All the best lovely. xoxoxo","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:99304"},"author":{"__typename":"User","login":"kezmusc"},"postTime":"2020-06-18T21:58:34.000-07:00","kudosSumWeight":8}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":99306,"body":"Ductal carcinoma insitu means cancer in the ducts. It has not yet infiltrated but at any time it can and become an enormous untreatable. It is ore invasive but not pre cancer. It is cancer. So many woman have it removed and find it has started to infiltrate. I went through chemo with women who had local infiltrating recurrence from dcis lumpetomy. They have since had to endure chemo and bilateral mastectomy. You considered and made your best choice based on information. Trust in this. X","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:99304"},"author":{"__typename":"User","login":"primek"},"postTime":"2020-06-18T06:06:50.000-07:00","kudosSumWeight":7}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":99311,"body":"Dear @averi i didn’t have your problem - I had a clear, aggressive tumour with what looked like a lot of affected lymph nodes. Turned out only one node was malignant but 17 went, along with my breast, with some long term side effects. Why? Because it was too risky to leave them there. Just as it was too risky to leave your breast. Absolutely no-one is expected to feel grateful for anything to do with cancer. But my own experience says you may, further down the track, feel lucky that you got the early warning light. You are still you. A little battered maybe but not diminished. Grieve the loss by all means but remember grief is a step on the road (to acceptance) not the destination. So much life still to live - look forward to it. Best wishes. ","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:99304"},"author":{"__typename":"User","login":"Afraser"},"postTime":"2020-06-18T22:49:26.000-07:00","kudosSumWeight":7}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":99319,"body":"
Thank you @Rabbit2020 for your story and what a journey you have been on. I am so glad to hear there are other women who feel the same way. I don’t feel so much alone now.
@NewBoobsPLS will you please thank your dear friend @Elle_V92 for me? It was her question which had been heard by many that prompted me to finally join this network which I was encouraged to do but hesitated. Now that I have I think it’s one of the best things I did for my breast cancerjourney.
Thank you everybody including @Jwrenn and @Sister. I feel you all have given me the validation that I needed so much. Besides this war of words part, I do understand it is not their intent to make me feel what I had been through any less significant and I do feel very lucky to have found my medical team (another story there) as they have been wonderful in every other aspect and I am confident in my oncoplastic surgeon with my reconstruction which is now back on track. Hopefully I’ll be on my way to heal soon, physically and mentally.
The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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struggling with the word pre-cancer after DCIS mastectomy","id":"message:99304","revisionNum":1,"repliesCount":20,"author":{"__ref":"User:user:22757"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:99304"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:99304"},"body":"I was diagnosed with low grade DCIS in my right breast in Nov 2019 and had a mastectomy in Jan 2020. I am 38 years old. I saw 2 specialist and both recommended a mastectomy because I am small breasted. Had an expander put in, awaiting for reconstructive surgery which has been postponed due to covid19. I am now clear without needing further treatment. My surgeon/breast care nurse/GP all refer to DCIS as pre-cancer and I struggle with this immensely because I need to feel that the choice I had made was justified and worth it. I lost my breast, it may be small but it was mine. This is not just about losing my womanhood, I felt I lost a part of me that made up the person I know myself to be. Because of this word I don't feel like I have saved my life, I didn't even have cancer. I know I should be grateful that I didn't have to go through radiation or chemotherapy or take any meds but to me a mastectomy is a very drastic treatment. How do you even explain it to other people? Nobody knows what DCIS is unless they have it, do I say I had pre-cancer? Is it wrong to say I had breast cancer? 5 months on and this is still keeping me from moving forward.
At yesterday's Psychological Impacts webcast, someone asked Dr Tottman this very question and I was basically yelling at the screen \"this is exactly how I feel!\" So I now know there are others who are just like me. I hope to hear your stories and thoughts about how you are dealing with this particular issue.
","body@stringLength":"1511","rawBody":"I was diagnosed with low grade DCIS in my right breast in Nov 2019 and had a mastectomy in Jan 2020. I am 38 years old. I saw 2 specialist and both recommended a mastectomy because I am small breasted. Had an expander put in, awaiting for reconstructive surgery which has been postponed due to covid19. I am now clear without needing further treatment. My surgeon/breast care nurse/GP all refer to DCIS as pre-cancer and I struggle with this immensely because I need to feel that the choice I had made was justified and worth it. I lost my breast, it may be small but it was mine. This is not just about losing my womanhood, I felt I lost a part of me that made up the person I know myself to be. Because of this word I don't feel like I have saved my life, I didn't even have cancer. I know I should be grateful that I didn't have to go through radiation or chemotherapy or take any meds but to me a mastectomy is a very drastic treatment. How do you even explain it to other people? Nobody knows what DCIS is unless they have it, do I say I had pre-cancer? Is it wrong to say I had breast cancer? 5 months on and this is still keeping me from moving forward.
At yesterday's Psychological Impacts webcast, someone asked Dr Tottman this very question and I was basically yelling at the screen \"this is exactly how I feel!\" So I now know there are others who are just like me. I hope to hear your stories and thoughts about how you are dealing with this particular issue.
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I am 38 years old. 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Multiple surgeries in itself are exhausting. I was hesitant to join and post my story but I'm glad I did because there's really no support out there like we have in here.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":2,"repliesCount":0,"postTime":"2020-06-23T05:23:00.000-07:00","lastPublishTime":"2020-06-23T05:23:00.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99314","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"208","rawBody":"Thank you @Ahnn it sure is hard. Multiple surgeries in itself are exhausting. I was hesitant to join and post my story but I'm glad I did because there's really no support out there like we have in here.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:99314_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:22103":{"__typename":"User","id":"user:22103","uid":22103,"login":"Ahnn","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-08-13T21:26:12.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/XM3G6XLHD9WZ/p9119CZHISFEO.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22103"},"ModerationData:moderation_data:99313":{"__typename":"ModerationData","id":"moderation_data:99313","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:99313":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22103"},"id":"message:99313","revisionNum":1,"uid":99313,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:99304"},"conversation":{"__ref":"Conversation:conversation:99304"},"subject":"Re: Still struggling with the word pre-cancer after DCIS mastectomy","moderationData":{"__ref":"ModerationData:moderation_data:99313"},"body":"Best wishes @averi and trust your surgeons. DCIS is as important as any other cancer. If ignored it continues to develop, my diagnosis was a shock to me and my GP. no indications no symptoms and after the lumpectomy on both breasts showed no clear margins and an 8mm invasive tumour, double mastectomy was completed. It's very hard to deal with the shock and impact but there's always someone online to talk to here.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":3,"repliesCount":0,"postTime":"2020-06-22T05:54:05.000-07:00","lastPublishTime":"2020-06-22T05:54:05.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99313","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"428","rawBody":"Best wishes @averi and trust your surgeons. DCIS is as important as any other cancer. If ignored it continues to develop, my diagnosis was a shock to me and my GP. no indications no symptoms and after the lumpectomy on both breasts showed no clear margins and an 8mm invasive tumour, double mastectomy was completed. It's very hard to deal with the shock and impact but there's always someone online to talk to here.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:99313_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:99312":{"__typename":"ModerationData","id":"moderation_data:99312","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:99312":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22757"},"id":"message:99312","revisionNum":1,"uid":99312,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:99304"},"conversation":{"__ref":"Conversation:conversation:99304"},"subject":"Re: Still struggling with the word pre-cancer after DCIS mastectomy","moderationData":{"__ref":"ModerationData:moderation_data:99312"},"body":"Thank you @brightspace and @Poodle_Lady55 for sharing your stories, it really pulled at my heartstrings and made me teary what you are both facing. All the best to you both. \"Bright in hope\" I love that
And to @primek, @Dory65, @iserbrown, @kezmusc and @Afraser thank you so much for your thoughts and advice, it has brought me much comfort.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":2,"repliesCount":0,"postTime":"2020-06-19T03:14:20.000-07:00","lastPublishTime":"2020-06-19T03:14:20.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99312","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"381","rawBody":"Thank you @brightspace and @Poodle_Lady55 for sharing your stories, it really pulled at my heartstrings and made me teary what you are both facing. All the best to you both. \"Bright in hope\" I love that
And to @primek, @Dory65, @iserbrown, @kezmusc and @Afraser thank you so much for your thoughts and advice, it has brought me much comfort.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:99312_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:16650":{"__typename":"User","id":"user:16650","uid":16650,"login":"Afraser","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-03-24T19:34:07.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/595/pF56ENKPV9PRD.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:16650"},"ModerationData:moderation_data:99311":{"__typename":"ModerationData","id":"moderation_data:99311","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:99311":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:16650"},"id":"message:99311","revisionNum":1,"uid":99311,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:99304"},"conversation":{"__ref":"Conversation:conversation:99304"},"subject":"Re: Still struggling with the word pre-cancer after DCIS mastectomy","moderationData":{"__ref":"ModerationData:moderation_data:99311"},"body":"Dear @averi i didn’t have your problem - I had a clear, aggressive tumour with what looked like a lot of affected lymph nodes. Turned out only one node was malignant but 17 went, along with my breast, with some long term side effects. Why? Because it was too risky to leave them there. Just as it was too risky to leave your breast. Absolutely no-one is expected to feel grateful for anything to do with cancer. But my own experience says you may, further down the track, feel lucky that you got the early warning light. You are still you. A little battered maybe but not diminished. Grieve the loss by all means but remember grief is a step on the road (to acceptance) not the destination. So much life still to live - look forward to it. Best wishes. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":7,"repliesCount":0,"postTime":"2020-06-18T22:49:26.000-07:00","lastPublishTime":"2020-06-18T22:49:26.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99311","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"764","rawBody":"Dear @averi i didn’t have your problem - I had a clear, aggressive tumour with what looked like a lot of affected lymph nodes. Turned out only one node was malignant but 17 went, along with my breast, with some long term side effects. Why? Because it was too risky to leave them there. Just as it was too risky to leave your breast. Absolutely no-one is expected to feel grateful for anything to do with cancer. But my own experience says you may, further down the track, feel lucky that you got the early warning light. You are still you. A little battered maybe but not diminished. Grieve the loss by all means but remember grief is a step on the road (to acceptance) not the destination. So much life still to live - look forward to it. Best wishes. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:99311_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:20011":{"__typename":"User","id":"user:20011","uid":20011,"login":"kezmusc","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-05-09T23:07:29.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/8Q1BW2855FVY/pC3XTI1AJ7NYT.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20011"},"ModerationData:moderation_data:99310":{"__typename":"ModerationData","id":"moderation_data:99310","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:99310":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20011"},"id":"message:99310","revisionNum":1,"uid":99310,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:99304"},"conversation":{"__ref":"Conversation:conversation:99304"},"subject":"Re: Still struggling with the word pre-cancer after DCIS mastectomy","moderationData":{"__ref":"ModerationData:moderation_data:99310"},"body":"hmmm...can't say too much but I overheard a conversation between a surgeon and a reg not too long ago. They were discussing calling a lady back for better margins on a dcis lumpectomy case. Surgeon wanted the person back sooner rather than later. Reg questioned surgeon regarding the urgency (during covid when non urgent cases were put on hold). The answer came back as \"never underestimate DCIS. It is not to be trusted... ever\" All the best lovely. xoxoxo","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":8,"repliesCount":0,"postTime":"2020-06-18T21:58:34.000-07:00","lastPublishTime":"2020-06-18T21:58:34.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99310","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"499","rawBody":"hmmm...can't say too much but I overheard a conversation between a surgeon and a reg not too long ago. They were discussing calling a lady back for better margins on a dcis lumpectomy case. Surgeon wanted the person back sooner rather than later. Reg questioned surgeon regarding the urgency (during covid when non urgent cases were put on hold). The answer came back as \"never underestimate DCIS. It is not to be trusted... ever\" All the best lovely. xoxoxo","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:99310_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:22765":{"__typename":"User","id":"user:22765","uid":22765,"login":"Poodle_Lady55","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-06-07T18:33:34.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/VYPSD76KXF6Z/pMQKC8AUDOLQI.JPG"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22765"},"ModerationData:moderation_data:99309":{"__typename":"ModerationData","id":"moderation_data:99309","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:99309":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22765"},"id":"message:99309","revisionNum":1,"uid":99309,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:99304"},"conversation":{"__ref":"Conversation:conversation:99304"},"subject":"Re: Still struggling with the word pre-cancer after DCIS mastectomy","moderationData":{"__ref":"ModerationData:moderation_data:99309"},"body":"Hi averi I totally agree with you and don't understand why something which has the word \"carcinoma\" in it is described as pre-cancerous. When I was told I had DCIS by the surgeon and it was \"precanerous\" I went away from the hospital appointment recently really relieved. I now need to have a mastectomy as after two lumpectomies there are \"no clear margins\" and this was \"unexpected\". The final straw came when my poor husband who had come to my appointments with me bless him, said \"at least it's pre-canerous\" and not really feeling in the mood for this I replied \"Do you think I would be having a double mastectomy if this was pre-cancerous or words to this effect... I too was pleased when this issue was brought up on the Webcast the other night. As far as I'm concerned Breast Cancer is Breast Cancer whatever they decide to call it and if it's serious enough to lose a breast, its serious. Be glad you got rid of the breast, hard I know as I have recently shed many tears over having to lose both of mine soon but they have become a threat to my future and as far as I am concerned they have to go. Take care and all the best with your reconstructive surgery and healing x","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":8,"repliesCount":0,"postTime":"2020-06-18T19:56:46.000-07:00","lastPublishTime":"2020-06-18T19:56:46.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99309","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"1222","rawBody":"Hi averi I totally agree with you and don't understand why something which has the word \"carcinoma\" in it is described as pre-cancerous. When I was told I had DCIS by the surgeon and it was \"precanerous\" I went away from the hospital appointment recently really relieved. I now need to have a mastectomy as after two lumpectomies there are \"no clear margins\" and this was \"unexpected\". The final straw came when my poor husband who had come to my appointments with me bless him, said \"at least it's pre-canerous\" and not really feeling in the mood for this I replied \"Do you think I would be having a double mastectomy if this was pre-cancerous or words to this effect... I too was pleased when this issue was brought up on the Webcast the other night. As far as I'm concerned Breast Cancer is Breast Cancer whatever they decide to call it and if it's serious enough to lose a breast, its serious. Be glad you got rid of the breast, hard I know as I have recently shed many tears over having to lose both of mine soon but they have become a threat to my future and as far as I am concerned they have to go. Take care and all the best with your reconstructive surgery and healing x","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:99309_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:17306":{"__typename":"User","id":"user:17306","uid":17306,"login":"iserbrown","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-07-12T16:59:09.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/images/dS0xNzMwNi1pSjI3dGM?image-coordinates=29%2C0%2C562%2C532"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:17306"},"ModerationData:moderation_data:99308":{"__typename":"ModerationData","id":"moderation_data:99308","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:99308":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:17306"},"id":"message:99308","revisionNum":1,"uid":99308,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:99304"},"conversation":{"__ref":"Conversation:conversation:99304"},"subject":"Re: Still struggling with the word pre-cancer after DCIS mastectomy","moderationData":{"__ref":"ModerationData:moderation_data:99308"},"body":"@averi
Not sure if you have seen this information from the BCNA website but hopefully it will help you to better understand your diagnosis and as @primek said, trust in this
Not sure if you have seen this information from the BCNA website but hopefully it will help you to better understand your diagnosis and as @primek said, trust in this
The link on DCIS also has the link to the book that @dory65 referred to
Take care and best wishes
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:99308_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:22343":{"__typename":"User","id":"user:22343","uid":22343,"login":"Dory65","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-12-01T21:08:53.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-3.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22343"},"ModerationData:moderation_data:99307":{"__typename":"ModerationData","id":"moderation_data:99307","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:99307":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22343"},"id":"message:99307","revisionNum":1,"uid":99307,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:99304"},"conversation":{"__ref":"Conversation:conversation:99304"},"subject":"Re: Still struggling with the word pre-cancer after DCIS mastectomy","moderationData":{"__ref":"ModerationData:moderation_data:99307"},"body":"Hi @averi, It's a big deal, whatever you call it. Glad you found it early. Professor John Boyages books might interest you. http://www.breastcancertakingcontrol.com.au/
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"177","kudosSumWeight":5,"repliesCount":0,"postTime":"2020-06-18T15:12:25.000-07:00","lastPublishTime":"2020-06-18T15:12:25.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99307","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"337","rawBody":"Hi @averi, It's a big deal, whatever you call it. Glad you found it early. Professor John Boyages books might interest you. http://www.breastcancertakingcontrol.com.au/
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It has not yet infiltrated but at any time it can and become an enormous untreatable. It is ore invasive but not pre cancer. It is cancer. So many woman have it removed and find it has started to infiltrate. I went through chemo with women who had local infiltrating recurrence from dcis lumpetomy. They have since had to endure chemo and bilateral mastectomy. You considered and made your best choice based on information. Trust in this. X","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":7,"repliesCount":0,"postTime":"2020-06-18T06:06:50.000-07:00","lastPublishTime":"2020-06-18T06:06:50.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99306","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"502","rawBody":"Ductal carcinoma insitu means cancer in the ducts. It has not yet infiltrated but at any time it can and become an enormous untreatable. It is ore invasive but not pre cancer. It is cancer. So many woman have it removed and find it has started to infiltrate. I went through chemo with women who had local infiltrating recurrence from dcis lumpetomy. They have since had to endure chemo and bilateral mastectomy. You considered and made your best choice based on information. Trust in this. 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We are advised that if a mastectomy is given and nodes are not involved we dont need hormone treatment or chemo For me I also had comedo necrosis on the path report..I feel this was one of the factor that contrbuted to the dcis developing into MBC Advice is to be vigilant Bright in hope
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"218","kudosSumWeight":5,"repliesCount":0,"postTime":"2020-06-18T05:13:46.000-07:00","lastPublishTime":"2020-06-18T05:13:46.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:99304/message:99305","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"685","rawBody":"Hi Averi Thankyou for posting DCIS should never be under estimated For me DCIS is Breast cancer as for some in rare occurances it can reappear as Metastatic cancer We are told that it is stage O and not a true breast cancer..apparently does not have Her2+ But it is the precursor to Breast cancer IDC..
We are advised that if a mastectomy is given and nodes are not involved we dont need hormone treatment or chemo For me I also had comedo necrosis on the path report..I feel this was one of the factor that contrbuted to the dcis developing into MBC Advice is to be vigilant Bright in hope
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