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winter-spring's avatar
9 days ago

Prepations for mastectomy + lymph clearance + DIEP + potentially removing port surgery

For the short read:

What exercises for PRE-surgery and items to have onhand for POST-surgery do you recommend? I have about 2 months time, am 45 and generally fit except for limited mobility in one arm due to a pesky port that won't ever heal properly (see deep read below if interested).

For the deep read:

So I hear this is a 10 hr surgery with my arms up over my shoulders and people leaning over them. Obviously lots of incisions and wound care to follow as well as time appropriate physio and exercises.

I'm still 2 months out from surgery and would like to be as prepared as possible since I've previously suffered shoulder bursitis and subsequent frozen shoulder on both sides (at different times fortunately!) that lasted many many months (less the 2nd time as I could feel it coming on and do exercises).

Any pre-surgery exercises to recommend?

I also have had problems with scar healing. My port insertion was the first time I've ever been cut and stitched up. I had it first become dehiscent, then redone 6 weeks later, then lots of spitting sutures. After another 8 weeks the skin was irritated from taping so stopped that. But in this last week, the scar has widen without taping and is now 2cm wide! Have now started back on with stratamed and taping but using a gauze over the wound because it now got a bit of exudate. Yes, nurses and doctors monitor it, I have suitable antibiotics on hand, but since they saw how bad it got last week I've been told to be extra vigilant and go straight to ED with a low tolerance of anymore funny business or temperature of course.

So stretching back on the port side is currently difficult.

I understand I'll be a fairly sedentary for the first while. For items after surgery I found such things - any comments?

Any brands or items you tried that were no good?

Mastectomy ice pack strap thingy https://ebay.io/m/lgO8Mh

Wedge pillows https://ebay.io/m/l4HXiR

Different ones https://ebay.io/m/YhKxGI

https://onelink.shein.com/58/65zvq6nbsrcr

Will I need a girdle? Where to get, what to look for?

Skins brand compression items were mentioned elsewhere in forums. Any relevant for my case?

A bit of chest compression with this chest binder? I'll be a 10A-B with DIEP flap https://onelink.shein.com/58/65zwsvn5cwfj

Or this just looks like a tight tank top https://ebay.io/m/DeByYA

Best wound healing products? I've got stratamed (didn't use from beginning or consistently. Just started again now). Tips for use other than what on the package?

Any tips for avoiding spitting sutures? Yuck and annoying! 😭

Many many thanks for all you lot helping each other out ❣️

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