I’m back
Hi everyone. Its been 15 months since my last chemo and on Friday afternoon I found out my TNBC has spread to my lymph nodes in my armpit after finding a lump. I see the surgeon on Wednesday and h...
Forum Discussion
Hi there @TripleTea
Firstly my apologies for the delayed response.
My first diagnosis was mid 2013. At which time I had a 1.7cm growth removed in my left breast in a lumpectomy along with 7 nodes with one being positive. All were Triple Negative
I then had 12 rounds of Taxol and AC followed by 30 rounds of radiation.
All was going well and getting on with life, until I had my three year scan, when another growth, same size, same spot reared it's head again.
This time I was told that I needed a mastectomy. Nodes were removed but none were positive. Was told that all was cleared but that I needed to have chemo again !!!!
Having felt that something didn't seem right for this to come back in the same spot decided to get another opinion.
I found the most caring, professional and knowledgeable Specialist that I and my family have ever know.
He wanted to not only know what was happening in that area, but also my entire body.
So he first wanted me to have a PET scan before any recommendations in my treatment moving forward.
I had the PET scan only to be dealt another blow.
You see, what the other surgeon and radiographer missed was picked up in my PET. It was discovered that I had another growth, in the same breast but higher up in the tail of the axilla, about the same size !!!!
Shock, Horror and grief was felt all round. How could they have missed this. But they did.
I'm forever grateful to my health care Specialist as he has saved my life.
Anyway, again just three weeks after having my mastectomy was back in hospital to have a total axillary clearance.
Treatment was more chemo. I had 12 rounds of a different regime, Carboplatin and gemcitabine. Again 12 rounds. Then more radiation 24 rounds to the upper chest area.
Well, I'm now three year post recurrence and recently had another PET scan and given the all clear.
I'm on a hospital list now to have a reconstruction on the left side. It's taken me a long time to come to my decision, but feel that I need to get it done to feel whole again.
I'm going to have my annual mammo and ultrasound done in a coupe of weeks and can feel the tension building, which I suppose will never leave any one of us.
Best of luck with your recovery and stay strong with the knowledge that you have so much support from this wonderful site at any time.
Best wishes, Cheryl xo
Firstly my apologies for the delayed response.
My first diagnosis was mid 2013. At which time I had a 1.7cm growth removed in my left breast in a lumpectomy along with 7 nodes with one being positive. All were Triple Negative
I then had 12 rounds of Taxol and AC followed by 30 rounds of radiation.
All was going well and getting on with life, until I had my three year scan, when another growth, same size, same spot reared it's head again.
This time I was told that I needed a mastectomy. Nodes were removed but none were positive. Was told that all was cleared but that I needed to have chemo again !!!!
Having felt that something didn't seem right for this to come back in the same spot decided to get another opinion.
I found the most caring, professional and knowledgeable Specialist that I and my family have ever know.
He wanted to not only know what was happening in that area, but also my entire body.
So he first wanted me to have a PET scan before any recommendations in my treatment moving forward.
I had the PET scan only to be dealt another blow.
You see, what the other surgeon and radiographer missed was picked up in my PET. It was discovered that I had another growth, in the same breast but higher up in the tail of the axilla, about the same size !!!!
Shock, Horror and grief was felt all round. How could they have missed this. But they did.
I'm forever grateful to my health care Specialist as he has saved my life.
Anyway, again just three weeks after having my mastectomy was back in hospital to have a total axillary clearance.
Treatment was more chemo. I had 12 rounds of a different regime, Carboplatin and gemcitabine. Again 12 rounds. Then more radiation 24 rounds to the upper chest area.
Well, I'm now three year post recurrence and recently had another PET scan and given the all clear.
I'm on a hospital list now to have a reconstruction on the left side. It's taken me a long time to come to my decision, but feel that I need to get it done to feel whole again.
I'm going to have my annual mammo and ultrasound done in a coupe of weeks and can feel the tension building, which I suppose will never leave any one of us.
Best of luck with your recovery and stay strong with the knowledge that you have so much support from this wonderful site at any time.
Best wishes, Cheryl xo