Good morning,
Firstly, sorry to hear of your diagnosis. I have a more common type (lobular) but am a rare person under 30 with that specific type. It’s been very difficult to find other women in my age range with this type (I still actually haven’t found anyone this young currently in Australia getting treatment with my type).
Although I can’t relate to how unusual yours is, I can relate to not knowing if treatment will be effective. My oncologists are doing a similar thing to yours and treating me with protocols they know work for other women with more common breast cancers but haven’t been studied that much in someone my age with this type.
I did a quick look on the web and found a journal article that said radiation seems to help your type a lot, so that’s great you’re having 5 weeks of it soon.
I hope we can all be helpful in one way or another.
Take care xx