Forum Discussion
primek
8 years agoMember
Hi there. I found AC challenging but totally doable. (Too be honest the accumulative side effects of taxol and horrible pains was much worse for mr) so this is how I was.
1st round...felt a bit scared at home on my own as didn't know how I was going to be so make sure someone home. Make sure you have sick bags (from chemist) for peace of mind. I never needed one...but had it just in case. I felt a bit sick ...no vomiting at all the 1st night. I felt pretty good day 2 and went out furniture shopping with my hubby for around 2 hours. 3rd day not real flash, bit light headed and nauseated a bit. Constipated by this time and bloated after any food or fluid. Felt better when I ate a bit...toasted sandwiches was my go to food. By Monday (I had mine on a Thursday) I went back to chemo unit as maxalon gave me restless legs...so switched to stemitl. Reflux big problem.
Okay Round 2
Now on stemitil for nausea 6 hrly, steroids for a couple extra days and ondasetron just before I ate (with a mint) Also nexium twice a day for reflux. ...constipation still an issue, felt good day 2 but tired and light headed for 1 week but good week 2 and 3. Neulasta shot made my neck ache...sorted with panadol (however I have heard claratyne works a treat)
Round 3
Same nausea stuff as it was perfect.
Movichol for constipation started night before chemo...fantastic....issue sorted, only needed 3 days. Very tired this round and didn't do much until round 4.
Round 4
Nausea ...sorted
Constipation...sorted
Tiredness ....less
Bloatiness...continued but at the finish line. ..occasional zantac in between.
So yes....it was hard for me but no hospital stays, not even a cold with neulasta. I even went to gym and pool occasionally on weeks 2 and 3 despite not feeling real good week one.
So not fun but totally doable. We get one shot at this cure thing. You are stronger than you think. Don't let fear of side effects ...that might not even be an issue for you ....stop your chance at cure. Just communicate issues and they adjust as needed. Take care. Kath x
1st round...felt a bit scared at home on my own as didn't know how I was going to be so make sure someone home. Make sure you have sick bags (from chemist) for peace of mind. I never needed one...but had it just in case. I felt a bit sick ...no vomiting at all the 1st night. I felt pretty good day 2 and went out furniture shopping with my hubby for around 2 hours. 3rd day not real flash, bit light headed and nauseated a bit. Constipated by this time and bloated after any food or fluid. Felt better when I ate a bit...toasted sandwiches was my go to food. By Monday (I had mine on a Thursday) I went back to chemo unit as maxalon gave me restless legs...so switched to stemitl. Reflux big problem.
Okay Round 2
Now on stemitil for nausea 6 hrly, steroids for a couple extra days and ondasetron just before I ate (with a mint) Also nexium twice a day for reflux. ...constipation still an issue, felt good day 2 but tired and light headed for 1 week but good week 2 and 3. Neulasta shot made my neck ache...sorted with panadol (however I have heard claratyne works a treat)
Round 3
Same nausea stuff as it was perfect.
Movichol for constipation started night before chemo...fantastic....issue sorted, only needed 3 days. Very tired this round and didn't do much until round 4.
Round 4
Nausea ...sorted
Constipation...sorted
Tiredness ....less
Bloatiness...continued but at the finish line. ..occasional zantac in between.
So yes....it was hard for me but no hospital stays, not even a cold with neulasta. I even went to gym and pool occasionally on weeks 2 and 3 despite not feeling real good week one.
So not fun but totally doable. We get one shot at this cure thing. You are stronger than you think. Don't let fear of side effects ...that might not even be an issue for you ....stop your chance at cure. Just communicate issues and they adjust as needed. Take care. Kath x