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I think they may need guidance about what they could do to help and it may overcome a sense of powerlessness some of them may feel. "},"Conversation:conversation:167495":{"__typename":"Conversation","id":"conversation:167495","solved":false,"topic":{"__ref":"ForumTopicMessage:message:167495"},"lastPostingActivityTime":"2018-07-16T03:28:00.000-07:00","lastPostTime":"2018-07-16T03:28:00.000-07:00","unreadReplyCount":24,"isSubscribed":false},"ModerationData:moderation_data:167495":{"__typename":"ModerationData","id":"moderation_data:167495","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:167495_1":{"__typename":"Revision","id":"revision:167495_1","lastEditTime":"2018-06-10T16:34:15.000-07:00"},"ForumReplyMessage:message:167502":{"__typename":"ForumReplyMessage","id":"message:167502","conversation":{"__ref":"Conversation:conversation:167495"},"author":{"__ref":"User:user:20569"},"revisionNum":1,"uid":167502,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"subject":"Re: Calling parents","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:167502"},"parent":{"__ref":"ForumTopicMessage:message:167495"},"body":"My kids are 12, 13 & 16 (all have had birthdays since my diagnosis in December). Regarding helping out with chores, they already had a housework roster, daily and weekly, before the diagnosis. I was teaching them to cook simple meals. And they are expected to help with other things around the house.
Since the diagnosis, they have mostly stepped up to help me with things such as hanging out washing after I'd had surgery (and making Christmas roast lunch and pav which is one of my \"takeout\" memories). There's certainly been times when I know that I've disappointed them when I've had to say that I'm too tired to take them somewhere or do something. Mostly they've been understanding about that. I've tried to keep the important things as normal as possible but it is getting harder.
We have been completely honest with them about the diagnosis at each step of the way. I have told them that I will always tell them what is going on (although they don't hear much about my \"what if\" worries).
@kmakm - you're not a failure at all. What I would give to have my 16 yo son give me a real hug like he used to when he was younger... I just hope that he doesn't have reason to regret not doing it. He's the one that, when I was diagnosed, said that he might seem as if he didn't care but he knew I would be okay. Of course, I know there's no guarantees of that. In a conversation I had with him last year, before this was thought of, I must have been having some sort of moment, because I started a conversation with him about how important it would be for the kids to stick together and support each other should something happen to me. His response was that he thought the family would be too devastated to function without me. So, not what I would want, but shows me, without the spontaneous hugs, how he feels.
And @Eastmum I check my wigs, turbans, beanies and makeup with my 13 yo daugher if I'm unsure - she's the one these days with the sense of style - mine fled somewhere after having kids.
This has been a steep learning curve for all of us. I know there's underlying anxiety that breaks out sometimes. And I know the kids can't live every moment thinking about me and the cancer, so they do forget and they do get resentful about it at times, as do I. And the sharp words happen because I don't have the resilience to go through hours of arguments with teenagers about why they can't do or should do whatever it is.
My hope is, once the dust settles on treatment, to provide them with a good family life but also prepare them for the future. I guess not much of a different goal than I had before but now there is a shadow over things that wasn't there before and isn't for most of their friends. They've had to learn younger than most these days, to step up and be part of what makes the family work - and I've had to step back and let them do it. ","body@stringLength":"3066","rawBody":"My kids are 12, 13 & 16 (all have had birthdays since my diagnosis in December). Regarding helping out with chores, they already had a housework roster, daily and weekly, before the diagnosis. I was teaching them to cook simple meals. And they are expected to help with other things around the house.
Since the diagnosis, they have mostly stepped up to help me with things such as hanging out washing after I'd had surgery (and making Christmas roast lunch and pav which is one of my \"takeout\" memories). There's certainly been times when I know that I've disappointed them when I've had to say that I'm too tired to take them somewhere or do something. Mostly they've been understanding about that. I've tried to keep the important things as normal as possible but it is getting harder.
We have been completely honest with them about the diagnosis at each step of the way. I have told them that I will always tell them what is going on (although they don't hear much about my \"what if\" worries).
@kmakm - you're not a failure at all. What I would give to have my 16 yo son give me a real hug like he used to when he was younger... I just hope that he doesn't have reason to regret not doing it. He's the one that, when I was diagnosed, said that he might seem as if he didn't care but he knew I would be okay. Of course, I know there's no guarantees of that. In a conversation I had with him last year, before this was thought of, I must have been having some sort of moment, because I started a conversation with him about how important it would be for the kids to stick together and support each other should something happen to me. His response was that he thought the family would be too devastated to function without me. So, not what I would want, but shows me, without the spontaneous hugs, how he feels.
And @Eastmum I check my wigs, turbans, beanies and makeup with my 13 yo daugher if I'm unsure - she's the one these days with the sense of style - mine fled somewhere after having kids.
This has been a steep learning curve for all of us. I know there's underlying anxiety that breaks out sometimes. And I know the kids can't live every moment thinking about me and the cancer, so they do forget and they do get resentful about it at times, as do I. And the sharp words happen because I don't have the resilience to go through hours of arguments with teenagers about why they can't do or should do whatever it is.
My hope is, once the dust settles on treatment, to provide them with a good family life but also prepare them for the future. I guess not much of a different goal than I had before but now there is a shadow over things that wasn't there before and isn't for most of their friends. They've had to learn younger than most these days, to step up and be part of what makes the family work - and I've had to step back and let them do it. 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