Oh funny, leprosy was the thing I thought of too. Losing toe nails wasn't so bad really. It was worse when they were threatening to fall off because they kept catching on things and I'd have to put bandaids on them when they did fall off. If I was carefuI, it was more uncomfortable than painful. Shoes were a bit of a problem but I wasn't working so I made sure the shoes I wore were soft and very roomy in the toe area if I had to go out. At home I lived in slippers or just socks. My neuropathy is dissipating so it looks like I will make a full recovery which is good news. My fingers still feel quite weird but I can do a lot more with them thank goodness.
Don't beat yourself up about being spooked or scared about your diagnosing. I went up and down emotionally like a yo yo and still am. One minute I am feeling pretty good about the future and the next I'm worrying if I'll get this again. I think that's a naturally part of this whole process. My hairs is not that long yet, a couple of centimetres but thickening up. It's funny as there are a couple of hairs on top of my head that are about 3 cms and they stick straight up. My husband said they were my Mohawk look LOL.
So glad you and your daughter are hugging.
Love Janey xxx