Good on you if you dont have to have any treatment. be guided by the medical team & the results following surgery. I was like you & agreed with my surgeon to have a lumpectomy over a mastectomy as I thought why take it off if a smaller operation would do the trick. It's a gamble game but i am happy with my decisions & the rad provided me the extra protection without having chemo. All the best & stay positive & strong. love & hugs xx ","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:78813"},"author":{"__typename":"User","login":"Anne65"},"postTime":"2019-08-14T21:20:08.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":78819,"body":"@Pip47 Many ladies on this forum have used Mepitel & I know that Giovanna is a huge advocate of it also. I have a link below which describes it to you. I had my treatment at a private hospital & they used it often. https://store.independenceaustralia.com/mepitel-film-1-7dc7538f41cbee2be86aa2559ade080c.html It is reasonably new & my onc was very much in favour of it. It is like an invisible film that sticks to your body over the radiation area. It is VERY important that the film has no tears or bubbles in it so I had a nurse check me every day before treatment & if needed, performed & nip & tuck to ensure it was sticking directly to my skin. They may replace it entirely if it starts to lift at all but best to leave it in place. It basically reflects the rad beam so it doesnt penetrate your skin. The film stays on you the entire treatment plus around 3 weeks after treatment has finished as that is when the radiation hits it peak, which does seem strange I know. The great thing about mepitel is that you dont use ANY creams throughout the whole process. You can shower normally also but try not to rub vigorously or the film may come off. Yes, you may initially feel like a cryovac chicken but you do get used to it. My 3 y.o. great niece called it \"my special skin\" as she knew it was protecting me! Its so important that if you feel any bubbles in the film, that you let the nurse know as bubbling actually makes it worse. The rad beam actually reflects back into your skin. The nurse at the hospital checked me every day & they dont mind as that is there job. You may as well see them every day to ensure it is OK otherwise it defeats the purpose. I finished 3 weeks of treatment with no redness, burning or peeling. You wouldnt have even known I had rad treatment. I couldnt believe how good my skin looked, just as it did before. I was very lucky to have been offered this product. I took the film off myself around 3 weeks after it finished & then I just used a Vit e non-scented moisturiser over my skin just because it has been wrapped up in film for 5 weeks. You need to use fragrance free & non scented bodywash using the treatment also just to minimise any reaction. I do hope you can get hold of it or ask for it if they can get it in. i know it can be different in private & public hospitals. I am a huge supporter of this product if you maintain it well. I have seen pics of rad burns that really shocked me so i know I have been lucky.Good luck & let us know how you get on. Love & hugs xx
","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:78813"},"author":{"__typename":"User","login":"Anne65"},"postTime":"2019-08-15T20:55:02.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":78815,"body":"Thanks for your post. I'm waiting for a full diagnosis and plan so not quite up to where you are. Good luck with your surgery and thanks for sharing the choice that you made. ","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:78813"},"author":{"__typename":"User","login":"Felicia29"},"postTime":"2019-08-14T20:36:18.000-07:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":78818,"body":"@pip47 Mepitel is a film that goes on the skin to be irradiated. It affects how the radiation enters the skin (somehow - can't quite remember - by changing the depth, I think). It doesn't make the treatment any less but does protect the skin a lot. I was treated in a public hospital and had to ask for the film. No problem in getting it but it wasn't offered up front. There was a couple of days when I had a slight gap between two pieces. In that short time, I got a dark tan line so I know it did do a lot to protect me. It stayed on all week during treatment and then I could take it off for the weekend and moisturise the area. I had no real problems with my skin except for a red tender spot 3 weeks after treatment 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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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I have decided to only have the involved milk ducts removed. Hopefully there will be a clear line around and I will not have to have radiation. The surgeon was talking about breast reconstruction on the day as well, I have decided to only have the cancer removed as everything else is in the too hard basket at the moment as I have had two major surgeries in the past 11 months. Well wishes to all those in the same situation as myself.:)","body@stringLength":"557","rawBody":"Diagnosed DCIS 10th August, I saw a surgeon yesterday and have now booked the hospital for the 3rd of September. I have decided to only have the involved milk ducts removed. Hopefully there will be a clear line around and I will not have to have radiation. The surgeon was talking about breast reconstruction on the day as well, I have decided to only have the cancer removed as everything else is in the too hard basket at the moment as I have had two major surgeries in the past 11 months. Well wishes to all those in the same situation as myself.:)","kudosSumWeight":0,"postTime":"2019-08-14T16:36:08.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:dcis","text":"dcis","time":"2025-03-25T05:01:41.715-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:new-diagnosis","text":"new-diagnosis","time":"2025-03-25T05:02:14.978-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78813_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1136},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"searchSnippet":"Diagnosed DCIS 10th August, I saw a surgeon yesterday and have now booked the hospital for the 3rd of September. I have decided to only have the involved milk ducts removed. Hopefully there w...","replies":{"__typename":"MessageConnection","edges":[{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyNA","node":{"__ref":"ForumReplyMessage:message:78824"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyNQ","node":{"__ref":"ForumReplyMessage:message:78825"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyNg","node":{"__ref":"ForumReplyMessage:message:78826"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyNw","node":{"__ref":"ForumReplyMessage:message:78827"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyOA","node":{"__ref":"ForumReplyMessage:message:78828"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyOQ","node":{"__ref":"ForumReplyMessage:message:78829"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgzMA","node":{"__ref":"ForumReplyMessage:message:78830"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgzMQ","node":{"__ref":"ForumReplyMessage:message:78831"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgzMg","node":{"__ref":"ForumReplyMessage:message:78832"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgzMw","node":{"__ref":"ForumReplyMessage:message:78833"}}],"pageInfo":{"__typename":"PageInfo","hasNextPage":true,"endCursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgzMw","hasPreviousPage":true,"startCursor":"MjUuMnwyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyNA"}},"customFields":[]},"Conversation:conversation:78813":{"__typename":"Conversation","id":"conversation:78813","solved":false,"topic":{"__ref":"ForumTopicMessage:message:78813"},"lastPostingActivityTime":"2019-09-11T19:19:50.000-07:00","lastPostTime":"2019-09-11T19:19:50.000-07:00","unreadReplyCount":25,"isSubscribed":false},"ModerationData:moderation_data:78813":{"__typename":"ModerationData","id":"moderation_data:78813","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:78813_1":{"__typename":"Revision","id":"revision:78813_1","lastEditTime":"2019-08-14T16:36:08.000-07:00"},"CachedAsset:theme:customTheme1-1744167880929":{"__typename":"CachedAsset","id":"theme:customTheme1-1744167880929","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78824"},"body":"Gosh @Mich15 - you've had a hard time of it! Good on you for getting back out there running as soon as you could. My hubby is a triathlete & lost most of his stomach to cancer - and was back competing just 5 months after chemo - even competing in numerous World Championships as well over the last 10 years!
All the best with your chemo - watch out for the sun factor tho, as your skin can become very sensitive to it xx
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"217","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-08-16T18:38:06.000-07:00","lastPublishTime":"2019-08-16T18:38:06.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78824","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"477","rawBody":"Gosh @Mich15 - you've had a hard time of it! Good on you for getting back out there running as soon as you could. My hubby is a triathlete & lost most of his stomach to cancer - and was back competing just 5 months after chemo - even competing in numerous World Championships as well over the last 10 years!
All the best with your chemo - watch out for the sun factor tho, as your skin can become very sensitive to it xx
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I am an exercise-aholic. I am suffering achilies tendinitis (3rd time) & shoulder bursitis at the moment from TOO MUCH running/power walking & strength workouts. I am usually over doing it so find myself feeling shattered when my injuries or BC surgery/treatment put a stop to it all momentarily. Despite my small hiccup at the moment, within 12 months plus 1 week, following my BC surgery, I was back running 10km/ 3 times a week. I had surgery 21 Dec '17, 3 weeks of rad treatment Feb/March '18, ovary tube removal April '18 & 8 monthd later on New Years eve '18, I ran my first 10km. I was over the moon as that was my goal! So you can do it too! I'm sure my exercise has helped me get through it all so keep up your good work. It will make you stronger & keep your mind focused on something you love. It also helps you sleep & maintain a general healthy outlook. Good luck with the chemo & exercise. Gently, gently but do what you can as you know it will make you feel better both in mind & body. Love & strength xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"211","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-08-16T19:02:52.000-07:00","lastPublishTime":"2019-08-16T19:02:52.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78825","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"1118","rawBody":"@Mich15 Lovely to meet a fellow runner! I am an exercise-aholic. I am suffering achilies tendinitis (3rd time) & shoulder bursitis at the moment from TOO MUCH running/power walking & strength workouts. I am usually over doing it so find myself feeling shattered when my injuries or BC surgery/treatment put a stop to it all momentarily. Despite my small hiccup at the moment, within 12 months plus 1 week, following my BC surgery, I was back running 10km/ 3 times a week. I had surgery 21 Dec '17, 3 weeks of rad treatment Feb/March '18, ovary tube removal April '18 & 8 monthd later on New Years eve '18, I ran my first 10km. I was over the moon as that was my goal! So you can do it too! I'm sure my exercise has helped me get through it all so keep up your good work. It will make you stronger & keep your mind focused on something you love. It also helps you sleep & maintain a general healthy outlook. Good luck with the chemo & exercise. Gently, gently but do what you can as you know it will make you feel better both in mind & body. Love & strength xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78825_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:20554":{"__typename":"User","id":"user:20554","uid":20554,"login":"jennyss","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-11-29T19:50:38.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/012/pDLMM9YOHOO7D.JPG"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20554"},"ModerationData:moderation_data:78826":{"__typename":"ModerationData","id":"moderation_data:78826","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78826":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20554"},"id":"message:78826","revisionNum":1,"uid":78826,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78826"},"body":"Dear @Pip47 ,
from jennyss in Western NSW","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"54","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-08-17T13:38:24.000-07:00","lastPublishTime":"2019-08-17T13:38:24.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78826","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"405","rawBody":"Dear @Pip47 , from jennyss in Western NSW","images":{"__typename":"AssociatedImageConnection","edges":[{"__typename":"AssociatedImageEdge","cursor":"MjUuMnwyLjF8b3wyNXxfTlZffDE","node":{"__ref":"AssociatedImage:{\"url\":\"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/images/bS03ODgyNi0zODNpODQ3QkI0MTdCN0Y0OThEMw?revision=1\"}"}}],"totalCount":1,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78826_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:78827":{"__typename":"ModerationData","id":"moderation_data:78827","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78827":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20627"},"id":"message:78827","revisionNum":1,"uid":78827,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78827"},"body":"@Pip47 Thinking of you & wishing you love & strength for your surgery tomorrow. You must be feeling all sorts of emotions but this is the BIG box to get ticked off & getting that disease out of your body! Then you can concentrate on whatever treatment may follow, if any at all!! let us know how you get on & fingers crossed for an easy road ahead & a great recovery. xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"215","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-09-01T17:11:31.000-07:00","lastPublishTime":"2019-09-01T17:11:31.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78827","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"390","rawBody":"@Pip47 Thinking of you & wishing you love & strength for your surgery tomorrow. You must be feeling all sorts of emotions but this is the BIG box to get ticked off & getting that disease out of your body! Then you can concentrate on whatever treatment may follow, if any at all!! let us know how you get on & fingers crossed for an easy road ahead & a great recovery. xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78827_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:78828":{"__typename":"ModerationData","id":"moderation_data:78828","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78828":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22090"},"id":"message:78828","revisionNum":1,"uid":78828,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78828"},"body":"@Anne65 I think I must have done something wrong in a former life. Had my operation last Tuesday all went well. Wednesday received notification that my Bowel test was positive, Thursday my Dr took a swab and thinks I have Shingles, I am still waiting for result to come back from Pathology. The lesion is just above where the cut is on my breast. I have it covered so the germ does not travel. Will get the results from op on Monday the Tuesday I'm having a colonoscopy to see what happened in that area. Keeping positive though I nearly broke up when one of my Doctors patted me on the shoulder, I know he ment well but sometimes it gets too much.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-09-06T15:09:15.000-07:00","lastPublishTime":"2019-09-06T15:09:15.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78828","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"648","rawBody":"@Anne65 I think I must have done something wrong in a former life. Had my operation last Tuesday all went well. Wednesday received notification that my Bowel test was positive, Thursday my Dr took a swab and thinks I have Shingles, I am still waiting for result to come back from Pathology. The lesion is just above where the cut is on my breast. I have it covered so the germ does not travel. Will get the results from op on Monday the Tuesday I'm having a colonoscopy to see what happened in that area. Keeping positive though I nearly broke up when one of my Doctors patted me on the shoulder, I know he ment well but sometimes it gets too much.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78828_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:78829":{"__typename":"ModerationData","id":"moderation_data:78829","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78829":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:78829","revisionNum":1,"uid":78829,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78829"},"body":"Bloody Hell - that's a bit tough, @Pip47 - Shingles can be very painful - so I hope they can control that discomfort for you. An elderly aunt who had it, had a Compounding Chemist make up a mix of aspirin that was liquified & mixed into an 'alcohol base' that was gently dabbed onto the rash - and it helped her bigtime! She was 90 at the time.
The colonoscopy is 'relatively easy' (tho the prep leading up to it is rather 'ordinary'!) I had one just 2 weeks ago after a bit of a scare (my results from the Gov one 4 weeks previous had been clear - but I don't always trust these annual tests any more!) - luckily all was good from mine! Just piles & diverticulitis!
All the best with your pathology results - then you'll have a good idea of your plan xxxx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-09-07T01:33:38.000-07:00","lastPublishTime":"2019-09-07T01:33:38.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78829","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"817","rawBody":"Bloody Hell - that's a bit tough, @Pip47 - Shingles can be very painful - so I hope they can control that discomfort for you. An elderly aunt who had it, had a Compounding Chemist make up a mix of aspirin that was liquified & mixed into an 'alcohol base' that was gently dabbed onto the rash - and it helped her bigtime! She was 90 at the time.
The colonoscopy is 'relatively easy' (tho the prep leading up to it is rather 'ordinary'!) I had one just 2 weeks ago after a bit of a scare (my results from the Gov one 4 weeks previous had been clear - but I don't always trust these annual tests any more!) - luckily all was good from mine! Just piles & diverticulitis!
All the best with your pathology results - then you'll have a good idea of your plan xxxx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78829_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:78830":{"__typename":"ModerationData","id":"moderation_data:78830","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78830":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22090"},"id":"message:78830","revisionNum":1,"uid":78830,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78830"},"body":"I start the prep tomorrow I need to know answer in case I have to start radiation on my breast. Thanks for your help.😀","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"119","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-09-07T01:49:27.000-07:00","lastPublishTime":"2019-09-07T01:49:27.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78830","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"119","rawBody":"I start the prep tomorrow I need to know answer in case I have to start radiation on my breast. Thanks for your help.😀","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78830_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:78831":{"__typename":"ModerationData","id":"moderation_data:78831","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78831":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:78831","revisionNum":1,"uid":78831,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78831"},"body":"Sending PM, @Pip47 re colonoscopy
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"37","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-09-07T02:43:04.000-07:00","lastPublishTime":"2019-09-07T02:43:04.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78831","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"45","rawBody":"Sending PM, @Pip47 re colonoscopy
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78831_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:20700":{"__typename":"User","id":"user:20700","uid":20700,"login":"kmakm","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-02-09T07:37:32.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/723/pT0EUNG97M543.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20700"},"ModerationData:moderation_data:78832":{"__typename":"ModerationData","id":"moderation_data:78832","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78832":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20700"},"id":"message:78832","revisionNum":1,"uid":78832,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78832"},"body":"Oh @Pip47, it sure does! Big hug lovely, K xox","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"46","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-09-07T03:55:53.000-07:00","lastPublishTime":"2019-09-07T03:55:53.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78832","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"46","rawBody":"Oh @Pip47, it sure does! Big hug lovely, K xox","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:78832_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:78833":{"__typename":"ModerationData","id":"moderation_data:78833","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78833":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20627"},"id":"message:78833","revisionNum":1,"uid":78833,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78833"},"body":"@Pip47 Oh dear, this was not supposed to happen!! You must not know which way to turn with so many tests/results coming your way. Hard to focus on one thing when you have so much going on. lets get this colonoscopy out of the way & if they do find something, then you can get on to that ASAP. As @arpie said, the prep is worse than the procedure & think of it as a good way to lose a couple of pounds & cleanse your system!! It is good that they said your BC surgery went well, so thats a positive so now its just the waiting game for the results. Try not to worry as you cant change that result. The more stress you put on your body at the moment is only going to make things worse so try to focus on what you do know & not what may happen. Such bad luck about the shingles too but hopefully the doctors will have a management plan for you to ease the pain. Many of us, including me, have had other diseases/problems/recurring symptoms arise following our cancer diagnosis. It seems one thing can effect the other so we are all now forever being monitored/blood tested to make sure we dont develop anything else. Its like a revolving door!! I wonder how any of us have time to work with all the medical appts & checkups we are having now!! Try to stay strong & keep ticking off those boxes. let us know how you get on tomorrow & the pathology results of your surgery. Fingers crossed for clear margins with minimal treatment & a clear colonoscopy! Love & hugs xx
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