Forum Discussion
porta cath nerve shoulder and neck pain
hi there, was wondering if anyone has experienced what feels like nerve damage from their porta cath. I have had mine in for a month now and have suffered from debilitating neck and shoulder pain incl...
Hi @Nightingale, no I have had it as long as I remember. It just wasn't this bad. I have EDS, and POTS seems to be its sidekick along with MCAS. It is hard to get diagnosed unless you are lucky enough to have a GP that knows about it and will refer you to a specialist. I have no idea why they are so reluctant to look into it.