Forum Discussion
youngdogmum
7 years agoMember
27 year old lobular carcinoma
Hi there,
I’m 27 and based in Brisbane just now.
12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS or palpable however.)
My surgeon has recommended a full lymph clearance.
Is there anyone else out there this young with lobular?
My biggest fear is leaving my husband behind without any children, what if my illness causes him to miss his chance of having kids with someone else one day?
Unfortunately I’m a nurse so know a bit too much about what I’m about to go through.
I have a mastectomy in 3 days and axillary clearance.
Trying to remain positive.
At what point did you ladies meet your oncologist? I’m not meeting them until next week when the final pathology/sizing etc is back after surgery and they’ve had an MDT to decide my treatment plan. Is this normal? I’m public.
I’m 27 and based in Brisbane just now.
12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS or palpable however.)
My surgeon has recommended a full lymph clearance.
Is there anyone else out there this young with lobular?
My biggest fear is leaving my husband behind without any children, what if my illness causes him to miss his chance of having kids with someone else one day?
Unfortunately I’m a nurse so know a bit too much about what I’m about to go through.
I have a mastectomy in 3 days and axillary clearance.
Trying to remain positive.
At what point did you ladies meet your oncologist? I’m not meeting them until next week when the final pathology/sizing etc is back after surgery and they’ve had an MDT to decide my treatment plan. Is this normal? I’m public.
61 Replies
- SisterMemberTake care, @youngdogmum. Keep an eye on the redness and your temp.
- youngdogmumMember@kmakm and @sister thank you! :smile:
MDTs for my professor happen bi weekly, so that will be 10 days from now. My Breast Nurse is pushing for a referral to oncology over the next few days though, given chemo is indicated.
One of my margins was extremely close so I think chest wall radiation is going to be required as well.. which then brings in the issue of reconstruction problems but that’s a different story for a year down the track!
i also decided to go through with IVF for anyone wondering. Started yesterday but then my bloods came back that I ovulated (despite being given a shot of zoladex! My IVF Dr did that because tone is limited and he didn’t want to wait for my natural cycle) which is quite uncommon apparently as per fertility nurse. So on hold now until Tuesday.
oh and my post op notes stated axillary clearance- prof ended up taking everything.
I have bounced back incredibly well - youth I think is helping here. Minor setback yesterday some redness appearing so I’ve gone on so antibiotics. Fingers crossed it doesn’t worsen.
Happy Friday 😃😃 - SisterMember@youngdogmum ILC is a sneaky cow so that would be considered catching it pretty early. Mine was 4.5cm with 3 out of 8 nodes affected. Now you'll find out your treatment plan.
- kmakmMemberI'm so pleased for you @youngdogmum! So is a treatment plan coming into focus?
I have read about tumours with all sorts of components mixed up together (in fact I think many of them are), but I don't recall if they were lobular or ductal.
Enjoy your good news. K xox - youngdogmumMemberHi everyone
I got my results today
stage 2B grade 2 lobular carcinoma with a micro metastasis in one node out of 14!! Tumour 5cm. I thought it would have been much worse so I am overjoyed.
They also found a small DCIS in the tumour... has anyone ever seen a member with DCIS in invasive lobular tumour? - Doin_itMemberSorry @youngdogmum I didn’t mean to isolate you because of your age. (One of the side effects I have unfortunately is blurting out anything & everything!) I too, have met & read about young women around your age going through this s%#t. Thinking of you today & wishing you well. Big hugs xx
- kmakmMember@youngdogmum I met a 24yo at the Field of Women last year who still had bandages on from her lumpectomy. You're unusual but not alone.
I can't stand the pity stares. Now it's the carefully emphasised "How are you?" with extra long eye contact from acquaintances. It's very well meaning but I remember my mother complaining about it and have always made sure I've never done it.
I wish you all the luck for Thursday! I'm sure you're in the best possible hands. Big hug, K xox - SisterMemberWhen I was at my bc rehab programme there was a young woman (a doctor at a local hospital) who was there as a patient. I guess she had to be at least mid-20s but I wouldn't have put her at much older.
Good luck for Thursday! - kezmuscMember@youngdogmum .
Great to have everyting sorted and ready to go I guess. I work in a surgical ward and the youngest person we have seen was a 17 yr old girl and the oldest was a 96 year old man. This thing just doesn't care. I have posted a link to a young lady that I came accross there not to long ago. She has put herself in the news papers and has a blog so I am assuming confidentiality wont be a problem. She is 23 and encourages people to chat to her and has documented pretty much everything along the way through her treatment and her thoughts.
Hope it helps
https://23breastless.wordpress.com/ - AllyJayMemberHi there @youngdogmum, wishing you the very best for your upcoming surgery. I had a bilateral mastectomy with node clearance of the left and sentinal node on the right at age 57...almost three years ago now. You're young and strong and you've got this. Hugs. Ally.