Hi all,I’ve been diagnosed with stage 2B, grade 3 Triple Positive Breast Cancer. Guess I’m just looking for others similar in age who are going through the same thing who can chat and share experiences with. I feel lonely and that no one really understands me at the moment especially with being young. I am onto my 3rd AC (side effects are awful). I am married with 2 little ones so it’s very exhausting. Thanks for reading! B

Hello.. slightly younger than you at 27 but also in Qld. I wrote a lot on another post a few days ago have a search for young woman in Perth and have a see of what I’ve written :) can’t relate to the Mum stuff as I have no kids. AC is yuck, are you doing Taxol as well? Where are you based?

Hi, I'm 43 but have little ones 6yrs and 17 months. I'm her2 positive stage 3 grade 3 and I'm in brisbane on the southside. Are you at the mater? I've just had my 2nd AC and it's awful. 2 more to go and then taxol and Herceptin like you. It's not fun. I'm lucky my husband was full time at home and I was back working when I was diagnosed so I have him here to take care of the kids (obviously neither of us working is an issue but we are getting around it) but it still isn't easy. I don't know about you, but I'm dreading the school holidays. I feel awful for saying it because I love my kids but having my energetic son at home all day is really hard. He just wants me to play and be normal and I can barely open my eyes some days. Our little one is easy and is content to be with dad all day. I don't know why I'm saying any of this, it's not helpful. I guess just saying that while I'm not as young, I'm in a similar ish boat. I hope for both our sakes that the taxol is easier.

Hi @Bron33 I am a bit older than you at 44 but I also have two young children 4 and 7. I also have a triple positive cancer but mine is IBC. Strongly HER2+ and weakly ER/PR+. Had only two rounds of AC because it was not effective and then 12 Taxol with Herceptin and Perjeta. My cancer responded much better to this combo. Just had my mastectomy/axillary clearance surgery yesterday. Will find out next week if I had a complete response but the surgeon did say something about cancer in the nodes but not whether it was dead or alive. I just wanted to tell you that I used ice baths during Taxol administration and dipped hands and feet in as I could stand it. I haven’t had any peripheral neuropathy and I managed to get through all 12. I was very determined to get through the whole course because I was having chemo before surgery and I wanted to give myself the best chance of beating down the cancer. Thankfully after 5 weeks on the Paclitaxel my cancer had responded really well (like 75-90% reduced). So after 7 more doses and the targeted therapy I’m hoping it was knocked over. I remember how scary it all was in the early days and I got great support on this site. I wish you the very best. Just wanted to suggest that you might try doing the ice bath thing. I also worried about nail issues (had none) and hand/foot syndrome. I got the ice from a machine in my cancer centre and brought my own containers. You might not tolerate it and I think it has to be done from the first treatment to work. But because this can be a lifelong side effect of Taxol I thought it was worth a try. And it seemed to work for me. I used gloves and a plastic bag to vaguely insulate me from extreme cold. When it got too cold I would take out and put in again once I felt ready.

@Bron33 I finished radiation in September so am finished "active treatment" for three months now and am now using Zoladex monthly and letrozole daily...you will need some sort of ongoing treatment being triple positive as well. This brings its own set of struggles and does cause some pain but is manageable so far... Its really nice being back at work having a bit of something to do again.Merry Xmas and good luck with Taxol.

Fire Dr. Google.... Check.Don't Panic..... working on it.Thanks so much for the messages. I will check in again after my specialist appointment when I go through my treatment plan.

33yrs Newly Diagnosed QLD Anyone Else?

27 Replies

Lythe
Member
6 years ago
Hi, I'm 43 but have little ones 6yrs and 17 months. I'm her2 positive stage 3 grade 3 and I'm in brisbane on the southside. Are you at the mater? I've just had my 2nd AC and it's awful. 2 more to go and then taxol and Herceptin like you. It's not fun. I'm lucky my husband was full time at home and I was back working when I was diagnosed so I have him here to take care of the kids (obviously neither of us working is an issue but we are getting around it) but it still isn't easy. I don't know about you, but I'm dreading the school holidays. I feel awful for saying it because I love my kids but having my energetic son at home all day is really hard. He just wants me to play and be normal and I can barely open my eyes some days. Our little one is easy and is content to be with dad all day. I don't know why I'm saying any of this, it's not helpful. I guess just saying that while I'm not as young, I'm in a similar ish boat. I hope for both our sakes that the taxol is easier.
kezmusc
Member
6 years ago
Hi @Bron33,

Welcome to the forum lovely. Stinks to be here. Again older than you. 45 at the time of diagnosis. All my kids (5 of) were 17-21. I imagine having littlies would add a whole new dimension to the shit show.
I did AC + T as well. There were only two of us under 50 doing chemo at the centre, we giggled about being the young ones. I found Taxol sooooo much easier than AC. I hope you do too.
All the best lovely.
xoxoxoxo
PV123
Member
6 years ago
Hi Bron33
Sorry to hear about your diagnosis, chemotherapy side effects are unpleasant. I am her2+ and oestrogen+ so I am also undergoing chemo and Herceptin. You can contract cancer connect, they can try and put you in touch with someone in your age group. Stay strong and best wishes to you.
Bron33
Member
6 years ago
Good morning,
Thank you for all your replies. Sorry I’m a tad slow still working out how to use this app. Hope I’ve responded correctly (fingers crossed)

All good about being older I just don’t know anyone or have seen anyone else that is similar in age going through treatment at my centre. Happy to chat with anyone who is going through this. My husband is 35yrs.

strongtogether do you have any children? We have a 4 yr old and 8 yr old. Where about a in QLD are you ? We are in South Brisbane. Chemo definitely sux & thank you!

Youngdogmum I feel bad complaining about being 33yr. I’m South Brisbane where abouts are you? I’m guessing by your name you have a dog? We have two dogs. Yes 4 AC, than 12 Taxol. I’ve got 1 AC left next Thursday and dreading it. No I haven’t read it I will go and have a look thank you 👍

CRM- thank you for that information I will go and look her up, appreciate it. I’m so glad you have been able to avoid chemo hugs to you!

Thanks all,
Bron
CRM
Member
6 years ago
Hi @Bron33 I am also 33 and in Melbourne. I can't really relate to going through chemo as I was fortunate enough to avoid it but I just wanted to touch base as I know there is another young female in Melbourne who posts a bit on Instagram and she is also triple positive. Her insta account is hanginonbyatit. Wishing you all the best with your treatment xx
youngdogmum
Member
6 years ago
Hello.. slightly younger than you at 27 but also in Qld. I wrote a lot on another post a few days ago have a search for young woman in Perth and have a see of what I’ve written :) can’t relate to the Mum stuff as I have no kids. AC is yuck, are you doing Taxol as well? Where are you based?
strongtogether
Member
6 years ago
Sorry to hear that Bron.
We are a bit older than you but if you or your spouse need to chat or catch up with someone else in qld feel free to hit me up.
Try and rest, the chemo sucks but you will make it through this.
Hugs

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33yrs Newly Diagnosed QLD Anyone Else?

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