Forum Discussion
tan_g
13 years agoMember
Scared !!!
Hi, I have just been diagnosed with Stage 1 Breast Cancer. Im so scared, wanting so many questions answered.....
Does anyone know if I'll need Radiation or Chemo? How will it effect my husband and my children?
Id really love to talk to someone...x
36 Replies
And it will continue to get better as you go along. When I had my first appointment with the surgeon she had organised for me to see a breast care nurse at the same time. They offer great support for you along the way and I believe that you can contact them whenever the need arises. I am in the private system though and don't know if this service is available in the public system. Someone else on this blog may know. If they are not readily available in the public system you could check and see if there is a McGrath Foundation breast care nurse available in your area. The website link for the foundation is:-
http://www.mcgrathfoundation.com.au/Resources/NationalBreastCareNurseDirectory/Nurses.aspx?type=gp
They will also be able to give you some advice on how to tell your children about what is going on.
There will most likely be a gap of around 8 weeks between your surgery and the commencement of the radiation treatment which gives time for the surgery wound to heal properly. I would be more than happy to meet you for a coffee and a chat or even go along with you to your first few appointments if you would like. My mobile number is 0413510991 and I live in Bull Creek.
- dawngirlMember
Glad to hear you've turned the corner and feel better about getting ready to tackle this. :-). Because you will. And you will surprise yourself how well you'll do.
I can't really advise you on what to tell your children, as I don't have any unfortunately, but for what it's worth, I would perhaps wait until after you meet with your surgeon, have all the information you need, know what's ahead for you with treatment Iif anything beyond surgey), and then you can look them them in the eye, tell them what you need to and be able to answer the questions they have.
I know chemotherapy has been a big concern for you, but it is not very common for this to be needed when BC is diagnosed at stage 1. Similarly radiation is not usual with a mastectomy unless more than three lymph nodes are involved, which is unlikely to be the case with a stage 1 diagnosis.
Did they give you any more information about the type? They have definitely caught it early and that is something to celebrate when the fear hits, ok?
Hope you have something lovely planned with your family for the weekend.
x
- dawngirlMember
Glad to hear you've turned the corner and feel better about getting ready to tackle this. :-). Because you will. And you will surprise yourself how well you'll do.
I can't really advise you on what to tell your children, as I don't have any unfortunately, but for what it's worth, I would perhaps wait until after you meet with your surgeon, have all the information you need, know what's ahead for you with treatment Iif anything beyond surgey), and then you can look them them in the eye, tell them what you need to and be able to answer the questions they have.
I know chemotherapy has been a big concern for you, but it is not very common for this to be needed when BC is diagnosed at stage 1. Similarly radiation is not usual with a mastectomy unless more than three lymph nodes are involved, which is unlikely to be the case with a stage 1 diagnosis.
Did they give you any more information about the type? They have definitely caught it early and that is something to celebrate when the fear hits, ok?
Hope you have something lovely planned with your family for the weekend.
x
- tan_gMember
Hi again everyone.
Happy to report that I am feeling good today, ready to tackle this thing head on. I know that Im going to be okay, just have to tackle the journey as well as i can.
I think the initial shock just takes a few days to go away or settle down. But now I'm ready for whatever life throws at me.
I have an appt with my surgeon on Wed next week, Ill know more then i guess. I am in country W.A. Im guessing most of you are in Perth? I think Im coming to Perth for my surgery as if Radiation is needed I will have to come to Perth for that too.
My children are 6 & 9.....Does anyone have any advice for what I should be telling them. My daughter is 9, and very switched on, they have already sensed that something isnt right, I just dont know how much to tell them..
xx
- Katy72MemberIf you need more support than we can give you, I would suggest using some of these links. They will have more facts to help you. We can only give you our experience. http://www.cancerwa.asn.au/patients/support-and-services/cancer-counselling/ Remember to remain positive, be a strong role model for your children and husband. They will also be learning life lessons through this journey. My daughter has taken everything in her stride... Just like me. They love you because of who you are and that hasn't changed. Xxx
- tan_gMember
Hi
I just wish i knew more, Im dying inside not knowing if im going to need chemo or radiation. Ive never been so scared in my whole life...
What is this horrible thing going to do to my children? My husband?
x
- Katy72Member
I had a bilateral mastectomy and have had to have chemo because the cells found were invasive cancer (grade 4). It will all depend on your individual cancer. You may not find out until after the mastectomy and biopsy results. Ask your doctor for their opinion. xxx
- tan_gMember
Thank-you so much..
My fear of Chemo is foremost on my mind, probably sounds crazy. I just dont want to get sick, lose my hair etc etc...
Opting for a mascectomy (bi-lateral). Anyone have any advice on this??
Do you all think I will have to have Chemo?
x
- playwithhairMember
Hi Tan!
It really can be a bit scary when you get such upsetting news, but the supportive gals here at BCNA are SO amazing - Being able to hear everyone else's stories, both sad and funny, definitely help make it a bit easier... You're far from alone in all of this, and it sounds like you have a strong and supportive network of people around you which will help so much too!It's going to be scary, sure, but if you're strong and you have people who love you by your side, you're going to pull through and come out the other side of this... Catching it so early means you get the very best results, which is definitely a huge positive, and knowing people in your family have done exactly the same thing means you have people who know you, and how you feel, and what to do to make you feel better as best they can.
Please keep us updated on your progress, we'll all be thinking about you and if there is anything we can help with - we're always happy to do so. Be sure to ask your doctor anything you might be worried about too, they are the professionals and I am sure they would welcome the questions - every bit that helps put your mind at ease is a little bit more time where you can rest and not worry. :)
*HUG HUG HUG* Be brave and strong, you definitely have it in you! :)
Tim I was diagnosed in September last year and my initial reaction was how to explain to my husband and two adult sons that I had breast cancer but that it was all going to be ok due to early detection. The fact that I had worked a stint in the Breastscreen Perth office a number of years ago meant that I was comfortable with the knowledge I had gained on the subject and also with the expertise of the medical fraternity who would be involved in my "journey". I decided to completely avoid the temptation of surfing the net on the subject and to be honest I haven't even bothered to read much of the material supplied to me thus far. In other words, I am just going with the flow!
To this point in time I have had two breast conserving surgeries with the second involving sentinel node biopsy during the procedure which showed no spread. My specialist decided I should start on a course of Tamoxifen to put balance into my hormone situation and this I commenced two months ago. Apart from the odd hot flush side effect I have had absolutely no problems with taking it. In fact I believe that it has worked so well that I am no longer experiencing migraines which I now believe were related to menopausal hormone issues. I have now commenced a 6 week course of radiation therapy and apart from the inconvenience of travelling back and forward to the treatments I am feeling great. I go to the Perth Radiation Oncology facility in Wembley for my treatment and because it is for private patients I find that my appointments are on time and I am in and out within half an hour. The staff there are wonderful.
I've experienced many emotions in my journey so far including fear, severe anxiety and even anger but what helps me is to keep busy and make sure to catch up with friends for a coffee and chat and spoil yourself every once in awhile.
Sending lots of good vibes your way!
Vicki