Forum Discussion

sandramj's avatar
sandramj
Member
8 years ago

Side effects and percentages not disclosed RE radiation

I feel annoyed after going back to breast surgeon yesterday with typical symptoms for breast cancer, inverted nipple, thickening behind nipple and spreading under and outwards & unusual appearance in hair follicles and an abnormal green yellow colour of my nipple. Add this to breast being sore, red and hot. I can’t raise my arm full length and ribs are very sore. 
He tells me it’s fine it’s the effects of radiation,
ok.  I HAD to have radiation but chose not to have chemo as the side effects and percentage chance of damages vs the percentage of cure was 1.5-2%. 
But the percentage gain of the cancer not returning was approx 10%+! BUT when I spoke to people with bc they talked about side effects of radiation like neuropathy, lymphodeama & then read this article and I’m incensed I wasn’t given these numbers and seriousness of the side effects.
the percentages I was given were the chance of this cancer returning in ten years. The “radiation-induced second cancers” were never mentioned 
This ONE paragraph blew me away:-
Radiation-induced second cancers
According to a long-term study of more than 600,000 cancer survivors by U.S. National Cancer Institute researchers, an estimated eight percent of second cancers were attributable to radiation treatment for the original cancer.
It was only a 10% difference for BUT an 8% chance against second cancer AND no mention of side effects being so serious and high percentages. Grrrrrr 
http://www.thebreastcaresite.com/after-surgery/recognizing-possible-long-term-side-effects-radiation-therapy/
  • We have the right to KNOW the facts - pros & cons for ALL options for treatment.  I’m furious I wasn’t given this information. thete needs to be a printed out sheet given to all newly diagnosed. With the percentages and the pros and cons. List of practitioners in our area and options for that too. Oh there is much to be done. 
  • HI @sandramj
    How right you are !  We are not told about the radiation and we are not told of the high percentage of radiation used in the wonderful new more intensive mammograms.
    We are in the hands of our medical team and whilst we can sometimes find the strength to say ''no'' to some treatments we still go ahead with others - and even really want those annual tests to show we are OK.  Silly, eh ?
    Summer   :)
  • Am I allowed to post a photo of the changes in the effected breast to ask others if they know more?