Forum Discussion
arpie
10 months agoMember
Sorry to see you join our exclusive club @sarapatricia .... the one no-one ever thought they'd join! And well done for getting checked out when you did! Whack up any questions you have during your 'active treatment' and we'll do our best to give you honest answers, as we've all been thru it.
It is a real roller coaster ride - both emotionally & physically - so if you feel sad or anxious, ring our helpline (Mon-Fri work hours) and have a chat ..... just talking to someone can reduce the anxiety.
Mine was diagnosed over the Xmas/New Year break, and I had to wait for the surgeons to come back from holidays before I could get an appointment ... the waiting really sucks .... all thru your ongoing treatments - the waiting will always suck. Taking a few weeks to see the surgeon is pretty standard, as is a wait of up to 4 weeks for the actual surgery ... but hopefully it will happen sooner for you xx
You probably have more chance of getting surgery done earlier with the private surgeon than the public System ..... but make enquiries with both & see who comes back to you first with a better date. I went private, just to 'get in there & get it out asap' and am glad I did - even tho there was a fairly substantial gap fee. All my other treatment, Medical Onc and Radiation Onc was on the Public System & was/is free. Many members have been thru the public system with excellent results too.
Always have someone with you at your appointments if you can - a trusted friend or family member, both as emotional & physical support .... and consider recording them on your phone too - as it is easy to miss bits as you ponder what they've just said. xx
Check out this thread that has a lot of info on the Forum in general, including several 'off topic' threads that you may like to explore - pets, gardens, art & craft & even 'funny' threads, as we all need a laugh! There are some tick sheets down the bottom that you can print off to keep track of your mental and physical symptoms ..... take them along with you to your appointments!
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
I've sent you a Personal Message (PM) that will show on the envelope next to your name on the main blue banner .... click on it to check it out. xx
take care & all the best
PS if you need to edit any post - you have 24hrs to do this - just click on the circle with 3 dots in it (on the right hand side of your post, across from the topic. Clicking on the dots will show you how many more hours you have that you can still make an edit. :) )
It is a real roller coaster ride - both emotionally & physically - so if you feel sad or anxious, ring our helpline (Mon-Fri work hours) and have a chat ..... just talking to someone can reduce the anxiety.
Mine was diagnosed over the Xmas/New Year break, and I had to wait for the surgeons to come back from holidays before I could get an appointment ... the waiting really sucks .... all thru your ongoing treatments - the waiting will always suck. Taking a few weeks to see the surgeon is pretty standard, as is a wait of up to 4 weeks for the actual surgery ... but hopefully it will happen sooner for you xx
You probably have more chance of getting surgery done earlier with the private surgeon than the public System ..... but make enquiries with both & see who comes back to you first with a better date. I went private, just to 'get in there & get it out asap' and am glad I did - even tho there was a fairly substantial gap fee. All my other treatment, Medical Onc and Radiation Onc was on the Public System & was/is free. Many members have been thru the public system with excellent results too.
Always have someone with you at your appointments if you can - a trusted friend or family member, both as emotional & physical support .... and consider recording them on your phone too - as it is easy to miss bits as you ponder what they've just said. xx
Check out this thread that has a lot of info on the Forum in general, including several 'off topic' threads that you may like to explore - pets, gardens, art & craft & even 'funny' threads, as we all need a laugh! There are some tick sheets down the bottom that you can print off to keep track of your mental and physical symptoms ..... take them along with you to your appointments!
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
I've sent you a Personal Message (PM) that will show on the envelope next to your name on the main blue banner .... click on it to check it out. xx
take care & all the best
PS if you need to edit any post - you have 24hrs to do this - just click on the circle with 3 dots in it (on the right hand side of your post, across from the topic. Clicking on the dots will show you how many more hours you have that you can still make an edit. :) )