November 6th I sat in a doctors surgery and had a piece of paper sat down in front of me, "here read this, it's a little different than we expected" I could not understand any of it but my eyes went to the bold print MALIGNANT 5.5mm Phyllodes tumour, and everything since that day has blurred, rushed surgery, medication, and today I realise the enormity of the way my life will now be. Hard to even type without crying, it's all I do.

Kathryn, you gave me a chill when I read your post as thats what happend to me, but you can beat this, dont you give up, all of us here can help is some way, did you have mastectomy ? what medication are you on? mine was 8.5 malignant I opted for mastectomy, it will be 3 years next week and im living life, I had re-construciton surgery. Be strong Vicki

Kathryn, I too am sorry that you have found yourself here. I was diagnosed on the 5th November, Melbourne Cup Day and completely understand how you are feeling and the enormity of this event. You have come to the right place though and I, like others here will support you. Since joining this network I don't feel so alone. Early days! We have to take one step at a time. Crying is good, just let the tears flow. You will feel better for it. I am sending you a big big hug. Love Joy xx

I can understand the tears, let them flow:) Try to stay positive and you have come to the right website. We are all here for you, so whenever you want to vent or share your feelings, we will be here and we will comfort you:) You are defintely not alone, sending you a big hug, take care Hazel xx

Today it is one year since my Doctor rang me, with the words I'm so sorry, you have Cancer, well here I'am one year gone so is my Cancer, after Mastectomy, Chemo, then Radiotherapy, let the tears flow like Hazel said, I wish I had shares in Kleenex, I think I cryed everyday, but I got through it with the help from this web site, I'm having my Left Boob off in February, this may sound strange but I'm looking forward to having it all over with. You will get through this, just keep getting on this site when you want to vent, you will have lots of us keeping a look out for you. Remember you are never alone. Jenny xx

Overwhelmed and alone | BCNA Online Network

25 Replies

Lozza
Member
12 years ago
Hi Flip,

It is a slow process but hopely we get there. The Mastectomy and implant is going well according to the surgeon. Except for future surgery to change the implant. He was hoping for 1 lot of surgery and keeping expander in place. Never mind at least it won't be a mastectomy next time.

Apparently I have a myocardial imflammation from a virus. The only thing is rest at the moment which I am doing. Can't help but do that as fall asleep every time I sit down. Never mind it could be much worse!!! I could be not here.

They found I had another breast cancer spreading in the breast they removed so I have to thank the phyllodes tumour as it may have saved my life if not finding it when they did. You do tend to re-evaluate what is important and make some changes.

Good luck keep going and I'm sure we will get there and enjoy every minute with your young child. Live a happy life!

All the best from Lozza.
Lozza
Member
12 years ago
Hi Flip,

It is a slow process but hopely we get there. The Mastectomy and implant is going well according to the surgeon. Except for future surgery to change the implant. He was hoping for 1 lot of surgery and keeping expander in place. Never mind at least it won't be a mastectomy next time.

Apparently I have a myocardial imflammation from a virus. The only thing is rest at the moment which I am doing. Can't help but do that as fall asleep every time I sit down. Never mind it could be much worse!!! I could be not here.

They found I had another breast cancer spreading in the breast they removed so I have to thank the phyllodes tumour as it may have saved my life if not finding it when they did. You do tend to re-evaluate what is important and make some changes.

Good luck keep going and I'm sure we will get there and enjoy every minute with your young child. Live a happy life!

All the best from Lozza.
Lozza
Member
12 years ago
Hi flip, your doing it tougher than me. I don't have to run after a young child at the same time. Im sure the pain willget better. Unfortunately i had a set back during past week end up back in the hospital. I past out during week and now have another health issue from the surgery. Hopefuy will be sorted soon. Im also am anaemic and have no energy so feel sick or fall asleep very easily. I'm sure we will both get there in the end. I'm grateful for the phyllodes tumour as they cut another form of breast cancer out with the breast. Maybe i would not have been as lucky if I had not had the phyllodes tumour. Good luck with recovery. Lozza.
Flip
Member
12 years ago
I too was diagnosed with a 10.5 cm malignant phyllodes tumour. Had left breast mastectomy nearly 3 weeks ago and have had the all clear - no radiation therapy needed. Still very sore and uncomfortable and am finding it difficult to carry out the physio exercises. Burning, stinging pain is driving me nuts as well as a very active 5 year old. Hopefully things improve in the coming weeks.
Lozza
Member
12 years ago
Hi Louise,

Thanks for kind words. Your right there is not as much rush right now as the tumour 5.5cm is out and now it is a matter of getting rid of the remaining breast so no more can come back. I just have to keep telling myself that is what has to happen. As hard as it will be Im sure. I will feel lucky that I dont need any chemo or radiaotherapy. Tomorrow will be hard as I return to work.But my co workers are great and supportive.

Thank you for your support.

Lozza
Lozza
Member
12 years ago
Hi Louise,

Thanks for kind words. Your right there is not as much rush right now as the tumour 5.5cm is out and now it is a matter of getting rid of the remaining breast so no more can come back. I just have to keep telling myself that is what has to happen. As hard as it will be Im sure. I will feel lucky that I dont need any chemo or radiaotherapy. Tomorrow will be hard as I return to work.But my co workers are great and supportive.

Thank you for your support.

Lozza
Lozza
Member
12 years ago
Hi Louise,

Thanks for kind words. Your right there is not as much rush right now as the tumour 5.5cm is out and now it is a matter of getting rid of the remaining breast so no more can come back. I just have to keep telling myself that is what has to happen. As hard as it will be Im sure. I will feel lucky that I dont need any chemo or radiaotherapy. Tomorrow will be hard as I return to work.But my co workers are great and supportive.

Thank you for your support.

Lozza
LouiseTurner
Member
12 years ago
oops
LouiseTurner
Member
12 years ago
Hi Lozza,

Well on the upside at least you know what you are dealing with now and they are taking some action. Be self indulgent, its a weird space to be in, but work can also be a good distraction. You have every right to have a little pity party for yourself, and yes things could be worse, but for now this is your story and you can whinge and cry because it is happening to you. Bummer about the surgeon going away, but it could be agood sign that there is no real rush. Take care XXXLouie
Janey235
Member
12 years ago
You poor darling. I hope treatment today was tolerable for you and it won't be any worse than you have already been through. Kathryn it's only been a couple of months and you're still having to adjust to this 'journey'. Take some deep breaths and just breath. It will get better and you will be through it. We are all here for you and sending you positive vibes that things will improve very soon. One day at a time :) Lots of love Janey xxx

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