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Zoffiel's avatar
Zoffiel
Member
8 years ago

Chemo Brain. I've succumbed.

I'm so disappointed. I've had to defer from my studies. Having plowed through a double advanced dip in management and HR while I was in treatment I assumed, wrongly, that I could continue and do the last 8 subjects to complete a degree. No.

My brain will not work properly and I honestly think it is getting worse. My body is a wreck. The pressure of dealing with the aftermath of this round of treatment, financial misery, a new job and study has done me in. After a couple of excruciating weeks of trying desperately to keep juggling I've come to the sensible, but devastating, conclusion that something has to give. I can do nothing about the side effects and I have to work or I will go completely down the financial gurgler. The only stress I can dispense with is the study. It breaks my heart.

I can do so much, but faced with a 7500 essay plus attachments I've reached my limits. I simply can not retain a train of thought for long enough to do anything properly. This is exhausting and demoralizing. I get a couple of thousand words done, have to leave it for a few days then come back to discover I have absolutely no idea how I got to the point where I left off.

I don't give a shit about being told that I'll improve. The world won't stop while I limp around in circles trying to get my act together.

Now I find that the benign looking lump that has appeared on my eyelid needs immediate attention. This has meant travelling back and forward to Melbourne to consult with an opthalmic  plastic surgeon who has agreed, reluctantly, to remove the fucking thing under a local as opposed to her preferred process of doing it under sedation. In the Epworth. Yeah, right, like I can afford that. Waiting lists for the Eye and Ear are ridiculous and I need this thing gone.Sitting still and sucking it up will save me about $6k. But it is the final straw.

The whole business of recovery eclipses treatment. You know, there have been a few ladies lately who have asked for advice about undergoing chemo when the stats don't seem very convincing. I always feel like screaming RUN AWAY! Of course, we shouldn't do that, but I sure as shit wish I'd taken my own personal council. At least then there would be half a chance of a decent life until the cancer train finally runs me down. End rant.

  • @Zoffiel does this mean you are able to defer your studies and pick up where you left off from - here's to a great summer and to be rid of these damned annoying hidden extras
  • Zoffiel said:

    The whole business of recovery eclipses treatment. You know, there have been a few ladies lately who have asked for advice about undergoing chemo when the stats don't seem very convincing. I always feel like screaming RUN AWAY! Of course, we shouldn't do that, but I sure as shit wish I'd taken my own personal council. 

    Perfect description "The whole business of recovery eclipses treatment" - that's what those medical students need to understand.  I was offered chemo with only 3% and I said hmm, what else is on offer?  I was told if he had said closer to 8 or 9% he would've pushed me.  My breast surgeon had said to me prior to seeing the oncologist that he couldn't see any benefit in putting me through chemo so I kept that thought as I went to see the Onc.  Having said that my treatment process has been extremely slow, sending me into fatigue mode and feeling like I'm dragging the chain, only just finished treatment and I'm now at 7 years and 8 months to go on tamoxifen (unless they change it).  My cancer was hormone positive hence the hormones are playing up and the endometrium lining is thickening more than they would like, under a Gynaecology Onc (never knew there was such a thing) so like a lot of others I'm in the "this BC keeps giving" category.

    Geez don't we learn a lot of terminology and names of specialists that we had no need for and no idea how to spell their titles prior to all this.  Give me back the days of the occasional Panadol!  
  • Rant away @Zoffiel, what else can you do when you can't change the outcome or effects of treatment.you're right though, this is a shit of a disease.
    Lisa x