Forum Discussion

Nay's avatar
Nay
Member
11 years ago

Home Care after Mastectomy.

Hello,

I live on my own and will be having a Mastectomy. one week before my daughter's first baby is due and therefore unable to ask her to help me at home.

Everything I have read says that I can't  go home and be on my own.

Does anyone know where I can seek assistance for the first week once discharged from hospital?

I don't know anyone in Sydney other than my daughter.

Can you suggest a place where I can seek assistance at my home or if there is some where I can go that doesn't cost too much as I need to use my savings while  I am unable work.

I do not have private insurance.

Thank you.

 

 

 

 

14 Replies

  • You're not wrong about the technical terms for both the people and the services.  Hospitals, both private and public, should make sure they give all the necessary information before we go into hospital.  

    Weird as it sounds, I was glad I'd had the experience of open heart surgery first because that's where I learned the extent of the services.   

    I hope all goes as well for you as it did for me.  I was lucky to heal and recover very quickly after both ops.  Even the surgeon said, it's luck.  I'm wishing you heaps of the same.

  • Thank you Mita, I had tried googling it but I was not sure of the technical names and got all sorts of goods and services.

    I shall follow up on your suggestion.

    I hope you are well and happy.

     

  • I had open heart surgery in March to replace a congenitically defective heart valve. 4 months later I was diagnosed with breast cancer & had a mastectomy because I couldn't have radiotherapy with the new heart valve underneath.

    After the open heart surgery,  I stayed with friends for a week and my private health fund organized what's called Rehabilitation at home ... for when I went hom on my own.  A nurse & physio & an occupational therapist & a cleaning lady called once a week for a few weeks.

    When I had the mastectomy, I just went straight home after 2 nights in hospital.  All drains were removed before I left.   I had prepared the house and supplies before I went into hospital.... so food was in the freezer and I put everything I would be needing, for food preparation & self-care,  where I wouldn't have to stretch up.   Lots of towels and plain white cotton washcloths at the ready.  Also used QV Soap Free Lotion to wash gently around the wound & pat dry (same as the nurses showed me after open-heart surgery).  

    I only used the Private Health Fund Rehab service this time for a nurse to come check on the wound... which was fine.  I was told, after a week, to go  see my GP, who's only across the road.  Fortunately, the regime given me to prevent pain, worked.  2 Panadol every 6 hours to cover it, so it didn't break thro'.    So, apart from the couple of checks by a nurse in-home, I was OK on my own.  The hospital physio had already given me the exercises I had to continue.  My neighbour did kindly offer to look in on me for the first night I was home alone....& I had my mobile phone with me at all times, to call her if necessary.  But I slept like a log & was fine.

    But some hospitals also have an in-hospital  Rehabilitation program where patients can transfer over to,  for whatever time is deemed necessary,  if their surgeon gives a referral.  If someone has Private Health cover, cost would come from that.  But there's got to be some access for public patients, too.  I'm pretty sure that was the case in the Rehab section of the hospital that I was in.  My mastectomy surgeon only gave me a referral for services at home (nurse visit) because that's all I needed.

    I suggest you track down any of these...the social worker,  community outreach nurse or breast nurse,  who is at the public hospital you're going into.  Talk to them about your after-surgery needs and care,  given you'll be home alone... and what is available  to you as a public patient  (without Private Health cover) , In Home, or In -Hospital Rehab, or a bit of both.  

    Very best wishes.  I hope all goes well for you and for your daughter & her baby, too.