Forum Discussion
Bearteggie
12 years agoMember
Nervous about Port
I haven't blogged for a while because I have had a few set backs and didn't really want to keep reliving them or scare anyone by a rant.
Prior to my fourth chemo which was my first Docetaxel I had to have a PICC line inserted but three days aftert my whole arm swelled up and I ended up in hospital. Very scary for me and had to wait until Monday to have ultrasound. It was discovered that I had a DVT in my arm so now I have to self inject a blood thinner for the next three months. The PICC had to be removed and this Wed I am going into hospital to have Port inserted ready for Thursday's chemo (2nd last one).
I am very apprehensive and nervous that my body will reject the port and I will have another difficut situation to get through.
I am trying very hard to challenge my negative thoughts about this but it is easier said than done.
Prior to my discharge from hospital when the PICC was removed I was told that they would ring me to set up an appointment with my oncologist to work out what they were going to do so that they could continue on with my chemo treatment. They didn't and after a week of waiting I had to chase it up. This all makes me very nervous.
I am more anxious now than when I started chemo. My anxiety is more to do with what could go wrong once I am home.
41 Replies
- LanaMemberSorry to hear you are having dramas with your chemo. It is bad enough without all of that extra stuff. I am 4 weeks post blast chemo and I only came good overvthecweekend. I never ended up on hospital but I did get a lot of side effects. You are nearly there and you will feel so excited once you are done. Feel free to speak about the good and the bad. It's like therapy! Take care!
- BearteggieMember
Thanks Hazel for your support and I have appreciated having you as a contact too. I actually feel better now that I have come back and posted here and I value so much the encouragement that has been given to me by the wonderful ladies here.
The cancer nurse at the GCUH has been a great support to me also in coordinating all the changes for me. Every appointment that was made for this month has been changed for one reason or another which mean confusion in when to take dexamethazone etc.
I am handling the anxiety pretty well today but will be glad once procedure is done and with a couple more days behind me if nothing goes wrong with it.
Big hugs to you too.
Joy xx
- Hazel_MMember
Sincerely hope all goes well for you with the port. I, like you, have not been posting on the site. My luck has not gotten better and I feel that people wouldn't want to keep reading all my negative stuff. As much as I like reading all the postive things it can sometimes make me feel like a failure. You have come a long way, our anxiety gets in the way sometimes. Only 2 more to go for you, I have appreciated having you as a contact on this journey. I will be thinking of you on Wednesday, big hugs,
Love Hazel xx
- Hazel_MMember
Sincerely hope all goes well for you with the port. I, like you, have not been posting on the site. My luck has not gotten better and I feel that people wouldn't want to keep reading all my negative stuff. As much as I like reading all the postive things it can sometimes make me feel like a failure. You have come a long way, our anxiety gets in the way sometimes. Only 2 more to go for you, I have appreciated having you as a contact on this journey. I will be thinking of you on Wednesday, big hugs,
Love Hazel xx
- Hazel_MMember
Sincerely hope all goes well for you with the port. I, like you, have not been posting on the site. My luck has not gotten better and I feel that people wouldn't want to keep reading all my negative stuff. As much as I like reading all the postive things it can sometimes make me feel like a failure. You have come a long way, our anxiety gets in the way sometimes. Only 2 more to go for you, I have appreciated having you as a contact on this journey. I will be thinking of you on Wednesday, big hugs,
Love Hazel xx
- Hazel_MMember
Sincerely hope all goes well for you with the port. I, like you, have not been posting on the site. My luck has not gotten better and I feel that people wouldn't want to keep reading all my negative stuff. As much as I like reading all the postive things it can sometimes make me feel like a failure. You have come a long way, our anxiety gets in the way sometimes. Only 2 more to go for you, I have appreciated having you as a contact on this journey. I will be thinking of you on Wednesday, big hugs,
Love Hazel xx
- Merlins_mumMemberHang in there doll.....the end is in sight! And you are already so much more resilient than you ever thought. Thinking of you Julie xx
- BearteggieMember
Thanks Cis. Yes, when I think of the end which is only a few weeks away now, plus recovery it is exciting. Just have to go through this proceedure and hope that everything goes well with it.
I have trouble straightening my arm too from three rounds of FEC. I was anxious about starting Docetaxel too but to be honest I think the FEC for me anyway was worse. None of this is pleasant but like everyone says it is doable.
I hope you are feeling well at the moment.
Best wishes
Joy xx
- c_yeoMember
So sorry to hear what you have to go through. Keep the end in mind and hopefully it will help to get you through to end of Chemo. With the port in, hopefully it will be better.
I will start my first Docetaxel in 10 days and a little apprehensive as well. My veins too are suffering and I have a little trouble straigthening my arm. It aches and feels tender to touch. I just hope I have enough veins to for 3 more sessions.
Just think this part will soon be over. One day at a time.I am sending you healing thoughts.
Cis
- Robyn_WMemberI remember some of your early posts Joy,and how unsure you were.You have come a long way since then , and pretty soon you will be finished.Sharing it halves it Joy:) Robynxxx