Keep asking everyone in your treatment team until you get some adequate answers or a referral to someone that can provide the support you need with this.
I took the 'wait & see' approach recently in regards to swelling & pain I was experiencing in my breast after having had surgery a few weeks ago. It turned out to be a seroma which ended up bursting through my surgery scar & as a result I spent the long weekend in hospital.
Don't let this go until you get some answers that you are satisfied with.
Wishing you all the best
Mel xxx