Thank you for your comments, hugs and for sharing your journeys. I too send hugs to you. ","board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"conversation":{"__ref":"Conversation:conversation:180358"},"author":{"__typename":"User","login":"luckynov"},"postTime":"2020-09-25T15:40:01.000-07:00","kudosSumWeight":4}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":180368,"body":"You have to bear it but definitely don’t have to be grinning while bearing it 😣. It is very painful - I was so unprepared for how painful it was. Flamazine smothered all over was such a relief once the skin broke down.
I didn’t work - I just functioned and that’s about it.
Be prepared mentally that it won’t start healing the day after your last treatment. Once it begins to heal, it’s amazing how quickly it’s done, but it won’t start to get better for some days after. It’s hard to take when you’re expecting that - ‘ right, I’m done and now it will heal.’ It takes time so you have to hang in there a little longer.
","board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"conversation":{"__ref":"Conversation:conversation:180358"},"author":{"__typename":"User","login":"ddon"},"postTime":"2020-09-07T17:55:21.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":180369,"body":"thanks @ddon . I’ m just home. Nurse and treatment doctor applied Mepilex and gel. They said I’ll be continuing to come in for treatment after last session- so happy they’ll continue. See my specialist tomorrow and getting more pain relief .. feel better now I know what’s ahead next several weeks. I agree - I’m just functioning 👍","board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"conversation":{"__ref":"Conversation:conversation:180358"},"author":{"__typename":"User","login":"Louise64"},"postTime":"2020-09-07T21:18:02.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":180380,"body":"@ChezH Thank you - yes- this week huge turnaround. Medication fixed so pain under control and new nurse has taken from painful bleeding mess to new skin and only under breast needs dressing. I honestly am so relieved and amazed it’s turned around so quickly. Good luck with radiotherapy- lesson leant - ASK if you think you need more information or you aren’t confident in care you receive. So much is going on but don’t double guess yourself. Hugs 💗💗","board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"conversation":{"__ref":"Conversation:conversation:180358"},"author":{"__typename":"User","login":"Louise64"},"postTime":"2020-09-17T17:02:14.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":180391,"body":"Absolutely fantastic @Abbydog! That’s great 😁. Mine was similar. Only had pain and redness where Mepitel refused to stay on. Rest of the skin was unaffected. And everything healed very nicely after 2 weeks of last treatment. Skin is so smooth now, no signs of it at all. But I’m also concerned about chest wall and breast capsules, as my expanders are rock hard now and quite uncomfortable.
However, very happy with my Mepitel decision and also yours. I think trying to prevent as much pain as possible is the way. I hope we all continue to be guided in the right direction on this breast cancer journey/roller coaster/Shinkansen/donkey ride/wheelbarrow/supermarket trolley whatever the hell ride it is 👌🏻🙏🏻🤷🏼♀️
The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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session 22 of 25 and skin has completely broken down and peeled off under breast , areas of chest as well as blistered and bleeding and dark red to mahogany colour from under arm all way down side then right across chest and under breast. It’s excruciating- making nauseous. Had anyone’s nurses offered dressings etc this stage - I’ve just been told to use moisturiser and keep breast from rubbing- disappointing at this stage - has as no other nurse available- don’t want to fuss but omg I’m in pain and already on opioids. Any suggestions? 3 to go.. ","body@stringLength":"559","rawBody":"I session 22 of 25 and skin has completely broken down and peeled off under breast , areas of chest as well as blistered and bleeding and dark red to mahogany colour from under arm all way down side then right across chest and under breast. It’s excruciating- making nauseous. Had anyone’s nurses offered dressings etc this stage - I’ve just been told to use moisturiser and keep breast from rubbing- disappointing at this stage - has as no other nurse available- don’t want to fuss but omg I’m in pain and already on opioids. Any suggestions? 3 to go.. 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","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:180407_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22664":{"__typename":"User","id":"user:22664","uid":22664,"login":"FLClover","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-04-24T18:52:46.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/R8SGRHCT6997/pNWX7U3FFSVM4.jpeg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22664"},"ModerationData:moderation_data:180406":{"__typename":"ModerationData","id":"moderation_data:180406","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:180406":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22664"},"id":"message:180406","revisionNum":1,"uid":180406,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"parent":{"__ref":"ForumTopicMessage:message:180358"},"conversation":{"__ref":"Conversation:conversation:180358"},"subject":"Re: Radiotherapy","moderationData":{"__ref":"ModerationData:moderation_data:180406"},"body":"@Louise64 Very sorry to hear about your mum. I understand your lack of motivation. If you’ve already been considering it, please see a psychologist. I asked my med onc for one, have been seeing her 3 weeks now, and I already feel so much better. She’s incredible. I think going through breast cancer, plus whatever problems we already had before it, makes it almost necessary for us to get the mental and emotional health help we so desperately (at least for me) need.
I’ve also been making big life changes this year and am tired (moving etc) but already 50 times happier than I was last year, before the bc. And I decided no more teaching.
Good on you. It’s not easy, but you’ve obviously got a lot of strength 😊
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-02T02:14:07.000-07:00","lastPublishTime":"2020-10-02T02:14:07.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180406","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"760","rawBody":"@Louise64 Very sorry to hear about your mum. I understand your lack of motivation. If you’ve already been considering it, please see a psychologist. I asked my med onc for one, have been seeing her 3 weeks now, and I already feel so much better. She’s incredible. I think going through breast cancer, plus whatever problems we already had before it, makes it almost necessary for us to get the mental and emotional health help we so desperately (at least for me) need.
I’ve also been making big life changes this year and am tired (moving etc) but already 50 times happier than I was last year, before the bc. And I decided no more teaching.
Good on you. It’s not easy, but you’ve obviously got a lot of strength 😊
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I only had high grade DCIS 3.5 cm but had calcification 2 years earlier 1.5 inches below this one as had titanium clip in both after VAB. I’ve been having yearly mammograms since 40 as mum was 49 when first diagnosed. I rang and got appointment in May as closed in March when usually have- very lucky. So encourage everyone to tell a friend to book in if they’ve put it off this year. So lucky for Breastscreen Qld. Anyway - mine is in left breast so no guarantees. I honestly wouldn’t do radiotherapy again. I’d do double mastectomy. I’m still quite flat and now burns healed and inflammation at last going down the lumpectomy breast at least 1-2 inches smaller . Luckily with large breast not so obvious- but is to me. Considering contacting psychologist as still not motivated and not looking forward to going back to work. The unknown and what ifs and knowing first hand what mum went through can’t really be dismissed. I’m looking at big life changes- job, house, state as don’t want to waste time. Bit glass half empty and I want a full life .. whatever comes next 😊","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-10-02T01:53:06.000-07:00","lastPublishTime":"2020-10-02T01:53:06.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180404","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"1284","rawBody":"@Abbydog mum had invasive right breast and lymph nodes - went from A grade golfer and tennis player to radium, radical mastectomy, chemotherapy- then metastatic... last chemo to see my brothers son born . I only had high grade DCIS 3.5 cm but had calcification 2 years earlier 1.5 inches below this one as had titanium clip in both after VAB. I’ve been having yearly mammograms since 40 as mum was 49 when first diagnosed. I rang and got appointment in May as closed in March when usually have- very lucky. So encourage everyone to tell a friend to book in if they’ve put it off this year. So lucky for Breastscreen Qld. Anyway - mine is in left breast so no guarantees. I honestly wouldn’t do radiotherapy again. I’d do double mastectomy. I’m still quite flat and now burns healed and inflammation at last going down the lumpectomy breast at least 1-2 inches smaller . Luckily with large breast not so obvious- but is to me. Considering contacting psychologist as still not motivated and not looking forward to going back to work. The unknown and what ifs and knowing first hand what mum went through can’t really be dismissed. I’m looking at big life changes- job, house, state as don’t want to waste time. Bit glass half empty and I want a full life .. whatever comes next 😊","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:180404_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22671":{"__typename":"User","id":"user:22671","uid":22671,"login":"Abbydog","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-05-05T05:09:08.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-4.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22671"},"ModerationData:moderation_data:180403":{"__typename":"ModerationData","id":"moderation_data:180403","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:180403":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22671"},"id":"message:180403","revisionNum":1,"uid":180403,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"parent":{"__ref":"ForumTopicMessage:message:180358"},"conversation":{"__ref":"Conversation:conversation:180358"},"subject":"Re: Radiotherapy","moderationData":{"__ref":"ModerationData:moderation_data:180403"},"body":"Dear Louise64, I've been told it will be Letrazole. For 5 years, maybe 10 if tolerated. Sorry about your Mum, you don't want to follow in her path. Must be scary. What Grade and Stage BC do you have? Did she have the same? Or did you find it earlier?","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-02T01:10:41.000-07:00","lastPublishTime":"2020-10-02T01:10:41.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180403","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"271","rawBody":"Dear Louise64, I've been told it will be Letrazole. For 5 years, maybe 10 if tolerated. Sorry about your Mum, you don't want to follow in her path. Must be scary. What Grade and Stage BC do you have? Did she have the same? Or did you find it earlier?","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:180403_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:180402":{"__typename":"ModerationData","id":"moderation_data:180402","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:180402":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22751"},"id":"message:180402","revisionNum":1,"uid":180402,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"parent":{"__ref":"ForumTopicMessage:message:180358"},"conversation":{"__ref":"Conversation:conversation:180358"},"subject":"Re: Radiotherapy","moderationData":{"__ref":"ModerationData:moderation_data:180402"},"body":"@Abbydog slow process but healing- back to surgeon 4th November for MD team decision on hormone therapy. My mum was on tamoxifen for years - when they took her off them - cancer metastasised and killed her. Another decision I don’t want to make. If you’d told me in May when diagnosed what would happen and how long I wouldn’t have believed it. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-10-01T22:47:52.000-07:00","lastPublishTime":"2020-10-01T22:47:52.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180402","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"350","rawBody":"@Abbydog slow process but healing- back to surgeon 4th November for MD team decision on hormone therapy. My mum was on tamoxifen for years - when they took her off them - cancer metastasised and killed her. Another decision I don’t want to make. If you’d told me in May when diagnosed what would happen and how long I wouldn’t have believed it. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:180402_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:180401":{"__typename":"ModerationData","id":"moderation_data:180401","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:180401":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22664"},"id":"message:180401","revisionNum":1,"uid":180401,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"parent":{"__ref":"ForumTopicMessage:message:180358"},"conversation":{"__ref":"Conversation:conversation:180358"},"subject":"Re: Radiotherapy","moderationData":{"__ref":"ModerationData:moderation_data:180401"},"body":"Hello @ChezaH, the Mepitel does work best on mastectomies, as it obviously sticks better to flat services. I had a double mastectomy and needed both sides irradiated, however I have tissue expanders in, which are possibly worse than natural breasts for this sort of thing because they stay pretty upright and perky even when I am lying down. Plus my breast size is about DD, which isn’t that big but also not that small. So there were two rockmelons to cover, and let me tell you it was no easy feat. The first time the nurse put it on it took about 40 mins. It was during winter, but I sweat a lot even just walking, so it kept coming off too soon. After the first week the nurse even said they might not be able to use it if it couldn’t stay on. Also, when I arrived at my first appointment with it, the onco therapists just looked at me like ‘wth is that??’, and didn’t understand that I needed it on before the treatment. One of them told me that in 20 years of that job, he’d never seen or heard of Mepitel. But I insisted, and told them my onc said I could use it, and I looked pretty desperate, so they asked the nurse to apply it after checking with my onc., who confirmed she had agreed to its use (I realised everything was not as organised as I thought it would be - they get pretty busy and don’t always communicate regularly with each other). Luckily, another therapist that was there the next day had experience with it, and she explained to everyone what it was etc. After that they were more understanding and made appointments for me every Monday before treatment to have it reapplied for the week. I also kept telling the nurse sorry whenever she had to reapply or patch it up, as I knew it was a massive bother, and she told me it was fine, then she’d put it on really nicely and we’d have lovely chats. Another nurse told me I was very kind when observing her work, which I then understood meant other patients would yell at her about putting it on properly.
I promised them all I’d try to stop it from peeling off too quickly by slowing down my walking and avoiding getting it wet in the shower.
As I was sometimes late, there were a couple of treatments I had without it on, but it didn’t make a difference luckily. However, it usually takes more than 10 treatments to see symptoms, so it will look like everything is ok the first few times, but that doesn’t mean it’s not burning. After I finished my treatment, my oncologist and nurses said they would definitely recommend it to all patients from then on, as they could not believe how good my skin looked. They were in complete awe. I was surprised at how surprised they were. One nurse even stopped to tell me that when she saw me in line for the hospital. They said I converted them and they were really happy with my results. I’m also really happy, as my skin healed so well and I only had pain for a couple days on uncovered areas.
My point is, it’s fiddly and very annoying, for both the patient and the nurses. My guess is that many patients complain about it coming off and some may not even be very appreciative of the effort needed to apply and patch it up, so it may be a massive nuisance to a lot of nurses. I only noticed them being more tolerant of it after I showed a lot of gratitude. I’m guessing not everyone does. So it’s easier for them to just use a cream or even nothing. But they are not the ones suffering from the possible horrific burns and pain afterwards. So I’d say a lot of persistence, understanding, tolerance and gratitude is necessary from both sides for it to work, but it’s definitely worth it. Also, a lot of nurses are genuinely not familiar with it and don’t know how to apply it. I find this is the case though in a lot of areas, not just radiation. So I’ve had to be my own researcher and biggest support in making sure I get what I want and need.
I’m sorry this post is so long, but it’s a very fiddly subject, just like the Mepitel itself. It’s very grey, not black and white, as many areas of life are. I find the reasons for certain things sometimes are completely different to what appears to be obvious. So good luck with it, I’m no doctor, and maybe you don’t need it for olive skin or only 16 sessions, but I would ask for it anyway. We are receiving extremely aggressive treatments, and my rule of thumb is always use what is available for prevention, especially if it’s harmless, instead of having to cure later.
All the best 🍀❤️
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-10-01T22:17:30.000-07:00","lastPublishTime":"2020-10-01T22:17:30.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180401","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"4546","rawBody":"Hello @ChezaH, the Mepitel does work best on mastectomies, as it obviously sticks better to flat services. I had a double mastectomy and needed both sides irradiated, however I have tissue expanders in, which are possibly worse than natural breasts for this sort of thing because they stay pretty upright and perky even when I am lying down. Plus my breast size is about DD, which isn’t that big but also not that small. So there were two rockmelons to cover, and let me tell you it was no easy feat. The first time the nurse put it on it took about 40 mins. It was during winter, but I sweat a lot even just walking, so it kept coming off too soon. After the first week the nurse even said they might not be able to use it if it couldn’t stay on. Also, when I arrived at my first appointment with it, the onco therapists just looked at me like ‘wth is that??’, and didn’t understand that I needed it on before the treatment. One of them told me that in 20 years of that job, he’d never seen or heard of Mepitel. But I insisted, and told them my onc said I could use it, and I looked pretty desperate, so they asked the nurse to apply it after checking with my onc., who confirmed she had agreed to its use (I realised everything was not as organised as I thought it would be - they get pretty busy and don’t always communicate regularly with each other). Luckily, another therapist that was there the next day had experience with it, and she explained to everyone what it was etc. After that they were more understanding and made appointments for me every Monday before treatment to have it reapplied for the week. I also kept telling the nurse sorry whenever she had to reapply or patch it up, as I knew it was a massive bother, and she told me it was fine, then she’d put it on really nicely and we’d have lovely chats. Another nurse told me I was very kind when observing her work, which I then understood meant other patients would yell at her about putting it on properly.
I promised them all I’d try to stop it from peeling off too quickly by slowing down my walking and avoiding getting it wet in the shower.
As I was sometimes late, there were a couple of treatments I had without it on, but it didn’t make a difference luckily. However, it usually takes more than 10 treatments to see symptoms, so it will look like everything is ok the first few times, but that doesn’t mean it’s not burning. After I finished my treatment, my oncologist and nurses said they would definitely recommend it to all patients from then on, as they could not believe how good my skin looked. They were in complete awe. I was surprised at how surprised they were. One nurse even stopped to tell me that when she saw me in line for the hospital. They said I converted them and they were really happy with my results. I’m also really happy, as my skin healed so well and I only had pain for a couple days on uncovered areas.
My point is, it’s fiddly and very annoying, for both the patient and the nurses. My guess is that many patients complain about it coming off and some may not even be very appreciative of the effort needed to apply and patch it up, so it may be a massive nuisance to a lot of nurses. I only noticed them being more tolerant of it after I showed a lot of gratitude. I’m guessing not everyone does. So it’s easier for them to just use a cream or even nothing. But they are not the ones suffering from the possible horrific burns and pain afterwards. So I’d say a lot of persistence, understanding, tolerance and gratitude is necessary from both sides for it to work, but it’s definitely worth it. Also, a lot of nurses are genuinely not familiar with it and don’t know how to apply it. I find this is the case though in a lot of areas, not just radiation. So I’ve had to be my own researcher and biggest support in making sure I get what I want and need.
I’m sorry this post is so long, but it’s a very fiddly subject, just like the Mepitel itself. It’s very grey, not black and white, as many areas of life are. I find the reasons for certain things sometimes are completely different to what appears to be obvious. So good luck with it, I’m no doctor, and maybe you don’t need it for olive skin or only 16 sessions, but I would ask for it anyway. We are receiving extremely aggressive treatments, and my rule of thumb is always use what is available for prevention, especially if it’s harmless, instead of having to cure later.
All the best 🍀❤️
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It must be such relief. Do you have to start Tamoxifin or Letrazole or similar? That's my next thing, I'm told for 5 years or more.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-01T21:26:31.000-07:00","lastPublishTime":"2020-10-01T21:26:31.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180400","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"222","rawBody":"Dear Louise64, I'm so happy that you are well on the way to recovery. It must be such relief. Do you have to start Tamoxifin or Letrazole or similar? That's my next thing, I'm told for 5 years or more.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:180400_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:180399":{"__typename":"ModerationData","id":"moderation_data:180399","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:180399":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22664"},"id":"message:180399","revisionNum":1,"uid":180399,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"parent":{"__ref":"ForumTopicMessage:message:180358"},"conversation":{"__ref":"Conversation:conversation:180358"},"subject":"Re: Radiotherapy","moderationData":{"__ref":"ModerationData:moderation_data:180399"},"body":"@Louise64 that’s so good to hear 😊. I’m so happy your onc and head nurse got on top of it and gave you the treatment you needed. It’s also great you have that extra month off. Going back to work now would be so tiresome and energy zapping, especially for a teacher, because I’m one too and I know how mentally exhausting it is. I’m almost 2 months post radiation but get tired more easily too. We definitely need to allow ourselves to heal, and give ourselves lots of much needed and deserved love and TLC. Keep healing ❤️","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-01T21:18:10.000-07:00","lastPublishTime":"2020-10-01T21:18:10.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180399","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"523","rawBody":"@Louise64 that’s so good to hear 😊. I’m so happy your onc and head nurse got on top of it and gave you the treatment you needed. It’s also great you have that extra month off. Going back to work now would be so tiresome and energy zapping, especially for a teacher, because I’m one too and I know how mentally exhausting it is. I’m almost 2 months post radiation but get tired more easily too. We definitely need to allow ourselves to heal, and give ourselves lots of much needed and deserved love and TLC. Keep healing ❤️","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:180399_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:180398":{"__typename":"ModerationData","id":"moderation_data:180398","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:180398":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22751"},"id":"message:180398","revisionNum":1,"uid":180398,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"parent":{"__ref":"ForumTopicMessage:message:180358"},"conversation":{"__ref":"Conversation:conversation:180358"},"subject":"Re: Radiotherapy","moderationData":{"__ref":"ModerationData:moderation_data:180398"},"body":"@FLClover yes thank you - on the mend . My radiology oncologist and head nurse organised daily debriding and dressings so now all much better and pain relief helped so much. Still taking it easy to heal and fatigued after an hour even at shops so staying close to home. Another month before back to work. So glad as was suppose to be back next week- no way I could have . Thanks for asking 💗💗💗","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-10-01T20:17:57.000-07:00","lastPublishTime":"2020-10-01T20:17:57.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:chemotherapy-and-radiotherapy/message:180358/message:180398","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"396","rawBody":"@FLClover yes thank you - on the mend . My radiology oncologist and head nurse organised daily debriding and dressings so now all much better and pain relief helped so much. Still taking it easy to heal and fatigued after an hour even at shops so staying close to home. Another month before back to work. So glad as was suppose to be back next week- no way I could have . Thanks for asking 💗💗💗","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:180398_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"CachedAsset:text:en_US-components/community/NavbarDropdownToggle-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/community/NavbarDropdownToggle-1742938040000","value":{"ariaLabelClosed":"Press the down arrow to open the menu"},"localOverride":false},"CachedAsset:text:en_US-components/messages/EscalatedMessageBanner-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/EscalatedMessageBanner-1742938040000","value":{"escalationMessage":"Escalated to Salesforce by {username} on {date}","viewDetails":"View Details","modalTitle":"Case Details","escalatedBy":"Escalated by: ","escalatedOn":"Escalated on: ","caseNumber":"Case Number: ","status":"Status: ","lastUpdateDate":"Last Update: ","automaticEscalation":"automatic escalation","anonymous":"Anonymous"},"localOverride":false},"CachedAsset:text:en_US-components/users/UserLink-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/users/UserLink-1742938040000","value":{"authorName":"View Profile: {author}","anonymous":"Anonymous"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/users/UserRank-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/users/UserRank-1742938040000","value":{"rankName":"{rankName}","userRank":"Author rank {rankName}"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageTime-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageTime-1742938040000","value":{"postTime":"Published: {time}","lastPublishTime":"Last Update: {time}","conversation.lastPostingActivityTime":"Last posting activity time: {time}","conversation.lastPostTime":"Last post time: {time}","moderationData.rejectTime":"Rejected time: {time}"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageSolvedBadge-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageSolvedBadge-1742938040000","value":{"solved":"Solved"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageSubject-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageSubject-1742938040000","value":{"noSubject":"(no subject)"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageBody-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageBody-1742938040000","value":{"showMessageBody":"Show More","mentionsErrorTitle":"{mentionsType, select, board {Board} user {User} message {Message} other {}} No Longer Available","mentionsErrorMessage":"The {mentionsType} you are trying to view has been removed from the community.","videoProcessing":"Video is being processed. 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