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","customFields":[]},"Conversation:conversation:179449":{"__typename":"Conversation","id":"conversation:179449","solved":false,"topic":{"__ref":"ForumTopicMessage:message:179449"},"lastPostingActivityTime":"2019-12-16T19:21:18.000-08:00","lastPostTime":"2019-12-16T19:21:18.000-08:00","unreadReplyCount":9,"isSubscribed":false},"ModerationData:moderation_data:179449":{"__typename":"ModerationData","id":"moderation_data:179449","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:179449_1":{"__typename":"Revision","id":"revision:179449_1","lastEditTime":"2019-12-16T00:28:53.000-08:00"},"ForumReplyMessage:message:179457":{"__typename":"ForumReplyMessage","id":"message:179457","conversation":{"__ref":"Conversation:conversation:179449"},"author":{"__ref":"User:user:20627"},"revisionNum":1,"uid":179457,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"subject":"Re: Radiation Burn Treatment","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:179457"},"parent":{"__ref":"ForumTopicMessage:message:179449"},"body":"@strongtogether I am a HUGE advocate of the mepitel film. My rad onc & the private facility where I had the treatment were very much in favor of using this film & knew a lot about it. It was relatively new 2 yrs ago when I had my treatment which was 15 doses. You are supposed to leave it on the entire time. Once it is removed, it loses its value & use to your skin as when you remove it, it can also damage to the upper layer of your skin. I was seen by a nurse every day before my treatment to check it out as if there are any tears or bubbles, they have to be fixed so yes, some daily patching may be required. Yes, you do feel like a cryovac chicken for a few weeks but it is worth it. I did not have any redness, burning, peeling or skin irritation at all. You would not have even known i had rad treatment so it is worth persevering & you do get used to it. You can certainly get it wet. Just shower carefully & the nurse will repair any damage to the film each day. You DO NOT use any moisturizers while wearing the film. That is another advantage of using it. You have to keep it on around 3 weeks after you finish the treatment as the rad peaks at that time so you must keep it on. i was allowed to remove the film myself after this time & then I used moisturizers not because I was red, just because my skin had been wrapped up for so long so it felt nice! My 2 y.o. great niece called it my \"invisible skin\" & it did make me feel very protected after I got used to it. Good luck & just make sure you continually get checked out for any tears etc so it works efficiently. if you dont, you may as well not be using it as it loses its efficiency. Good luck xx ","body@stringLength":"1706","rawBody":"@strongtogether I am a HUGE advocate of the mepitel film. My rad onc & the private facility where I had the treatment were very much in favor of using this film & knew a lot about it. It was relatively new 2 yrs ago when I had my treatment which was 15 doses. You are supposed to leave it on the entire time. Once it is removed, it loses its value & use to your skin as when you remove it, it can also damage to the upper layer of your skin. I was seen by a nurse every day before my treatment to check it out as if there are any tears or bubbles, they have to be fixed so yes, some daily patching may be required. Yes, you do feel like a cryovac chicken for a few weeks but it is worth it. I did not have any redness, burning, peeling or skin irritation at all. You would not have even known i had rad treatment so it is worth persevering & you do get used to it. You can certainly get it wet. Just shower carefully & the nurse will repair any damage to the film each day. You DO NOT use any moisturizers while wearing the film. That is another advantage of using it. You have to keep it on around 3 weeks after you finish the treatment as the rad peaks at that time so you must keep it on. i was allowed to remove the film myself after this time & then I used moisturizers not because I was red, just because my skin had been wrapped up for so long so it felt nice! My 2 y.o. great niece called it my \"invisible skin\" & it did make me feel very protected after I got used to it. Good luck & just make sure you continually get checked out for any tears etc so it works efficiently. if you dont, you may as well not be using it as it loses its efficiency. Good luck xx 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You are a survivor and you have helped me so much.
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Yes cancer is shit , but we come through this journey stronger women. When I first started on my journey I was such a wose, just went along with the Drs. I now say what I want , question and do not take crap from anyone.
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i am glad you had a holiday with your family and your lung mets have not grown. This is a good sign , maybe not what you want but it is stable not growing.
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I turn 54 on 31st of this month and I have never really been one to celebrate my birthday. This year I am going to celebrate reaching 54 and life and will be looking forward to many more birthdays.
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Looking forward to reading your book.
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Big hugs Debbie
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","body@stringLength":"765","rawBody":"
You are a survivor and you have helped me so much.
\n
Yes cancer is shit , but we come through this journey stronger women. When I first started on my journey I was such a wose, just went along with the Drs. I now say what I want , question and do not take crap from anyone.
\n
i am glad you had a holiday with your family and your lung mets have not grown. This is a good sign , maybe not what you want but it is stable not growing.
\n
I turn 54 on 31st of this month and I have never really been one to celebrate my birthday. This year I am going to celebrate reaching 54 and life and will be looking forward to many more birthdays.