Radiation - my experience
Hi Everyone, I finished 25 sessions of radiation on the 3rd Jan 2019 and thought I would write about my experience of the whole process. It will be a long post, so get a cup of tea ready :) ...
Forum Discussion
Hi Everyone,
10 days from last radio , 25 all up.
My experience was better that chemo by far except for the last week, my skin gave up despite all the cream care which you HAVE to do.
I ended up in hospital to manage the burns on the skin and the pain , apparently I got the chronic burn due to my skin already being sensitive due to 6 months of chemo.
The radio team was great , however I had a registrer not my oncologist check my skin and he missed the chronic signs, even though I went there 2 days in a row cause I couldn't stand the pain , all he suggested was to increase the pain meds.
Luckily I had to see my oncologist on the 3 day , I walked in the office , he admitted me to hospital straight from his office.
3 days with morphine and dressings for 3 rd burns , was allowed out 3 days ago.after 5 days in hospital.
It has been mentally harder to deal with that everything I have gone through so far, so my advise , keep seeking help if skin goes a dark maroon colour you develop any blisters and if you can't stand even cool water touching it, watch for any little yellow scabs.
Don't want to alarm anyone , but I was told it was just going to be a bad sunburn, it wasn't so better to know worst case so you know that you are not been a chicken in regards to pain if it gets too much.
I have been told by my GP it will be about another month before I can stop using the Flamozine cream .
Like I said the getting zapped not a big deal , I wasn't uncomfortable at all about having no top on , double mastectomy , the radio guys all super professionals and go out of their way to make you feel relaxed.
I guess it just depends how you treat people is how you get treated back , the easier you make their job , the easier it goes on you.
Good luck to whoever is next.
10 days from last radio , 25 all up.
My experience was better that chemo by far except for the last week, my skin gave up despite all the cream care which you HAVE to do.
I ended up in hospital to manage the burns on the skin and the pain , apparently I got the chronic burn due to my skin already being sensitive due to 6 months of chemo.
The radio team was great , however I had a registrer not my oncologist check my skin and he missed the chronic signs, even though I went there 2 days in a row cause I couldn't stand the pain , all he suggested was to increase the pain meds.
Luckily I had to see my oncologist on the 3 day , I walked in the office , he admitted me to hospital straight from his office.
3 days with morphine and dressings for 3 rd burns , was allowed out 3 days ago.after 5 days in hospital.
It has been mentally harder to deal with that everything I have gone through so far, so my advise , keep seeking help if skin goes a dark maroon colour you develop any blisters and if you can't stand even cool water touching it, watch for any little yellow scabs.
Don't want to alarm anyone , but I was told it was just going to be a bad sunburn, it wasn't so better to know worst case so you know that you are not been a chicken in regards to pain if it gets too much.
I have been told by my GP it will be about another month before I can stop using the Flamozine cream .
Like I said the getting zapped not a big deal , I wasn't uncomfortable at all about having no top on , double mastectomy , the radio guys all super professionals and go out of their way to make you feel relaxed.
I guess it just depends how you treat people is how you get treated back , the easier you make their job , the easier it goes on you.
Good luck to whoever is next.