Forum Discussion
Christina_55
10 years agoMember
Not good news
Had my 1st chemo FEC-100 last Monday 5/9.(2 more to go, then 3 x Docetaxel & 12 months of Herceptin) Had trouble with the port, and 1 hour chemo ended up 3 1/2 hours. Very tired, nauseas but at least not vomiting. Day 3 thought I was having a heart attack as I had severe pains around the breast bone, only lasting a minute. Went to Emergency, and it turned out to be GERD (reflux). After having years of ulcers, I thought I was over it.
Sleeping lots and walking when I can. Went to see my surgeon for the results of my 2nd Re-excision only to be told its not clear. Mastectomy planned for Feb 2017. Seeing Radiation Oncologist next week.
Lots to read about.
Thanks for listening.
19 Replies
- primekMemberDon't be surprised if you end up with some bleeding with those nose drops. I had constant watery eyes and nose. Even now 5 weeks on my nose still runs but not longer bleeds. You eoikd have to be extremely ill for them to not give chemo.
- NadiMemberHi Christina. I feel for you. Chemo was definitely not a walk in the park for me. Just wanted to give you a heads up about reflux with radiation therapy. Definitely mention this to your radiation oncologist. There is a chance during radiation that your reflux may flare up again if some of your oesophogus gets hit by the beams. I had reflux way back in the past and never mentioned it to my oncologist because I had forgotten about it. However after radiation I ended up in hospital with severe pain and not being able to eat or drink properly for 6 weeks following due to severe reflux. I had to have an endoscopy and was on morphine due to the inflammation. If my oncologist had have known about how severe I had reflux in the past she would have done treatment a little differently. In the end I lost a lot of weight because of it - 10 kgs in 6 weeks and was so tired and sick - much worse than the chemo. I really hope this doesn't happen to you. So my recommendation is to be proactive about your reflux management. Wishing you all the best and praying that your margins are clear.
Hugs, Nadine - Christina_55MemberHi again. Forgot to tell you I have bum fluff on my head... LOL... xx
- Christina_55MemberHello everyone, Thanks for your kind wishes and thoughts and suggestions. My Reflux problem settled, along with the nausea. However, at the end of the 2nd week, I started to feel OK but then got a few ulcers on my tongue and my gums and teeth were so sore - OK now. Runny nose, sneezing, and watery eyes started this week and I know it not a cold. Hope this doesn't effect my 2nd chemo on Monday 26th Sept. Christina xx
- How are you doing today Christina? Im thinking of you xx
- That just sucks! But.....you can get through it!
Chemo messes with your digestive system anyway but to have extra on top is awful! I had awful nausea and it took some playing around with meds before I finally got relief....makre sure you tell your team and chemo nurses anything that may be bothering you....most symptoms can be elivated with medication....I had chemo first too before my mastectomy....I wanted my boobs to be gone then and there... but soon realised the chemo was more important at that time....wishing you the very best for your trreatments Xx Tracy - MelhayMemberOh Christina so sorry to hear the re-excision wasn't successful, that just stinks - along with everything else going on for you! Keep taking one day & one step at a time.
Mel xx - Brenda5Member
Sorry to hear you didn't get clear margins and need surgery again in Feb. Yes, once they have started the chemo they really don't like to do surgery as well so that's why the wait. At least you know the chemo still has a target and maybe it will annihilate the cancer before surgery anyway?
I hear you on the GERT, its flaming awful. I still get a bit of it but I find having a few swallows of water frequently helps. Lately I have come good with it. Touching wood as we speak lol. :)
- socodaMemberHi Christina,
I did have a mastectomy and didn't require any radiotherapy bit still had to see the radiotherapy oncologist and he just ran through the reasons why it wasn't necessary for me to have that treatment, he ended up by saying "nice to meet you, but I hope I never have to see you again!" which I could only agree to! :) All the best Xx Cath - Jane221MemberLoved your tasting plate analogy Christina! Chemo is a bit like russian roulette in terms of not knowing what side effects you might personally get, and there can be a few surprise reactions thrown in for good measure! Hopefully this will be the worst of it and the rest of your treatment is much smoother :-)