Forum Discussion
SuzyG
9 years agoMember
Wondering if this will ever be over
Not a good day today. I had a lumpectomy on Monday and went back to see the surgeon today only to find out that one of the margins was not great enough so am now scheduled for another surgery on the 5th January. Was so hoping that at least this part of the treatment was over as I have already had 6 months of chemo. Still have to have radiation as well but thought the worst of the treatment would be done. I just want my life back - I am so sick of the constant doctors appointments and it always feels like one step forward 10 steps back again. So not a very Merry Christmas for me. Sorry I know I am feeling sorry for myself but sometimes it just gets too much.
70 Replies
- SuzyGMemberThanks ladies for the info - good to hear and I will try not to worry about the side affects. Just have to take it one day at a time I guess and see what happens next.
- AfraserMemberHi SusyG
I've been on Femara for nearly four years. It has had an impact on my bone density, luckily mine was very good before I started but no other side effect that we (medicos or me) are aware of. One more year to go! - primekMemberI had tingling in my hands due to bra compression on nerves plus some bulging neck discs (all related to heavy boobs....probkem now solved) . This was years before cancer diagnosis. I still need to be careful with posture, backpacks, shoulder bags and neck position so it could well be related to your position on the rads table. Hope things improve soon. Kath x
- GlemmisMemberHi SuzyG, I finished 4 x AC & 12 Taxol three weeks ago & about to start 25 rounds of radiotherapy on Monday. I have already started on Femara (last Monday) & so far I don't feel any different. My bone density test was a bit low for my spine but everywhere else was good. I do weight bearing exercise to try & minimise further bone loss. Don't worry too much about side affects, not everyone has them & your exercise plan will help if you do.
- SuzyGMemberHi again ladies. Thought I'd let you know that the tingling in the fingers has resolved itself. They seem to think it was caused by the Taxol even though I had my last dose 30th November. Only have 7 more radiation treatments to go and it is going very well. I am pretty red and tender but have been walking 4kms per day and swimming 1km 3 times per week so trying to stay as fit as I can. I do get tired but doesn't everyone after a few glasses of red. LOL. I can now see light at the end of this and can't wait to be finished with the radiation. My next question to you all is - does anyone have experience with Letrozole (Femara). That is what I go onto next. I have already started taking Vitamin D even though they said my levels were good but the bone density showed that my bones are thinning before I even start this drug. That worries me as well as the talk of aching joints. Any thoughts or info would be appreciated.
- melclarityMemberHey Suzy!!! That sounds like a plan, great! yes speak to your Oncologist they will be able to shed some light hopefully! so annoying! Im doing ok! ummm sort of LOL I was going to pop a post up eeeeeek might do so now...rather than hijack this thread LOL x
- SuzyGMemberThanks Mel have been wondering how you are doing. Thanks for the info - I see the oncologist week after next so will mention it to her as well. So how are you going?
- melclarityMemberHey Suzy! I had rads at first diagnosis, definitely didnt have tingling in fingers at all. That is a definite sign of neuropathy from Taxol and it can come a long time after finishing. Im 14 months post chemo and saw my Oncologist last week and said I had weird tingling in my feet and itchy! he said TAXOL even this far along as its the nerves regenerating, it has settled to be honest. It does sound to be nerve and yes you are right could even be the way you are laying on the bed and youre pinching a nerve somewhere in your back. Radiation I wouldnt think would cause it however. Hope it settles. Hugs Melinda xo
- AfraserMemberAh, good you only had a slight reaction from Taxol, but sorry can't advise about the radiation as I never had any. Bit mysterious so monitoring sounds the way to go. Hope it clears up very soon.
- SuzyGMemberHi Afraser thanks for the post but I finished the Taxol at the end of November and only had slight tingling in my thumbs. I am now having radiation and they are thinking that it could be just from the way I have to lay on the bed with my arms over my head. They are going to monitor it and I may have to see physio. Its weird though as I exercise everyday and swim 3 times per week so not sure what is going on.