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arpie's avatar
arpie
Member
6 years ago

Our 'New Normal' - a thought provoking article

A friend of mine shared this recently .... Author unknown—

I had no idea how much cancer sucks.

The worst part of cancer is that so many people confuse it with so many illnesses like pneumonia or maybe even the sudden trauma of a broken hip. Although these diseases are acute, painful and sometimes dangerous, they are brief insults to the body and soul. Once the immediate danger is gone from the body, they usually do not recur or spread. You survive! You heal! They do not become a permanent burden in our minds or lives.  You go back to your normal way of life, with no real misgivings.

Cancer is not like that. Yes, it can be sudden, painful and debilitating. Yes, most of us survive and it is most unlikely that our cancer will return. BUT the difference is that our minds and our lives will never heal.

Cancer in remission does not leave.

The person we were before cancer ... will never be the person we are after cancer. Family and friends do not expect to see this change in us and are baffled as to why our lives will never get back to "normal". It is hard for all of us to accept that a cancer survivor is, and will somehow, always be a cancer patient.

First, there are the obvious and common physical effects on our body and soul. Aches and pains may persist for years. Scars and permanent surgical changes will always be there. Chemotherapy injuries such as loss of hearing, heart damage, vision or nerve damage may follow us. We may have slight shortness of breath or decreased endurance. Our skin, nails and hair may change. We may taste or smell things differently. Or altogether lose our appetite and enjoyment of food. Or worst - lose our sexual drive or satisfaction. Our memories may never be as sharp. And sleep may become erratic. Our innocence is taken away - we lose our 'soul'.

We may always be tired, even after a good night's sleep. We may become weak or our mental awareness may be lost. Loss of concentration may make it hard to work or enjoy something simple like a reading book, watching a movie or visiting with friends or maintain a job. We may not have the energy, the excitement. Life may be drained of fun, satisfaction or purpose.

Perhaps the inescapable change is that you may have the "never leaving, always just around the corner", deep mental pain, that reminds us that today or tomorrow, the cancer may return. Every discomfort we get will seem to be some kind of sign that cancer has come back. Something as simple as a winter's cold, a toothache, or heartburn after a spicy meal, can scream at us! It is very difficult to "put cancer behind you" when it is always in the back of your mind.

The clincher? None of this will be obvious to anyone else. No matter how much our family or medical caregivers try to empathise, to comfort, connect to understand - surviving cancer is a deeply changing and highly personal experience.

With that being said, the cancer transformation is different for each person and each patient. None of us were the same before the disease, and none of us experience this disease the same way.

There is no "NORMAL", it all becomes the "NEW NORMAL"

Cancer sucks, and keeps on sucking. Deep healing requires the understanding that things are not the same. 

It requires communication and space, counseling, support and patience. 

It requires time to find the person you have become. 


Author Unknown

  • If you think about it outside the context of cancer, we never go
    back. Anything you do - take on a new job, get married, go on a holiday - changes in some way, small or profound, the way we see our life. We are hardwired to go forward. Wanting to get back to normal is perfectly natural - no sane person wants the anxiety, the uncertainty, the physical ups and downs that go with a serious health problem. But no-one can really wipe it out of their consciousness either - it happened, we reacted and things are no longer as they were. I will sound like a right Pollyanna if I say that the new normal could perhaps be better than the old one - seven years on it is for me and, knowing that, is making dealing with a pandemic a fraction easier. You will find reserves you never knew you had. You can learn to love your body for its resilience and overlook the damage. You can accept the fact that life is both more dangerous than you thought but also infinitely more precious. No, most people won’t know exactly what it feels like for you but that happens with many things - and somehow we manage to accept the good intentions of others even if they don’t quite get the exact point! None of us can see the future - we make plans, hope for the best and seize opportunities. And we can go on doing that. Weep when it all gets too much - it’s good for you. But laugh whenever you can. Sing and be noisy. Whistling in the dark makes us braver. Take care. 
  • I read this tonight and now I can’t stop crying. I can’t seem to get on top of my grief that my old life is gone and my body is damaged and the fear that this cancer is lurking in the dark waiting to rear it’s ugly head. I can’t let it out to anyone and I can’t see a future. 
    On here I feel at least like most people understand. 
  • I think it will resonate with a lot of us.   I am in the process of on 'moving on' .... but .....

    Yep, it sux big time.
  • That says it all, no matter what type of cancer. 
    In saying that, my sister was a passenger in a car accident almost 2 years ago. Her life will probably never be the same, either. Maybe not the fear in the back of her mind, but everything else  :/