Hi everyone. Its been 15 months since my last chemo and on Friday afternoon I found out my TNBC has spread to my lymph nodes in my armpit after finding a lump.I see the surgeon on Wednesday and have been ok thinking fingers crossed it has gone no further and we just do it all again and beat it BUT I have since been reading on this website and the way it sounds to me is that it is now metastatic cancer and I will never actually beat it but can hopefully live with it for a number of Years? Please tell me I’m wrong??So so gutted it’s back!!tripletea

@TripleTea. Fuckity fuck love. (You guys didn’t think I’d pop in and not drop the F bomb did you) lol. I’m so sorry to hear your news that truly sucks. What did your surgeon say ? And what’s the plan of attack now? Have you had your scans yet? @kmakm has summed this up beautifully. This disease truly is a huge piling steam of shit (I think I may of rubbed off on her at some stage with that comment)! But we will all be here walking right behind you to clean up the mother fucker of a mess you can be rest assured of that. I’ll send you a PM. Big girl pants on again love. Use a pair of those ugly floral bonds cotton tail ones they will do the trick for sure. Biggest hugs. Margie xxx

Great news from your scans @TripleTea I too have had a localised recurrence of Triple Negative and know and feel exactly what you're going through.I had to have another round (5 months) chemo, but a different regimen to the first time. I hated every bit off it, but knew if this was going to beat the retched thing, then I had to do it !! Then radiotherapy again as well. I'm now nearly three year post the recurrence and heading down the path of reconstruction at the moment. Sending you bunches of hugs and just know that you can do this. <3

Hi TripleTea,I know how you feel, I’m still doing my chemo treatment after surgery in December last year.When I was admitted into hospital with neutropenia and Rhino virus after my second dose of dense A/C , a routine chest CT scan was ordered, they noticed that one of my lymph nodes was swollen under my left armpit ( surgery side), had another ultrasound and aspiration to be told that there were cancer cells in one of my lymph nodes, some cells had already died that were put under the microscope The plan is to finish my last few weeks of pactlitaxel and more surgery mid July for a full auxiliary clearance. Once healed then Radiotherapy.This was after I was told that I had clear margins and clear sentinel nodes in December, and my treatment was just to mop up any cells that may have strayed.So I know how you feel about this shitty disease.I did ask my Oncolgist if that means that it is metastatic, he replied no.Dont think about the what if’s, try and stay busy and wait for the results.Try and stay positive I know it’s so bloody hard sometimes, the mind is a very powerful thing.Anytime you want to talk you can message me privately.YOU CAN DO THIS.! AND SO CAN I ....Sending hugs xoxo

@TripleTea, so sorry to hear the bitch is back. My initial diagnosis I actually had a positive lymph node (1cm). My recurrence was actually in the same breast. However the first diagnosis with the 1cm lump in my lymph node was almost 10 years ago. The second diagnosis just over 8 years ago. I would expect the next thing for you will be a CT scan and a bone scan. That’s where they are looking for evidence that it has spread to your bones or organs. Fingers crossed they will be clear for you. Doing chemo again was a huge shock to me, however once I knew those scans were clear I just wanted to get the chemo done. Sending you a huge hug and fingers crossed for you. Paula xxx PS I was triple neg also.

Thanks ladies. Yes definitely a huge relief and it’s good to hear other good news stories of recurrence @mum2jj and @Goodhealthagain. I said to the surgeon yesterday “so my prognosis is good” and she said “well we have to wait for the pathology on Wednesday” which worried me a bit but then she went on to say that will determine my chemo radio regime. It is funny how your mindset changes. Now that my scans are clear I feel like I can do this chemo again and am almost “keen” to do it just to make sure it gets any bastard cells left behind!

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50 Replies

lrb_03
Member
7 years ago
Everything crossed for you @TripleTea, as you navigate another round with the beast
Take care
kitkatb
Member
7 years ago
I can't even begin to imagine what you must be feeling @TripleTea just to say my thoughts are with you and I have everything crossed for you with your scan results. This disease just sucks. Am also TNBC and approaching first year scans next week. Big hugs to you. xo
arpie
Member
7 years ago
That's a real bugger, @TripleTea What you are going thru just now must be horrible. Try & keep busy, I guess xx

All the best with your appointment with the surgeon tomorrow. xx
Giovanna_BCNA
Member
7 years ago
Hello @TripleTea sorry to hear your news, how devastating. Fingers crossed that it is contained. All the best with your surgical appointment this week. Dont hesitate to call 1800 500 258 if you need to speak with a cancer nurse for support and or information.
Flaneuse
Member
7 years ago
@TripleTea Bugger. Thinking of you. Wishing you strength. <3
Michele_B
Member
7 years ago
Sending positive vibes @TripleTea. So sorry you have to face this again. Fingers crossed a local recurrence, this really is a bitch of a disease. Big hugs xx
onemargie
Member
7 years ago
@TripleTea. Fuckity fuck love. (You guys didn’t think I’d pop in and not drop the F bomb did you) lol. I’m so sorry to hear your news that truly sucks. What did your surgeon say ? And what’s the plan of attack now? Have you had your scans yet? @kmakm has summed this up beautifully. This disease truly is a huge piling steam of shit (I think I may of rubbed off on her at some stage with that comment)! But we will all be here walking right behind you to clean up the mother fucker of a mess you can be rest assured of that. I’ll send you a PM. Big girl pants on again love. Use a pair of those ugly floral bonds cotton tail ones they will do the trick for sure. Biggest hugs. Margie xxx
TripleTea
Member
7 years ago
@onemargie you do make me smile! I will get myself some of those lovely big florals ASAP!

So I saw the surgeon yesterday and she admitted me to hospital this morning and today I have had a CT, bonescan and an ultrasound of my other armpit. Tomorrow morning they are doing a full axillary clearance.
I’m still shit scared and anxious awaiting these scan results! If they come back clear she said this is still beatable and we will go for broke(not really sure what she means by that).

I will need chemo & radio but obviously won’t know what type or regime until after surgery and healing. Still can’t believe I’m back on this bloody roller coaster!
Zoffiel
Member
7 years ago
Good luck @TripleTea. Dark times, but we must plod on. M xx
arpie
Member
7 years ago
All the best @TripleTea - we'll be thinking of you xxx

Great to see you back, @onemargie - you were a wonderful support to me when I was diagnosed early last year xx

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