Forum Discussion
salwill
5 years agoMember
I used the cold cap through four rounds of DC chemo in 2019. The cold was intense, but only for about ten minutes and medication, peppermint tea and a warm blanket helped me through. My hair started to fall out three weeks after starting chemo. We were on a long car trip and my black car seat cover looked as if a dog had been sitting on it. This was probably the heaviest shedding I experienced, but I continued to lose hair all through chemo - and for 4 months afterwards. Shedding came in waves, but any time I ran my fingers gently through it, many strands would fall out and there was always a little clump left in the shower. Most concerning was that, 4 months after chemo finished, I couldn't see any regrowth. I could fluff my hair up after I washed it once or twice a week and it looked OK, but I wore soft little cotton hats as soon as it started to look flat and scrawny. The chemo nurse had initially convinced me to try the cold cap, telling me that it would help my hair to grow back faster and I might retain about 80% of it - well that may be what I selectively remembered amongst all the other information - and so I felt cheated when it kept shedding for so long. I ended up keeping about 60% of my hair. At about 4.5 months I finally noticed very short, new hair on top of my scalp. It thickened up and grew really quickly after that and now, nearly 6 months after my last chemo, my hairdresser says it is almost back to where it was pre-chemo. I started Anastrozole 2 months ago. My oncologist says it will probably make my hair thin again, but I will worry about that when and if it happens.