Forum Discussion
Monkeygirl
14 years agoMember
Drain, Drain, go away . . .
I'm only just starting my trip down BC Lane, and find I have a lot of questions. This network has been a great way to talk to other women going through the same issues, and a point of contact I just couldnt get any other way.
I only had my first chemo six days ago (AC) and so far I have been lucky to only experience slight nausea. Fatigue & bad headaches, and a general feeling a bit like having a bad flu have been the worst of it, along with hot and cold flushes. So if this is as bad as it gets I will consider myself lucky. I notice some of you comment that the AC treatments get a bit harder as they go on? Does everyone find this? Maybe it is a bit early for me to know how it will effect me just yet.
One thing really bugging me is my post surgery drain, which I still have after 5 1/2 weeks. It doesnt look like going anytime soon. I have to wait till it drops below 40mm in 24 hours, well I've been over 100mm the whole time, and since the chemo started I'm back up to around 140mm per day. I hoped the chemo would dry it up! Has anyone else found this? It is a minor thing in the grand scheme, but drives me a bit crazy, makes sleeping and getting comfortable hard, is very painful at times, makes getting a bra on a bit of a challenge!
Do you all wear the post surgery bra? I find I can tollerate a few hours a day if I have to, but after that it is too painful on the drain, and sometimes i get blood in it still. Have any of you found a way around this? I've tried snipping bits out of one of those AH Bras, to make it fit comfortably, but by the time you snip the annoying bits off there's not much left.
Looking forward to the day I can bring the drain home, start a little bonfire & have a ceremonial burning!
37 Replies
- TonyaMMember
Go the drugs! Don't forget the laxatives if you are taking panadiene.Yep,denial will work for awhile.Take care,hope you get a better sleep.
Tonya xx
- MonkeygirlMember
Trish & Tonya,
Evening Ladies! Sounds like you are in the same neck of the woods. Trish, I had a lot of hot/cold flushes after my op, and am still having them since the chemo started. Weird huh? I also had a flu shot between surgury and start of chemo. I dont think it's menopause or anything, Im only 47 though I have had a hysterectomy for cervical cancer back in 2001. I know what you mean about the tight feeling, almost feels like theres a big piece of string running up my arm, but it's too short. I had a lumpectomy & a tumour on my sentinal node, so all 33 nodes removed. Geez Tonya, been through this once before, bet it doesnt make it any easier though. Heard back from the Doc and I've been too slack with my pain relief, trying not take it all the time etc etc, so from now till it's gone I am taking it by the clock and to hell with it. Thanks for all the chats ladies, I actually feel a lot calmer tonight, my current drain stragegy is to pretend it isnt there.
- chipmunkMember
Hi Trish and Monkeygirl
I had my drains in for about 14 days after surgery. But I also needed to have the fluid syringed after that twice. I was told by my surgeon that the more you syringe the fluid, the quicker it will build up again.
So, having the drains in should lessen the fluid build up over time.
Good luck with your drains, and keep blogging here. We are all here for you both.
Love Julie XX
- chipmunkMember
Hi Trish and Monkeygirl
I had my drains in for about 14 days after surgery. But I also needed to have the fluid syringed after that twice. I was told by my surgeon that the more you syringe the fluid, the quicker it will build up again.
So, having the drains in should lessen the fluid build up over time.
Good luck with your drains, and keep blogging here. We are all here for you both.
Love Julie XX
- TonyaMMember
Everything you describe about underarm pains/tightness etc sounds normal Trish.You might even get the sensation that there is a football under your arm. Did you have a full aux node clearance or just sentinal nodes?and did you have a lumpectomy or a mastectomy?I'm in Kellyville,not far from Dural.I'm so glad you have family here that you can stay with. However,it must be hard being away from your home and friends.This is a great site to come to and get support/information or to just vent. I'm 2 years on now from my second bout of breast cancer.The first was a lumpectomy in 2003 and then a mastectomy in 2010. I'm on Tamoxifen now and,touch wood,doing ok. With either operation you'll find you feel much better around the 3-4 week mark.I was driving and back at work at that point.Hope your recovery goes smoothly and contact me any time.
Tonya xx
- TrishMLDBMember
Thanks Tonya and Jenny
Mine is in the spot you describe right up into my left axilla - sorest where the drain enters through the skin and the stitch. Not up in armpit.Feels a bit itchy now too. I get a few other random stabby pains too . I haven't taken any Endone today just Panadol. It all feels tight all over though.
We have family in Sydney , first week we stayed Dural way, this last week Penrith area . I'll come down for chemo at this stage to have chemo at Penrith, have yet to get chemo appointment.
I am feeling a few chill like sensations today but don't feel like I have a fever , then I had flu vax Friday morning -so it could be that. I have an antibiotic ready to take if it gets worse.
I will ask him tomorrow , at least the drain is still around 60mls today not up near 80-100mls it normally is.
I appreciate knowing because better knowledge keeps me calmer.
Trish
- TonyaMMember
That's where my drain was too-kinda under the arm.So it's in the right spot,don't worry.Yes Trish,you poor thing having to travel all that way.I would think they'd take your drain out sooner than later.If you have a breast care nurse where you live then they can syringe the fluid if it builds up. Whereabouts in Sydney are you staying?Fun chatting to you both.
Tonya xx
- MonkeygirlMember
Geez that must be tough Trish. Where do you stay while in Sydney? Hopefully you have family or friends. I'm lucky in that I live in Brisbane, so everything is pretty close. I travel to the other side of Brissy for my chemo but it's still only a 45 minute trip tops even in the traffic. I really feel for women from country areas that have to stay away from home. My scar is quite numb also, but my drain doesnt come from there. It's situated a couple of inches behind it, kind of boob height under my armpit, a little to the back. Do your drains come from your incisions?
- TonyaMMember
Sounds like your drain has become some alien force with a life of it's own! Tell the doc you are starting to hallucinate about aliens invading your chest and bit worried about your mental state! Mind you,panadiene forte can do that! I have crazy dreams about creatures if I take that.Good luck with your phone call.
Tonya xx
- TrishMLDBMemberI will see him tomorrow. He s going on holidays and we live 4- 5hrs away , 20 mins from local hospital , staying in Sydney for surgery / recovery. I don't like my chances of them taking it out . I see your point Tonya , mine is quite numb and I am sure it is nerve irritation causing pain.