Forum Discussion
arpie
8 years agoMember
@Zoffiel @Romla @Deanne
Thank you so much for all that - I will print off your answers & take them with me when I see the Onc Dr.
I will also do a search on AIs here & read up on it - for different individuals' reactions - so far, I've only read the BCNA booklet.
I had a lumpectomy (Stage 2) & radiation - no chemo - but like you, Deanne - the joint pain can be excruciating even BEFORE taking anything! I used to think my Aunt was being 'cute' 30+ years ago, by asking her husband to open bottles & things ....... now I understand fully, the pain that she was in!! I couldn't believe the pain in my big toe the other morning! I couldn't put any weight onto it at all! Luckily, I was going kayaking - and the coolness of the salt water when I was putting it in - soothed it down & so far, no more trouble!
At my initial consultation with my surgeon, knowing my shitty menopause & arthritis history - said to ''try the AIs - and if they aggravate my existing conditions 'too much' - just to stop taking them.'' From memory - he said it is an extra 1% 'insurance' on the cancer not coming back - which to me, doesn't seem 'that convincing an argument' if taking the meds makes your life miserable for 5 years??
Sadly tho - pretty well all of the women I know who started off with BC (bar one or two) have presented with another cancer within 8 years of surgery. :( Colon, Lung, Kidney, Liver ..... which is absolutely NOTHING to do with BC ...... Luckily, They've all come thru that as well, which is very comforting!
Funny that you mention the statins Romla - my hubby is currently going thru 'dementia assessment' and a brain scan when I get back from Norfolk Island - and he is on 20mg a day & has been for some years now. He is very thin, always been a very fit triathlete - and NEVER eats the wrong stuff - so incredible that his cholesterol is always higher than mine (who sometimes DOES eat the wrong stuff! ;( ) I must bring this up with my GP next time about him - if going off them may help his mental state!!..... I have been on 10mg for a few years now - and went off them during my rads - and so far, stayed off them! I DO have some Krill Oil capsules so will start taking them again & already taking Turmeric for my arthritis.
Thank you so much for all that - I will print off your answers & take them with me when I see the Onc Dr.
I will also do a search on AIs here & read up on it - for different individuals' reactions - so far, I've only read the BCNA booklet.
I had a lumpectomy (Stage 2) & radiation - no chemo - but like you, Deanne - the joint pain can be excruciating even BEFORE taking anything! I used to think my Aunt was being 'cute' 30+ years ago, by asking her husband to open bottles & things ....... now I understand fully, the pain that she was in!! I couldn't believe the pain in my big toe the other morning! I couldn't put any weight onto it at all! Luckily, I was going kayaking - and the coolness of the salt water when I was putting it in - soothed it down & so far, no more trouble!
At my initial consultation with my surgeon, knowing my shitty menopause & arthritis history - said to ''try the AIs - and if they aggravate my existing conditions 'too much' - just to stop taking them.'' From memory - he said it is an extra 1% 'insurance' on the cancer not coming back - which to me, doesn't seem 'that convincing an argument' if taking the meds makes your life miserable for 5 years??
Sadly tho - pretty well all of the women I know who started off with BC (bar one or two) have presented with another cancer within 8 years of surgery. :( Colon, Lung, Kidney, Liver ..... which is absolutely NOTHING to do with BC ...... Luckily, They've all come thru that as well, which is very comforting!
Funny that you mention the statins Romla - my hubby is currently going thru 'dementia assessment' and a brain scan when I get back from Norfolk Island - and he is on 20mg a day & has been for some years now. He is very thin, always been a very fit triathlete - and NEVER eats the wrong stuff - so incredible that his cholesterol is always higher than mine (who sometimes DOES eat the wrong stuff! ;( ) I must bring this up with my GP next time about him - if going off them may help his mental state!!..... I have been on 10mg for a few years now - and went off them during my rads - and so far, stayed off them! I DO have some Krill Oil capsules so will start taking them again & already taking Turmeric for my arthritis.