27 year old lobular carcinoma
Hi there, I’m 27 and based in Brisbane just now. 12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS o...
Forum Discussion
HI @youngdogmum,
Just wanted to say Hi and welcome to the forum. Mine wasn't ILC so I cannot help in that respect.
However, I will jump in and agree with @Zoffiel regarding the axillary clearance. I am sure you are aware It's a fairly invasive procedure with a number of risks and possible long term side effects and it generally isn't something surgeons like to do unless it's necessary.
I was 45 when I had this procedure along with lumpectomy but it was done because we knew there were lymph nodes involved from the beginning, so no choice.
I would say I recovered very well from it all things considered and yes your age probably will help in that respect as well. I did a ridiculous amount of exercise for both strength and making sure everything was draining well. There was minor cording at the beginning but that went quickly with exercise and physio and have been fortunate that I haven't had any trouble with lymphodema. The strength in that arm is as good as it ever was except with weight on it up high.
In saying that though there are numb parts (shaving is still weird), super sensitive parts, it still pulls at full stretch, feels kind of oddly puffy at times and still tingles mildly when I use the lawn mower. That's after 2 and a bit years. As Zoffiel said, we don't want to scare you off but information is somewhat lacking at times unless you push the issues.
I guess it depends on how comfortable you are with what you have been told and how content you are going to be about having had that procedure if it all comes back clear ( which of course we want it to) and wasn't necessary...
Trust your instincts and never be afraid to ask as many questions as you need to.
Best of luck lovely. Keep us updated with how you are going. There is always plenty of support around.
xoxoxoxox
Just wanted to say Hi and welcome to the forum. Mine wasn't ILC so I cannot help in that respect.
However, I will jump in and agree with @Zoffiel regarding the axillary clearance. I am sure you are aware It's a fairly invasive procedure with a number of risks and possible long term side effects and it generally isn't something surgeons like to do unless it's necessary.
I was 45 when I had this procedure along with lumpectomy but it was done because we knew there were lymph nodes involved from the beginning, so no choice.
I would say I recovered very well from it all things considered and yes your age probably will help in that respect as well. I did a ridiculous amount of exercise for both strength and making sure everything was draining well. There was minor cording at the beginning but that went quickly with exercise and physio and have been fortunate that I haven't had any trouble with lymphodema. The strength in that arm is as good as it ever was except with weight on it up high.
In saying that though there are numb parts (shaving is still weird), super sensitive parts, it still pulls at full stretch, feels kind of oddly puffy at times and still tingles mildly when I use the lawn mower. That's after 2 and a bit years. As Zoffiel said, we don't want to scare you off but information is somewhat lacking at times unless you push the issues.
I guess it depends on how comfortable you are with what you have been told and how content you are going to be about having had that procedure if it all comes back clear ( which of course we want it to) and wasn't necessary...
Trust your instincts and never be afraid to ask as many questions as you need to.
Best of luck lovely. Keep us updated with how you are going. There is always plenty of support around.
xoxoxoxox