Some very good points raised here. I am triple negative, and it too is a whole other diagnosis. When my Dr told me I had triple negative , it was an almost by the way comment. It wasn't until much later that I realised the full implications of this diagnosis. I do feel for you with IBC, I have a friend with the same diagnosis and I had not even heard of it until I met her 6 months after my second diagnosis. I tried googling it back then and found very little on it.
Cyber hugs to you all girls.
Paula x