Meggs67
11 years agoMember
Moving forward
Hi everyone
I was diagnosed with IBC in June 2013 and been on a journey that I'm sure you're familiar with - chemo, mastectomy, radiotherapy and now tamoxifen.
I'm continually frustrated by the lack...
i can kind of relate to the 'gist' of your issue-- i dont have your diagnosis but breast cancer is a spectrum of 'disease' and treatments and i find my expereince --ie no mascetomy and chemotherapy--is also not well represented either--until you find people accidently or speak to health professionals --so you can feel a bit isolated or 'radical' when actually you are mainstream. There is often assumption that ive taken a year off for treatment or have taken a period of time off work--both of which have the assumption of chemo. Through the media, people have also assumed that i am missing a breast, that i would ask for both removed--as they think this is 'standard' for all bc! I would like the entire spectrum of disease and treaqtments to be represented
best wishes