Forum Discussion
Hi SYLV1E that's a really good question, I reckon I will say 'recovering from' after my surgery and then 'had' or 'having treatment for' while having radiotherapy.
Incidentally I have the same plan as you (at the moment) MRI next week, plan finalised, surgery and RT and HBs! Snap?! (I hope that's not too flippant)
Good Luck with your journey 🙂
I’m sorry that you are going through this too but it is strangely comforting that I’m not alone. I know that’s a huge contradiction but I’m sure you know what I mean.
I had my MRI last week and let me tell you, it’s a very weird experience. Nothing painful or daunting in anyway but definitely not what I was expecting. 😁
With our treatments running along the same lines, it will be nice if we can keep in touch on here so that we can compare notes.
I live in the Maitland area in NSW.
- arpie22 days agoMember
I am Mid North Coast, NSW SYLV1E xx. If you ever come over to the coast, I am happy to meet up for a coffee & a chat xx. Shoot me a message 😉
Are you aware of the IPTAAS (Isolated Patient Transport and Accommodation Scheme) where you can claim for both fuel and accommodation expenses if you have to travel more than 100k (each way) or (I think) have 200k (over 2 weeks) ....
Check out the GROUPS .... Connecting Rural, Regional & Remote Areas for info xx- SYLV1E21 days agoMember
I recall seeing something early on about support for fuel expenses, which I’ve just realised was only two weeks ago 😁. Thank you for the link.
You are sooo lucky living in that part of the world. Over the years, we’ve had many a family holiday up your way but they’ve been very rare in the last ten years or so. Hopefully, we’ll get the chance to head your way once all of this is behind us and we can meet up for that coffee AND CAKE! 😄💕
- arpie21 days agoMember
Sounds wonderful xxx. I'm not long back from a road trip to Victoria where I caught up for lunch with a fellow member in Bendigo! ;) xx
It is a magic part of the world xx I love my back yard xx. I'll be out in my kayak, fishing again tomorrow .... it is my 'safe spot' - hence I advise everyone to keep doing what they LOVE doing as often as they can - as it really does lower the stress levels xx.I was even on the water the day I got the call to go back to the GP (for my BC diagnosis!)
This forum has also given me some lifelong friends & we chat all the time about all things - on any subject! 😋
- arpie21 days agoMember
SYLV1E ... a belated welcome to the group too xx. The one Club, that NO-ONE ever thought they'd be joining!
I am so sorry to see you joining our select little group …. everyone remembers the shock of hearing the ‘diagnosis: “You've got breast cancer” ..... Causing sadness, distress and even anger. It really mucks with your brain, sometimes even more than your body! It is highly stressful & upsetting in the early days of diagnosis - so if you feel a bit overwhelmed by it all, give the Helpline a bell on 1800 500 258 for a confidential chat with one of the Mods xx.
Make sure you take a trusted friend or relative with you to your meetings from now on & also consider recording them too, on your phone xx. It is almost impossible to remember everything that is said & this way you can go back over it in the quiet of your home & take notes. xx
Also, Consider listening to Charlotte Tottman's Podcasts on her own experience with BC - as she explains it all very well xx She is a specialist breast cancer Counsellor who had a double mastectomy following her own diagnosis, choosing to stay flat. She was surprised at her own reaction to the news/surgery/treatment, as she'd been counseling others for many years & thought she 'knew it all'!She has done 2 ‘podcast seasons' ... check out the 1st season, right from her diagnosis onwards and how she coped, then move on to the 2nd season. She is very easy to listen to & you'll probably recognise your own reactions in many of the podcasts.
http://www.drcharlottetottman.com.au/my-podcast.html
Check out this thread too - there is a lot of info on the forum & what to take with you to hospital - even 'tick sheets' that you can fill in to take with you to your appointments on your mental & physical health .... this info has been gleaned from many of our members over the years ... I hope it helps you xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
take care & all the best- SYLV1E21 days agoMember
Thank you so much for all of these resource links. I’ve only just started to realise that I need to do some online shopping for things for the hospital. It’s weird, that at first, I was just thinking ‘hospital stuff’ and not the full post-surgery aspect. I guess my brain was trying to keep me calm with just focusing on one step at a time. Now, it’s all getting really REAL and im freaking out a bit so your reminder about the helpline is greatly appreciated. Thank you. I’ll put that number in my phone now.
Wishing you all the best as well. x
- KalGal22 days agoMember
Oh the would be lovely to stay in touch. I am in suburban Brisbane.
My husband said he threw up after one of his MRIs (knees) I hope that is a rare side effect..😮
- SYLV1E21 days agoMember
Oh dear, I think that would be my brother throwing up. He faints at just the thought of a needle. 😂 Men?!
The MRI is quite easy. I’ve had them before on my lumbar spine and my brain (and yes they did find one). First question my brother asked.For those scans you’re lying on your back so you are aware of how cramped it is inside which can be daunting if you’re a bit claustrophobic.
For the breast MRI’s, or at least for mine, you’re lying on your stomach so you’re not aware of the lack of size. It’s a bit like laying on a massage table with your forehead resting on the cushioned bit. The fun part is the two circles that are for your breasts to hang loose in. 😂 Defintely no elegant way to do that, but the ladies there will guide you all of the way through to get you in position but it’s much more comfortable than a mammogram.
The machine is noisy but they give you headphones and if you’re lucky you’ll get music through them but it’s still noisy.
i have an essential tremor that always comes on at inconvenient times so of course it started up midway through. I’ve recently read somewhere that for essential tremor, you can lesson it by doing something that required brain power like mathematics. Well, I’m not great with mathematics at the best of times so I was singing to myself, in my head, the Inch Worm Song,. 😄
One and one is two, two and two are four etc etc. That helped but got a bit boring after about ten rounds so I started counting backwards from 37. Not sure why I chose 37, it just seemed a good place to start. My tremors eased as I was doing the counting and adding up and by then it was all finished.
If this is your very first time in an MRI machine, I suggest you ask them if they can show you all around it, one end to the other, and for them to explain everything that’s going to happen. They would much prefer spending time with you before you start rather than have you having a panic attack midway through.
Anyway, best of luck and please let me know how you go.. And I’m sorry (not sorry😂) if you now have the Inch Worm song as an ear worm for the rest of the day. 😁. xo
- KalGal21 days agoMember
Oh I haven't heard the Inchworm song for aaaaggggeeeessss 😀
Thanks for the details around what to expect during the MRI. I will be sure to ask as many questions as they let me before the procedure. I heard about the bowls/cups for the breasts, there really is nothing delicate about it all is there. Oh life! I guess the flip side is that we are extremely fortunate to have access to the technology.
Your brother's sense of humour sounds like my brother 😀