Triple Neg HER2 what questions
Hello, Im 46yrs old an a mum to 2 beautiful girls 4 and 7. In Nov 2017 I found a lump left breast and my GP gave me a referral for M/gram and U/Sound. Due to work (Im a full time carer for my 7 yr ol...
Forum Discussion
@TripleNegMama have you had a double mastectomy? Did your BC recur in your breast again?
i have had Triple neg BC diagnosed August 2017 and finished chemo last month(jan). I am BRCA1 and since my last chemo I have had a total hysterectomy including uterus and ovaries and have just gotten out of hospital today after 8 days from a double mastectomy and lat dorsi reconstruction.
The fear of recurrence is hard knowing our chances are higher of it spreading in the next 5 years and not letting that control my thoughts. All oncologists and breast nurses etc have said no to doing scans as they find it’s not helpful and doesn’t increase the chances of survival and can sometimes cause more angst as they may find something that needs further testing and then it’s nothing.
I saw my mastectomy surgeon today just before leaving hospital and I had just read your post. I asked her if I could have a yearly PET scan if I was to pay for it and she said I don’t think you need to but if you really want to you can. She is seeing me in 6 months and will order it then if I want it.
I know now for some a scan would cause anxiety but for me I think it will give me piece of mind. What state are you in and how much did a PET scan cost you?
@Mum2 best wishes with your mastectomy and future treatment. Just take 1 step at a time, do what the experts tell you and before you know it you will be out the other side.
Thanks
i have had Triple neg BC diagnosed August 2017 and finished chemo last month(jan). I am BRCA1 and since my last chemo I have had a total hysterectomy including uterus and ovaries and have just gotten out of hospital today after 8 days from a double mastectomy and lat dorsi reconstruction.
The fear of recurrence is hard knowing our chances are higher of it spreading in the next 5 years and not letting that control my thoughts. All oncologists and breast nurses etc have said no to doing scans as they find it’s not helpful and doesn’t increase the chances of survival and can sometimes cause more angst as they may find something that needs further testing and then it’s nothing.
I saw my mastectomy surgeon today just before leaving hospital and I had just read your post. I asked her if I could have a yearly PET scan if I was to pay for it and she said I don’t think you need to but if you really want to you can. She is seeing me in 6 months and will order it then if I want it.
I know now for some a scan would cause anxiety but for me I think it will give me piece of mind. What state are you in and how much did a PET scan cost you?
@Mum2 best wishes with your mastectomy and future treatment. Just take 1 step at a time, do what the experts tell you and before you know it you will be out the other side.
Thanks