Forum Discussion
Romla
8 years agoMember
@arpie Ihave been on Letrozole 8 plus months.
Yes it does like all Aromatase Inhibitors thin bones.I started with osteoporosis and had had an osteoporotic fracture so also have 6 monthly Prolia injections to counterthis effect.Mercifully the fracture meant I can access the PBS price of $38 and not pay the full price of $275. There is an alternative to Prolia called bisphosphonate tablets which I took briefly some years ago but I do not recommend - my teeth are not good and dental work like extractions and root canals are high risk on those tablets which stay in your system well beyond taking them.I had to have an extraction and found it very difficult to find a dentist who would help me - only Professor Goss here would after doing cross laps. This type of dental surgery whilst on bisphosphonates can cause osteonecrosis of the jaw.
Yes it causes joint pain so weight bearing exercises are critical .@Deanne has told us on here about the amazing work the Bone Clinicin Qld is doing building bone density with a weight program.
I walk daily for an hour -some days are harder than others but generally I have found I can walk thru joint pain and I really notice the difference if I miss a walk.I also do a gentle stretch and balance class twice weekly which includes a bit of light weights and again if I miss one I really notice the difference.
Before embarking on Letrozole I asked my medical oncologist what to take for joint pain and was told Krill Oil which I take daily along with 2 Caltrate Bone and Muscle Health as per the guidelines from the Australian Osteoporosis organisation available online.Krill Oil btw is a concentrated fish oil and Omega 3 which is good for the heart.
I should add I do get the occasional hot flush from Letrozole too. And also I think it brings on the blues but walking with its endorphin rush counters that.Letrozole may also create a bit of fatigue but then I need to slow down a bit but not the exercise.
Tamoxifen too has its side effects.Whilst you are waiting for someone else to blog use the search bar at the top of the page as there has been heaps online about Hormone Therapy these past months.
My view ? I too was very worried about Hormone Therapy at the outset.I am managing and will continue taking Letrozole as it is my best chance to avoid recurrence.
Yes it does like all Aromatase Inhibitors thin bones.I started with osteoporosis and had had an osteoporotic fracture so also have 6 monthly Prolia injections to counterthis effect.Mercifully the fracture meant I can access the PBS price of $38 and not pay the full price of $275. There is an alternative to Prolia called bisphosphonate tablets which I took briefly some years ago but I do not recommend - my teeth are not good and dental work like extractions and root canals are high risk on those tablets which stay in your system well beyond taking them.I had to have an extraction and found it very difficult to find a dentist who would help me - only Professor Goss here would after doing cross laps. This type of dental surgery whilst on bisphosphonates can cause osteonecrosis of the jaw.
Yes it causes joint pain so weight bearing exercises are critical .@Deanne has told us on here about the amazing work the Bone Clinicin Qld is doing building bone density with a weight program.
I walk daily for an hour -some days are harder than others but generally I have found I can walk thru joint pain and I really notice the difference if I miss a walk.I also do a gentle stretch and balance class twice weekly which includes a bit of light weights and again if I miss one I really notice the difference.
Before embarking on Letrozole I asked my medical oncologist what to take for joint pain and was told Krill Oil which I take daily along with 2 Caltrate Bone and Muscle Health as per the guidelines from the Australian Osteoporosis organisation available online.Krill Oil btw is a concentrated fish oil and Omega 3 which is good for the heart.
I should add I do get the occasional hot flush from Letrozole too. And also I think it brings on the blues but walking with its endorphin rush counters that.Letrozole may also create a bit of fatigue but then I need to slow down a bit but not the exercise.
Tamoxifen too has its side effects.Whilst you are waiting for someone else to blog use the search bar at the top of the page as there has been heaps online about Hormone Therapy these past months.
My view ? I too was very worried about Hormone Therapy at the outset.I am managing and will continue taking Letrozole as it is my best chance to avoid recurrence.