Hi there,I’m 27 and based in Brisbane just now. 12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS or palpable however.) My surgeon has recommended a full lymph clearance.Is there anyone else out there this young with lobular? My biggest fear is leaving my husband behind without any children, what if my illness causes him to miss his chance of having kids with someone else one day? Unfortunately I’m a nurse so know a bit too much about what I’m about to go through. I have a mastectomy in 3 days and axillary clearance. Trying to remain positive.At what point did you ladies meet your oncologist? I’m not meeting them until next week when the final pathology/sizing etc is back after surgery and they’ve had an MDT to decide my treatment plan. Is this normal? I’m public.

@"Kiwi Angel" might be able to shed some light on the experience of going through BC without family support.I have found with the exception of the practical support I received during chemo (and I run a household of seven, at the time 9 - 85 years of age), the best support I've received has been here. There's something about people who have walked this path before you that is tremendously tremendously helpful, practically and emotionally. K xox

Hi Zoffiel,He explained the pros and cons and feels that given the size of the tumour on imaging and examination he would be shocked if there wasn’t multiple nodes involved. Due to the potential false-positive rates with sentinel, he said he feels probably better for my long term outlook to safely take them all now. He described it as an “old school approach” 😂 he is a professor after all haha! Im in Brisbane and having surgery at a tertiary hospital so I don’t think its to do with lack of equipment etc..Quite isolated family wise which I know is going to be really hard. That was probably the first thing I got upset about, I thought how am I going to get through this just the two of us.my mum passed away 10 years ago (lung ca, nil family history of breast/ovarian at all)dad and I have a strange relationship. My sister is intellectually disabled and honestly won’t be much help at all.my brother is in Darwin and his wife is about to give birth to their first, as much as I’d love him here I need to let him enjoy this time as well.Hubbys family are all in Scotland, I’m hopeful they will visit.But I have some good friends around, as well as their Mums who were there with me through my Mums treatment and passing. Plus my dog I think she’s going to keep me smiling through this!!! Thank you everyone again for your comments and what not.It is so nice to hear of so many women now on the other side of treatment.

HI @youngdogmum,Just wanted to say Hi and welcome to the forum. Mine wasn't ILC so I cannot help in that respect. However, I will jump in and agree with @Zoffiel regarding the axillary clearance. I am sure you are aware It's a fairly invasive procedure with a number of risks and possible long term side effects and it generally isn't something surgeons like to do unless it's necessary. I was 45 when I had this procedure along with lumpectomy but it was done because we knew there were lymph nodes involved from the beginning, so no choice.I would say I recovered very well from it all things considered and yes your age probably will help in that respect as well. I did a ridiculous amount of exercise for both strength and making sure everything was draining well. There was minor cording at the beginning but that went quickly with exercise and physio and have been fortunate that I haven't had any trouble with lymphodema. The strength in that arm is as good as it ever was except with weight on it up high.In saying that though there are numb parts (shaving is still weird), super sensitive parts, it still pulls at full stretch, feels kind of oddly puffy at times and still tingles mildly when I use the lawn mower. That's after 2 and a bit years. As Zoffiel said, we don't want to scare you off but information is somewhat lacking at times unless you push the issues. I guess it depends on how comfortable you are with what you have been told and how content you are going to be about having had that procedure if it all comes back clear ( which of course we want it to) and wasn't necessary...Trust your instincts and never be afraid to ask as many questions as you need to.Best of luck lovely. Keep us updated with how you are going. There is always plenty of support around.xoxoxoxox

Hello there youngdogmum,I just want to say 'you go girl!'We each have our own journey, but what is important is our positivity and strength, which you have oodles of. This is my first post on this site (post op- waiting pathology results), and I am so impressed and humbled, reading members' support and encouragement.I think we all are amazing, as is youngdogmum!xx

27 year old lobular carcinoma | BCNA Online Network

61 Replies

youngdogmum
Member
7 years ago
Evening all !!!
Today was egg day! And they werent all scrambled 😂🤪
Woo.
They took ten; we find out tomorrow how many fertilised and then on a Saturday how many made it to the five day old mark to be frozen in time.

Lovely lovely anaesthetist who bulk billed me. I felt she was so genuine when she said well this is horrible isn’t it, there’s nothing else to describe it. She liked my attitude that I’ve just gotta deal with it now and hope I have many more years left to enjoy.

Im more uncomfortable post op now than I was pre op, they essentially put a syringe in my ovaries 10-20 times to extract the eggs for anyone wondering how it works. Emotions all over the shop tonight but I feel that’s very very hormone related.
Hubby said “you’ve essentially had 10 periods in one day I think you’re allowed to be upset” 😂😂

Cant wait to get started with chemo!! Bring it on.
youngdogmum
Member
7 years ago
Hi @SuzanneB6152

Thanks very much for your kind words of support. As we all do, I have good days and bad days.. the IVF hormones certainly have made me have more bad days this weekend! I think it’s helped a lot that I’m a nurse and know a lot about cancer already..
But yes currently trying to stay as positive as I can in this process !!!!
Best of luck that your pathology is the best it can be x
Sister
Member
7 years ago
Welcome @SuzanneB6152. One of the great things about this forum is that, when your resilience has run out, others have the strength and positivity to carry you for awhile.
suburbangirl
Member
7 years ago
Hello there youngdogmum,
I just want to say 'you go girl!'
We each have our own journey, but what is important is our positivity and strength, which you have oodles of.
This is my first post on this site (post op- waiting pathology results), and I am so impressed and humbled, reading members' support and encouragement.
I think we all are amazing, as is youngdogmum!
xx
youngdogmum
Member
7 years ago
Hi @Skinnylatte I’m post op already! Mastectomy and clearance done, full path back etc. about two weeks ago now, today I’m 22 days post surgery :) if it wasn’t for IVF I’d be starting chemo next week.. one further week delay to finalise that and then chemo from 02/04/19.
Im grateful that only one tiny micromet was in one lymph node out of the 14 removed!
Skinnylatte
Member
7 years ago
Hi, sounds like your surgery is sorted, good luck!! I had ILC diagnosed at xmas, mastectomy plus axillary clearance (one node positive preop, turned out to be 3 post op). Make sure you get the proper exercises for your arm from a physio asap - they're pretty light to start with, but worth it. I wasn't given that info soon enough.
ILC seems to be hard to measure from scans. Post op pathology is most revealing, and will be the decider in what comes next.
I've already got kids, 45, so didn't have to think about fertility, which must be so hard, but sounds like you have a loving supportive husband, keep talking.
Good luck, at least you've got gorgeous Bonnie to keep you smiling. 🐶💕
kitkatb
Member
7 years ago
OMG @youngdogmum as someone said "he's a Keeper" alright. Its his way of helping out and being there for you. Good luck with everything. I've still got a wardrobe full of beanies and hats from friends and family. xo
kmakm
Member
7 years ago
I love my short hair so much that I've kept it. It is a bit chilly in the winter though. We had a cold night the other day which reminded me. I'm going to have to find my sleep hat (a bamboo hat with extra fabric to pull down over your ears) from chemo and put it to use again. I still sometimes go to pull my hair over my ears when I get into bed! A year has not undone a lifetime of habit!
youngdogmum
Member
7 years ago
He certainly is - he learnt to knit the other night and has already made me a beanie for when my hair is gone!!!!
kmakm
Member
7 years ago
He's a keeper!!

Forum Discussion

27 year old lobular carcinoma

61 Replies

Recent Discussions

Triple Positive HER2+

Feeling lost

Second Opinion

Inoperable

Recommendations-North Brisbane -Public v Private- Surgeons