Very confused
It is interesting reading everyone's journey's and trying to understand what's ahead. I tried going prepared to appointments with questions I found online but I'm always feeling pushed out the door a...
Forum Discussion
HiHiggsy I am so sorry about the state of uncertainty you are experiencing- that’s unhelpful for you and your preparation for treatment. My breast cancer type was different to yours so the chemotherapy drugs and their side effects might vary.
Could you ask the doctor’s rooms and reception team to check and clarify for you, or possibly obtain a referral to a McGrath Foundation nurse to help you advocate (for absolute clarity)?
I was pleased with my GP’s foresight - he suggested I see him after my appointment with the surgeon and oncologist, in case I had questions that I was unsure about. Might you be able to chat with your GP so you can get clarity?
With side effects, it’s interesting how there’s a lot of variation in how different people experience side effects of chemo even if they’re getting the same results.
Having said that my impression is most people who have side effects (maybe jet lag type tiredness, dehydration, loss of appetite, gastro or other conditions) experience it as a peak and trough - with more heightened side effects coming upon us about 2-3 days after chemo (that might continue for five or six days) with these effects sometimes reducing by the middle week, and by the time you feel “normal” it’s usually time for the next dose. Work wise I decided to reduce my hours and worked part-time and worked my hours mid-morning to early afternoon.
Sending you all the best wishes for the information you need.