Forum Discussion

Paris_24's avatar
Paris_24
Member
2 years ago

Newbie - not the 2024 I was hoping for!

I was diagnosed just before Christmas 2023 with invasive lobular cancer - a journey that just keeps unfolding.  Initial diagnosis scans showed the ILC was 3.3 cm, then MRI 6 cm and the pathology results ended up at 7 cm and another 1 cm LCIS spot in a totally different area.  I had two surgeries- a mastectomy and a positive sentinel node, followed with an axilla clearance. I have some cording post surgery which physio is working on.  Next week, I start chemo (AC and then Pacilitaxel) followed by radiation and then endocrine treatment. Not what I was hoping for the year I turn the big 5-0. I really appreciate reading other’s experiences, and the Q&As available here.
chemotherapy
hormone-therapy
mastectomy
new-diagnosis
radiation
  • Coastiejas's avatar
    Coastiejas
    Member
    2 years ago
    Hi @Paris_24
    My 50th present was a cancer diagnosis and my Christmas present was losing my hair, not quite what I was hoping for either! I've had 4 rounds of the AC chemo and started the paclitaxel today....
    I've also had axillary clearance and have some cording.....keep up the physio and massage..I'm finding qigong helpful too. They have online sessions through look good feel better.
    Stay strong and be kind to yourself....try to treat yourself each day with something nice, even if it's just a bit of cake or a lovely soap etc...

  • arpie's avatar
    arpie
    Member
    2 years ago
    So sorry to see you join our select little group, @Paris_24 ..... the club no-one ever thought they'd join :( 

    We have a Private Group for ILC members where specific info re ILC is put up - jump on here & click 'join':
    https://onlinenetwork.bcna.org.au/group/23-invasive-lobular-cancer-ilc

    I hope you've recovered well from your surgery - that is a bugger about the cording tho!   Maybe put up a separate query about that? I know that it can be quite restrictive when it is bad ..... I hope the physio is helping.

    Have you been assigned a Breast Care Nurse?  You can also put any queries past them as well - as they'll have lots of tips & tricks from their other clients xx

    Feel free to jump onto this thread & read up a bit more on what else is available to you on the forum - you can show off your garden, art & craft, your fur kids - any thing you like, really!!  ;)  We even have some 'funny' posts, for you to have a giggle, too!!
    https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest

    Wishing you all the best for your chemo next week - drink lots of water, and rest up when you have to. xx  Eat lots of small meals rather than 3 big ones - maybe cook up some of your favourites and freeze them this weekend, so you have some choices 'ready to go' ;) 

    take care