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jd48
10 years agoMember
AC Chemo - Day 1
Day 1 of Chemo finally here. Known it would come for a long time now as diagnosed 2.5 months ago, surgery 1.5 months ago and oncologist appointment 1 month ago but in a weird way it is not until I saw that pink liquid filled syringe be emptied into my arm that it was trully real.
They have been absolutely amazing here at POW Hospital at Randwick - I take my hat off to these guys and for my beautifull Chemo nurse Louise who has been extra cautious. I do not want to take away from the other nurses as they have been so attentative and wonderfull - trully great guys and girls - every single one of them but the gorgeous Louise has been trully wonderfull. It did mean I had to have 3 canula insertions (as she was not comfortable with the initial 2 and worried about toxins leaking) but I am gratefull she is being that cautious and that caring.
I must say having it done in hospital is a very weird experience as it takes forever to get the prep done. I was admitted at 10am but they only started medicating me at noon and it took some 3 hours to get all the prep meds into me. My angel Lousie reckons it is heaps faster in outpatient clinics but on the ward everything takes forever to both get up to the ward and to administer plus they had decent break between every drug to make sure I was not having an allergic reaction.
Speaking of allergic reactions weirdly I did have a bit of a reaction to the antinausea medication but thus far no issue with the toxic stuff. So YAY FOR NO MAJOR ALLERGY PROBLEMS and keeping every finger I have crossed hoping it stays this way.
For those yet to start AC Chemo, actual process of having it administered is no biggie... in my case at least...
First they administered all the 'prep' meds flushing the canula a lot in between. Then came the drug No1 - the 2 huge looking syringes filled with what looked like pink cordial. I must admit I expected to probably explode or fall over or something when lovely Louose started administering it but no big deal... a bit of a warm sensation through my arm then the rest of the body but that was about it. Cordial went in and no explosions, no implosions and no pain.
Then they readied the 2nd drug which was going to be dripped into the vein via IV over an hour. Apprently they can take 30 min to an hour so they chose an hour just to be cautious... I did try to talk them into a 'quickie' but they would not budge - safety 1st they reckon and crazy allergy girl would have to comply.
The hour went by and nothing bad happened. I must admit I was relieved but everyone here even more than me as poor people were terrified I would do my crazy allergy routine and they would have a 'code blue' on their hands.
It did take an hour which went by quickly (thanks to the movie channel) and the only side-effect I can report is a bery very mild metalic aftertaste which started in the final 10 minutes.
Now I know this is the first of 4 treatments and that all the bad stuff that goes hand in hand with this treatment comes afterwards as the toxins start to murder my immune system but for now I am one VERY HAPPY girl as the actual experience of being administred AC chemo (which I though would be super horrid, uncomfortable and even painfull) was no worse than sitting in an RTA or Medicare office waiting forever to get called up to the little window ??
Now I just need to put my energy into keeping things this way - off I go for a trott arround the Hospital as planning to stay as active as I can tollerate.
I did ask here about exercise and if that was good or bad or dangerous with AC Chemo and advice was to do whatever I was doing before (in my case no good as my arse has either been planted in the office chair at work or sofa at home) or as much as I felt comfortable with. Advice is not to overexert myself but to definitely exercise if feeling up to it. Aparently strength, resistance training and pilates are very much acceptable so the plan is to do it all day long (if at all possible). By the way regular (non crazy) aerobic exercise is also OK they said (but out of the question for me as I do have a bit of a mobility impairment). They do reckon here that exercise helps both reduce nausia and fatigue so if I can keep them away off I go into whole new world of exercise (I know this is just day 1 and hoping it is not going to be the case of 'famous last words' and I do end up in bed 24x7 - but I guess time will tell).
And I have decided to come back and write a blog every day as I figured if nothing else it may help someone coming up this same path after I am done with AC that is apprehensive worried and scared about the 'unknown'. I know we are all different and everyone has a unique chemo experience but I guess still it may be helpfull.
Time for me to go for my 'Hospital trott'
Bye for now
Jel
??????
11 Replies
- jd48Member
Thaank you :)
- jd48Member
Good advice Brenda...
I have been sending mymself sms messages when something occurs so I would have both date time and descriptuon... hopong it makes next consult easierr :)
- primekMember
Reflux became a huge problem for me too...sorry all part of the gut thing. I tried zantac and omrprazole without sucess so nexium twice a day is now part of my normal routine.
- AlsoptMember
Good to hear
- Brenda5Member
Step one done and dusted, congrats! You are stronger than you thought. Keep in touch with your team and report or do what I did and write down every side effect each day. My oncology Dr then read it all and we got extra meds here and there to make the next one a tad easier.
- jd48Member
Thank you for that great advice Kath :)
I have used movicol years back pre major surgery when I had a large ovarian tumor pressing on my bowls so have a box ready at home as I figured this is as light as one can go in terms of contipation meds.
And thank you suggesting steroid extensions as I was already going to ask them to keep me on them longer and to go off them very gradually as I usually wean off them very slowly so now I am definitely going to insisit on that bit.
I started to feel a bit queezy pretty quickly - not to mention burping and I NEVER EVER burp (a bit of a freak like that that I cannot even make my self burp when I need it - when unwell) but burping did finally happen...
Was just contemplating talking to them about the increasing nausia but thought I would try to walk it off (that is when burping set in so walking definitely helped). Did not stop it and I then tried 'self medicating' with grapefruit (I know lemon helps but I only had some apples and grapefruit so figured grapefruit might help). I am happy to report sucking on segments while walking (and I did walk a whole hour doing that) WORKED 100%.
Watching me walk up and down the corridors sucking segments of grapefruit had the whole nursing pretty much crack up with laughter that whole hour (and there was an odd weirded out visitor or staff member in the other areas of the hospital probably wondering what was wrong with me walking arround with grapefruit hanging out of my mouth - but their facial expressions amuzed me so all good)
I am so stocking up on grapefruit as I figured it can only go downhill from here in coming days. And since I did have a bit of reaction when they injected me with antinosia meds I want to try reduce amount I need to be on.
I have noticed a lot of sensitivity to light and early stages of a migraine but managed to manage that so far without resorting to meds.
All in all I reckon they will discharge me this morning so looking forward to going home and having a nice long shower as i trully hate Hospital bathrooms and this one is sadly still in stone age as far as fascilities go as the whole ward shares 4 toilets and 3 showers and every time I need to walk in there I think of hospital grade infections.
They have trully the most amazing staff but they need some serious funding to come out into the 1980-1990s (do not want to dream they would get enough funding to be brought into this century). It is very sad to see the state of this hospital ??
- primekMember
I am soooo happy it all went well. Thought of you often today. I was flushed for around 24 hours the 1st time. My nausea issues didn't really start being a problem until day 3 when my steroids ceased. They ended up extending my steroid days, and I went off maxalon as it made me restless and swapped to ondasetron and stemitil. My gut was the main issues and feeling light headed around day 7. Keep in touch with the chemo team if not well, small adjustments can dramatically improve how you feel. Watch the constipation. ..my biggest issue...resolved with movichol. ..everything else didn't work. Take care and fingers crossed for a good week. Kath x
- jd48Member
Thank you :)
I can honestly say that so far this has been the least eventfull hospitalisation with super nice staff.
I know it is early to have had all the bad sruff that may come along even rear its head but for now I am super super happy that they have managed to keep my crazy allergies at bay ??.
Jel.
- jd48Member
Thank you ?
Survived and other than hot flushes that kicked in real fast no overly unpleasant sideaffects yet. Hot flushes I did expecet as the amount of steroids pumped into me was absolutely huge plus I understand AC Chemo causes them.
In my case having them is not too bad either as they inspired me to keep on walking to stay cool so all is good.
All in all if this is the sign of my allergies and how they react to chemo I am one super lucky girl ??
Jel.
Glad to hear it went without reaction .....
Ive learned to Expect the unexpected and if that doesn't happen, BONUS!
Wishing you well
xx