Hi everyone. Its been 15 months since my last chemo and on Friday afternoon I found out my TNBC has spread to my lymph nodes in my armpit after finding a lump.I see the surgeon on Wednesday and have been ok thinking fingers crossed it has gone no further and we just do it all again and beat it BUT I have since been reading on this website and the way it sounds to me is that it is now metastatic cancer and I will never actually beat it but can hopefully live with it for a number of Years? Please tell me I’m wrong??So so gutted it’s back!!tripletea

@TripleTea. Fuckity fuck love. (You guys didn’t think I’d pop in and not drop the F bomb did you) lol. I’m so sorry to hear your news that truly sucks. What did your surgeon say ? And what’s the plan of attack now? Have you had your scans yet? @kmakm has summed this up beautifully. This disease truly is a huge piling steam of shit (I think I may of rubbed off on her at some stage with that comment)! But we will all be here walking right behind you to clean up the mother fucker of a mess you can be rest assured of that. I’ll send you a PM. Big girl pants on again love. Use a pair of those ugly floral bonds cotton tail ones they will do the trick for sure. Biggest hugs. Margie xxx

Great news from your scans @TripleTea I too have had a localised recurrence of Triple Negative and know and feel exactly what you're going through.I had to have another round (5 months) chemo, but a different regimen to the first time. I hated every bit off it, but knew if this was going to beat the retched thing, then I had to do it !! Then radiotherapy again as well. I'm now nearly three year post the recurrence and heading down the path of reconstruction at the moment. Sending you bunches of hugs and just know that you can do this. <3

Hi TripleTea,I know how you feel, I’m still doing my chemo treatment after surgery in December last year.When I was admitted into hospital with neutropenia and Rhino virus after my second dose of dense A/C , a routine chest CT scan was ordered, they noticed that one of my lymph nodes was swollen under my left armpit ( surgery side), had another ultrasound and aspiration to be told that there were cancer cells in one of my lymph nodes, some cells had already died that were put under the microscope The plan is to finish my last few weeks of pactlitaxel and more surgery mid July for a full auxiliary clearance. Once healed then Radiotherapy.This was after I was told that I had clear margins and clear sentinel nodes in December, and my treatment was just to mop up any cells that may have strayed.So I know how you feel about this shitty disease.I did ask my Oncolgist if that means that it is metastatic, he replied no.Dont think about the what if’s, try and stay busy and wait for the results.Try and stay positive I know it’s so bloody hard sometimes, the mind is a very powerful thing.Anytime you want to talk you can message me privately.YOU CAN DO THIS.! AND SO CAN I ....Sending hugs xoxo

@TripleTea, so sorry to hear the bitch is back. My initial diagnosis I actually had a positive lymph node (1cm). My recurrence was actually in the same breast. However the first diagnosis with the 1cm lump in my lymph node was almost 10 years ago. The second diagnosis just over 8 years ago. I would expect the next thing for you will be a CT scan and a bone scan. That’s where they are looking for evidence that it has spread to your bones or organs. Fingers crossed they will be clear for you. Doing chemo again was a huge shock to me, however once I knew those scans were clear I just wanted to get the chemo done. Sending you a huge hug and fingers crossed for you. Paula xxx PS I was triple neg also.

Thanks ladies. Yes definitely a huge relief and it’s good to hear other good news stories of recurrence @mum2jj and @Goodhealthagain. I said to the surgeon yesterday “so my prognosis is good” and she said “well we have to wait for the pathology on Wednesday” which worried me a bit but then she went on to say that will determine my chemo radio regime. It is funny how your mindset changes. Now that my scans are clear I feel like I can do this chemo again and am almost “keen” to do it just to make sure it gets any bastard cells left behind!

I’m back | BCNA Online Network

50 Replies

arpie
Member
7 years ago
Great news @TripleTea - now just rest up & recover from the surgery. All the best for your ongoing treatment xxx
kmakm
Member
7 years ago
I'm so happy for you @TripleTea. So weird to go into chemo feeling pleased!! I really like my new oncologist, a much better fit. I hope yours is too. Once more into the breach lovely! Big hug, K xox
kitkatb
Member
7 years ago
That must be such a relief @TripleTea and hoping your new Onc is like your surgeon as sounds like you have a good one there. Here's to a speedy recovery for you. xo
Goodhealthagain
Member
7 years ago
Great news from your scans @TripleTea

I too have had a localised recurrence of Triple Negative and know and feel exactly what you're going through.

I had to have another round (5 months) chemo, but a different regimen to the first time. I hated every bit off it, but knew if this was going to beat the retched thing, then I had to do it !! Then radiotherapy again as well.

I'm now nearly three year post the recurrence and heading down the path of reconstruction at the moment.

Sending you bunches of hugs and just know that you can do this. <3
Michele_B
Member
7 years ago
Awesome news @TripleTea! You have got this! It us weird what we are grateful.for these dayz, but i see this as a win! Best of luck xxx
onemargie
Member
7 years ago
@TripleTea. What a fuckin relief for you love. Fingers crossed the chemo is manageable for you. Please keep us posted on what your plan of attack is so we can support you all the way. Hang in there love. You’ve got this. Go buy those big ugly bonds cottontail knickers and whack them on. Biggest hugs. Margie. Xx
mum2jj
Member
7 years ago
That is such a relief. I too had a local recurrence of triple neg (bitch) mine was 8 years ago. I was so elated at scan results I was more accepting of the chemo. Big hugs to you as you move on with your treatment. It’s a bitch, but you’ve got this.
Hugs again. Paula xxx
TripleTea
Member
7 years ago
Thanks ladies. Yes definitely a huge relief and it’s good to hear other good news stories of recurrence @mum2jj and @Goodhealthagain.
I said to the surgeon yesterday “so my prognosis is good” and she said “well we have to wait for the pathology on Wednesday” which worried me a bit but then she went on to say that will determine my chemo radio regime. It is funny how your mindset changes. Now that my scans are clear I feel like I can do this chemo again and am almost “keen” to do it just to make sure it gets any bastard cells left behind!
Shellshocked201
Member
7 years ago
That’s such great news TripleTea.
Rest and recover.
Sending gentle hugs xoxo
sallylovestosin
Member
7 years ago
Just saw your post @TripleTea and hope youre doing well! I'm where you were about a month ago - 20mths post initial diagnosis of TN Inflammatory BC, 12mths treatment (chemo,mastectomy,rads, more chemo), all done last Christmas and feeling good, then bam! In June started getting some lymphoedema in my right (surgery side) arm and an ultrasound ("just to be sure - I don't expect to see anything" - my surgeon, bless him) showed three nasty looking lymph nodes which the radiologist says are most likely the same cancer - cunning, lurking swine. Just waiting for the core biopsy results now and like you terrified of having to go through the whole shit show again. Keeping my fingers crossed I can be quoting your last couple of posts soon :smiley:

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