this is for.......
Ive had a lot of illnesses in my family and myself but I never wanted to EVER go to an oncology department..... Guess I should be careful what I wish for..... And sometimes what we put our energy on festers.....
Soo many thoughts running around in my head - and ive managed to come out of major illnesses efore with positive thinking, reading Louise Hay etc, doing affirmations, relaxation and meditation but I can't seem to connect to this........ It's like its not real or maybe my previous way of managing things like this is to dissociate and that's what I'm doing on an unconscious level;.....
|Sorry folks this is a ramble - but its how my head, thoughts and emotions seem right now.
Thank you for the opportunity to :uload" share - rant on here. :) <3
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63 Replies
- Thanks so much for letting us know how you are doing @sandramj. It sounds like Saturday ended up being a better day for your surgery, funny how things send to happen for a reason.
I hope you continue to recover well and sending lots of positive thoughts for good results on Thursday. Take care, Jane xx. - So glad things are going well. Fingers and toes crossed for you awaiting final results. I'm wearing a target post op bra. They are great but I did find I needed a size up. Kath x
- Glad you're recovering well @sandramj - keep us posted on next steps. Thinking of you
Nikki x - Hello ladies,
I am home now after the wide incision and removal of the tumour and ?4 lymph nodes and await the results from Dr on Thursday. Delaying the surgery by those couple of days seemed to work well for me as I had the Dr's favourite people able to work with him in theatre for my surgery on a Saturday morning - so yet another valuable lesson in TRUSTING THE PROCESS. My recovery has been great thus far and I found the exercises the physio gave me very helpful and am actually doing them regularly :) She also showed me that target had Post-Op Bras for $20 and lo and behold the first Target store I went into had them. I had tried the "R bras' as advertised on the tele but there was not nearly enough support for a D cup much less DD.
I am hoping and asking my angels and the Universe to ensure no cancer was in my lymph nodes and my course for this journey will be simple and safe. If, however, the results are otherwise I will deal with that at the time.
I felt VERY comfortable going under with the wonderful staff and very confident that the best result would be achieved by the Dr and his team, as was possible. I am a bit concerned about the radiation but will cross that bridge when I come to it. I hear some people are quite sick with it and others have no signs except a bit of "tan".
Thank you all for your wonderful messages - although I could not post while in hospital due to the iPhone not wanting to allow me to log in, I was still able to receive all our essays vie email. THANK YOU. It really helped.
Keep up the good work on here and I hope to be able to give back something in the near future. :) <3 - Oh that's a shame sandramj. You must be disappointed but in the big picture a couple of extra days to wait will be forgotten. Much better you are safe! Sending best wishes for Saturday.
Jane xx - We all make mistakes. But oh bugger. Get a pill box and pop the pills into it...removing the ones you shouldn't have or just pay for a new Webster with them removed
..better safe than sorry. - STOP PRESS. after ten days of not take Ng fish oil and removing Plavix (blood thinners) from Webster pack, this morning I took the Plavix with the other 8 meds and so SURGERY has been cancelled. Dr is hoping to schedule for Saturday. I felt so embarrassed and stupid for causing Ng said China drama at the hospital and with the radiology department ect. So I'm home feeling embarrassed and waited Ng to hear new date and time.
Thank you all for you lovely comments and support.
Cant wait till this is past and I can guve back to this blog. - I'm so pleased to hear your news @sandramj
Wishing you all the best for tomorrow, you are in good hands and one step closer to being cancer free! We will be thinking of you. Take care,
Jane xx - Ohhhh that's such wonderful news! I'm so happy to hear you feeling so much brighter. Xxx hugs Melinda
